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EmmaQ

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Everything posted by EmmaQ

  1. EmmaQ
    Hey, We're staying on the Canadian side of things. At an indoor water park hotel system, like Great Wolf, but not Great Wolf. I'm going to have to stop in a grocery store as well b/c we are planning on breakfast and lunch in our hotel room. I'm not sure if anything will be disallowed crossing the border.
  2. EmmaQ
    Thanks. I'll come back when I know where we are staying.
  3. EmmaQ
    Hmmm, I guess I should have mentioned we don't do a ton of dairy products. And the baby can't have any. I have the Celiacs who also are intolerant to oats. Beside even gluten-free oats should not be given to a Celiac child who is DQ2. The DQ2 gene group has the mark of oat reaction. It isn't the gluten protein cross contamination, it is actually an...
  4. EmmaQ
    I'm in a food rut. My kids are eating way too many Enviro Kids Cereal bars, it will get old soon and then they won't want them ever again, ever. I have a toddler w/o many teeth who is Celiac. He can't eat apples, carrots, or other hard foods. He has trouble with stringy, like oranges. I'm in a rut about what to feed him. School is out and...
  5. EmmaQ
    HI We're traveling to Niagara Falls in a few weeks. Any suggestions on safe and friendly places to eat? I so hate being told they won't serve us! It's like the liability policy have arrived and every restaurant out there is rude now. I just want a salad without bread crumbs or onion rings and you can't just take them off. Anyway, the its a PITA to...
  6. EmmaQ
    I've been ironically doing accounting from home for years. I am no longer due to my #1 client closing their business this past year and I have 4 kids 3 not even in school. I figure I need to clean it up for tax purposes. I have a 4 yr old computer I'm depreciating HY. And I have a cellular phone that broke which has a SL depreciation of 10 yrs. How...
  7. EmmaQ
    Very few medical doctors are testing IgG reactions. Most of what you are describing are gut issues and IgG would be were to go looking. An Allergist is going to run IgE test, the results come back on a scale of anaphylaxis. Given your dh has allergies to foods, your child very well might come positive on something. You should call and ask specifics...
  8. EmmaQ
    The IgA deficiency is a tricky thing. Let me try and explain from my experience. Mayo Clinic results were "normal" for IgA and our pedi only requested the TTG test w total serum. Mayo only uses one lab range for IgA screening, my son's TTG was negative. I went to a Pedi GI and he retested with Prometheus Labs. IgA total serum was not normal, but...
  9. EmmaQ
    Belinda, Those photos are some of the most strikingly Celiac I've ever seen. Oh, poor baby! FWIW - I went through my photos and just could not find a really good one. I will describe -- underweight, shorter than sibling and peers, ribs petruding, no real budda belly, sunken eyes, once we shaved his head at age 3 it was very disturbing, it made it...
  10. EmmaQ
    The Lundberg Farms Hot Rice Cereal is a bit textury for babies. I tried it on my LO. He never has gotten used to the texture, maybe now that he is 1, I'll try again. Dr. Fasano's Pediatric Fellow (can't remember her name) told me Beech Nut was safe. I used Beech Nut. I called Gerber and the woman I was tranfered to on allergens told me it was manufactured...
  11. EmmaQ
    La Leche League's book The Womanly Art of Breastfeeding talks about food introductions and the hows. Remember any doc probably has only had 1 hour of nutrition in all of his/her years in med school - ignor them. Now since you are Celiac, there is a 50/50 shot your kid is too (unless possibly the dad also has the gene at which point the odds go up). A...
  12. EmmaQ
    Definitely stay glutened up a lot. Children heal so quickly that any slack could result in less villi atrophy and then a negative biopsy. Have you considered driving to a different Pedi GI that can get you in more quickly? We drove to Baltimore to Dr. Fasano. I would not say he is the best though, the number of biopsy samples taken was too little, they...
  13. EmmaQ
    I could have written that !!!! I know that look of disappointment, with the look of I'm not going to cry behind it. It breaks my heart. I try not to have something glutenous for a treat for the other kids unless I have an equal for those in the house who are gluten-free. I generally have a few snacks and treats in my bag at all times, I have forgotten...
  14. EmmaQ
    The scoping is not the difficult part, this is very true. It is obtaining the biopsies and preparing the slides correctly and then having knowlegdable pathologist looking at them and a Celiac Specialist doctor reviewing them himself. My thoughts are if a Celiac Research center is nearby, within driving distance, then go there. Around here it's the...
  15. EmmaQ
    Have you ever heard of the Carbohydrate Specific Diet? I would start there. The gut needs to be healed to be well. The Maker's Diet is an interesting read, not sure if I buy it all, but it is good if you have the disipline to give up everything and try dirt to feel well. I think it worked for him, may or may not work for someone else.
  16. EmmaQ
    I would make sure your thyroid and endocrine systems are functioning properly. There is nothing quite so horrible as a great diet plan that yeilds nada b/c you have hypothyroidism or other endocrine failure. I would just cut out the gluten-free bread products and commercially packaged gluten-free products, leaving Whole Foods only for eating - meat, veggies...
  17. EmmaQ
    I have not gotten a good response for any nutritionist or dietician, even one at a top Celiac Clinic that specialize in children -- that one refused to tell me how much calcium a child of 3.5 needs for optimal health! Or the Celiac herself who tole me not to buy anything w more than 5 ingredients! You have a clue, obviously, get yourself to the library...
  18. EmmaQ
    You may not get answers until the kids are older. WE took our 2nd gluten-free after the blood tests, he is IgA deficient but the IgG test was positive and the gene. We will do the biopsy later, if need be, he was too little and too sick and we didn't know about all the testing, no one told us until is was too late to reverse what we had started. If your...
  19. EmmaQ
    Did they do an IgG TTG? Did they do total serum IgA? If a person is IgA negative or low in IgA then the standard Celiac Panel are not applicable and will be false negative. Did they do the Gene marker tests? If it was not done by Prometheus labs, redo it and have it run by Prometheus. If you are in the VA, PA, MD area, go to the University of Maryland...
  20. EmmaQ
    You need to be eating gluten to have it pass to your dd via bm or if she is eating solids have her eat gluten. The tests will not be accruate if you are gluten-free and she is gluten-free.
  21. EmmaQ
    My celiac disease child reacted to McD FF before all the debate was started, he won't eat them period. And from his painful experience won't eat any, not even ones I make. The McD debates gets me b/c the US has set NO standard as to what is gluten-free and what is not. Many adults will tell you some are super sensitive to minute particles and others are...
  22. EmmaQ
    Once the gut is irritated food intolerances increase - my thought. My advice would be to look into The Carbohydrate Specific Diet.
  23. EmmaQ
    I'm curious after reading so many accounts of moms who think their babies have celiac or separately gluten sensitivity, if any have sought our having their under 1 yr old tested with blood tests currently available and biopsy for the gold standard? If you did, were the results pos, neg or inconclusive? Is your child gluten-free now? If so, are you...
  24. EmmaQ
    I also would not put much hope in the nutritionist visit, I have been disappointed with many. One who happened to be Celiac and Dairy free herself told me not to buy anything with more than 5 ingredients!!! Okay, that might be fine for an adult, but we're talking kids here, kids who need to feel as normal as possible. I never bought a Fruit Snack in my...
  25. EmmaQ
    You stated she is IgG positive and a gene marker positive. Was she IgA deficient or IgA total serum lower than "normal", but not exactly deficient? If there is not enough IgA total serum the other tests will come back negative. DId they do the new IgG TTG test? Just remember that the biopsy is only 33% effective in catching Celiac Disease in absence of...
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