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sjust

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About sjust

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    Female
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    Sacramento Ca

  1. I would like to make the following recipe but need to replace the soy flour. Any ideas on what I could use?

    3/4 cup of melted butter,

    1/4 cup of honey,

    1 cup of brown sugar

    1 teaspoon of vanilla.

    1-1/2 cups of brown rice flour,

    1-1/2 cups of Hagman's gluten-free flour mix ,

    2 tablespoons of soy flour,

    1 teaspoon each of xanthan gum, salt and cinnamon,

    1 tablespoon of baking powder.

    Thanks so much.

    Sarah


  2. The GI told us to absolutely wait until 6 months to start my dd on solids. It was really hard because she really wanted food. She would yell at us while we ate and it got to the point that my husband and I ate in shifts so that she didn't see us eat. I agree with others that you probably do not want to start with rice cereal. We started with avacado, but applesauce, butternut squash, sweet potato are all good first foods and low on the allergy list. I think you have every right to be worried about starting foods. As a reminder, make sure you only introduce one new food a week and start the food in the morning so if your son has a reaction it occurs during the day.

    Good luck

    Sarah


  3. We have not ruled out a heart condition, in fact they have not even looked at that. I should ask about it. What would you recommend I request? We did go rent a scale today so we will be doing pre and post weights for a while to see what she is taking in. I figure if she is taking in enough ounces per day we are going to go sit at the dr. until they do something even if it is admit her to the hospital. If it turns out she is not getting enough ounces, I will try the formula :( So far all of her tests have come back normal and the dr. says that by lab work alone she is the picture of health, yet she continues to go down in weight. She is now down to 11 pounds 5 ounces a drop of 3 ounces in a week.

    It is interesting that you say your problems started after the 2 month vac's Andrea because that is when Rebecca's started as well and she has not had any since. I often wonder if it was a problem or just a coincidence. I will not give her anymore until she is doing better.

    How do I look up a member?

    Thanks

    Sarah


  4. I would like to thank everyone for their support and especially Electra for the great advice. How old is your little one? You mentioned testing for prealbumin and creatine. How are these tests done? Blood, stool, urine? As fas as I know we have not done those but I will definately ask that they test for them. Also the kidney test, how do they do that? Really they have done very few tests and that is part of my frustration. Because she is not lethargic and seems happy they seem unwilling to step it up even though her weight is going down.

    We have checked for a foremilk/hindmilk imbalance and the LC says that is not the problem. She also says the calorie count on my milk is good. We have done pre and post weight feedings in the past and she was getting plenty of volume although that was months ago and I may go rent a scale tomorrow so that I can see how much she is getting in a 24 hour period. I would love to know what you are doing to try to fatten up your breast milk.

    I suspect malabsorption is our issue because I have increased her feedings and she still continues to go down in weight. She was up to 12 pounds and is now down to 11 pounds 8 oz and we will see tomorrow if she is down more.

    The Elecare is what we were given to add to my breast milk but I just can't bring myself to give it to her. She is so sensitive that I feel it would make matters worse. We have started solids in the last few weeks and so far she has had a reaction to every one. Avacado gives her horrible gas that is very painful and pumpkin makes her throw up. We tried rice cereal tonight for the first time so we will see but she is not very fond of it.

    My other issue is that no matter what pump I use, and I have tried the hospital grade one, I can not get a lot out. Yet when I put Rebecca to the very same breast I can hear her gulping away. It makes me think that my supply would dry up very quickly and I am already on herbs to increase it so I hate to supplement for that reason.

    Sarah


  5. I am currently off gluten, dairy, soy, corn, eggs, citrus, nuts, beans and gassy vegetables. When I first went gluten-free her bm got better but only for about a month. I have been working really hard to find even trace amounts of gluten and ended up changing most of my haircare products to accomodate this. Still the bm is not normal. How do I get the ELISA test? Does my dr. order it? They are running a celiac panel on her along with a RAST test but I know these are unreliable in someone so little.

    Sarah


  6. We went to Stanford for a second opinion on my daughter. She is almost 7 months old and is now down from 12 pounds to 11 pounds 8 oz. They told us a very similar story to the G/I we had been seeing which was she looks healthy but obviously something is not right. They want us to put her on Neocate for half of her feedings instead of bf. I am having a very hard time with this. She seems incredibly sensitive to so many foods and solids have gone less than well. I feel like if the weight were the only issue then saying she is not getting enough calories would be the likely cause but she also has green mucus poops and has for almost 5 months now. Nobody has an answer for those. I have had my milk tested and it runs between 20-29 calories an ounce which is more than the formula. I don't know what to do at this point. Do I give in and put her on a formula that I think is bad for her, or do I stand my ground and hope we get some other answer.

    Thanks

    Sarah


  7. I am very interested in what you are going through. I have a 6 1/2 month old who is also labeled as failure to thrive. She was gaining all be it very very slowly but now she is losing weight and is down to 11.5 pounds. They are unsure as to what is causing the problem. She will eat solids if offered although they are very runny, but they do not seem to agree with her. Her stool has been green and mucusy for months now. We just ran a test for celiac but I suspect it will come back neg. no matter what cause I have been gluten free for months now and she has never tasted gluten herself. My daughter is also happy and does not act like she is starving. They find that kind of interesting saying usually kids who are losing weight are lethargic. I wish you the best of luck.

    Sarah


  8. We are struggling with the same issue. In the beginning going gluten free fixed the problem but now it is back and we are on our way to Stanford University to figure out what is going on. I agree, start with milk, cut all types out including whey and casein. Any irritation to the intestine will cause the slime consistancy and it could be something else besides gluten. If milk doesn't work cut wheat out before all gluten, and maybe try eggs.

    Good luck. It is so hard with the little ones and it takes time (about a week minimum to usually see a difference.)

    Sarah


  9. We recently had to have blood drawn on my 3 year old son. I expected it would go bad as he does not like shots one bit. I could not have been more surprised. I agree that the butterfly makes a huge difference. It doesn't look anything like a shot needle so that is helpful. If he wants to watch let me. The lab tech told me most kids do great until they see fear in their parents and then it is all over. So if you act like it is no big deal that will help. Also maybe give him something to look at/play with so he wont notice the blood draw.

    Good luck it is hard.

    Sarah


  10. Dairy was definately a problem even the smallest amount caused scalding on her bottom, soy makes her spit up, she does not seem to tolerate corn although exactly how is still not clear, beans made her very gassy. The nuts we are off because my son has a cashew allergy so they said stay away from them and frankly it is the easiest. I have started adding back in egg in things like bread. She seems to be ok with that but it has been in very small portions. On Monday I took out all corn to see if we get anywhere with that, I was still using chicken broth with corn in it and drinking diet soda which I found out had corn syrup for coloring. They tested her for a milk allergy and it came back negetive. Not sure if that is the same thing you were asking about.

    Sarah