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Susan123

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Everything posted by Susan123

  1. Susan123
    I have been diagnosed with Interstitial Cystitis and Gluten Intolerance. Both diagnosed for the first time in my early 30's. If I only knew in my earlier years how lucky I was to be able to eat what I wanted!! Oh well health comes first :-)
  2. Susan123
    I was told by the Celiac Research Center in Baltimore that if you don't have the genes for Celiac that you can rule it out with 99.9% accuracy. That is pretty strong. I would look into other food allergies maybe. Have you gotten the food allergy testing done?
  3. Susan123
    I loved it too!!! I buy it at our local market. You can get it at the gluten free mall too but I think you have to order 10 at time
  4. Susan123
    Wow. no need to get nasty... this is just a friendly talk about weight loss. We are all just suggesting what worked for us. Walking does help you loose weight... talk to the American Heart Association on how walking 30 minutes a day can reduce you weight to help you lower your blood pressure. Also, walking is much better for your joints and muscles...
  5. Susan123
    I am not comparing Lactose intolerance and Gluten intolerance because I know they are different. He was just saying if gluten makes you feel bad don't eat it plain and simple. I produce a high level of IgA antibodies when I am eating gluten. I think my highest was 141. But I never produce a positive Tissue Transglutaminase nor show damage in my body...
  6. Susan123
    the best way to loose weight is to walk at a moderate pace for at least an hour a day. Biking doesn't really help with weight loss as you tend to coast more thus not burning any calories. THe way my doctor explained it to me is that you are taking in so many calories and unless you are burning those calories in the same day they turn into weight. It...
  7. Susan123
    I am gluten intolerant and it was explained to me by one of the top doctors for celiac that they are not the same thing. There is no evidence that Gluten-Intolerance will turn into Celiac Disease if you continue to eat gluten. I can eat gluten and not have damage or symptoms but I CHOOSE to eat the gluten free diet just in case. I was told it was a personal...
  8. Susan123
    I get it in the summer time. I like Dr. Scholls lotion for cracked heals. I put it on in the morning and at night when I go to bed and then put on socks. It works wonders if you continue it.
  9. Susan123

    ARCHIVED Fast Food?

    Susan123 replied to Ronnie's topic in Gluten-Free Restaurants

    Wendy's: Southwest Salad - chips, chili and sour cream all gluten free. I pick Honey Mustard dressing, Cheese fries Boston Market - Chicken, Ham, Turkey - chicken gravy is gluten-free (use cornstarch as a thickner), mashed potatoes, grilled vegetables, corn, garlic potatoes Burger King- My favorite, Garden Salad with grilled chicken and ranch...
  10. Susan123
    I tried the gluten free basket bread and did not like it but that might be just me. I thought it had a horrible after taste. No matter what bread I try I always come back to good ole faithful "Kinnikinicks White Sandwich bread" It is the closest I have found in a supermarket.
  11. Susan123
    *Best Bread = Kinnikinick White Sandwich Bread *Best Bagels = Don't eat *Best Pasta = Tinkyinada any type *Best Pizza = Foods by George *Best Rolls = Don't eat *Best Crackers = Don't Eat *Best Cereal = Fruity Pebbles *Best Waffles = Van's *Best Donuts = Don't eat *Best Muffins = Dont eat *Best Cupcakes = Dont eat *Best Cake...
  12. Susan123
    I just got back two weeks ago and did not have such a great experience. Maybe I was expecting too much after all the favorable responses from everyone. I went to eat at the one place that has the most gluten free food and ate what was designated and was sick for 3 days of my 5 day vacation. Animal Kingdom was the hardest to find something gluten free...
  13. Susan123

    ARCHIVED Bk Fries

    Susan123 replied to rache's topic in Gluten-Free Restaurants

    My take on the whole BK from previous experience eating there pre gluten free.... They are dedicated and the fries are put in one container under the lamps and the onion rings in the other. You scoop up with the scoops and some get in the other spots. I have found a lot of times onion rings in the fries. Pre-gluten-free it was an unexpected surprise...
  14. Susan123
    stomach burning is the only symptom I get from Gluten. My doctor said your body produces excess stomach acid to rid itself of allergies/intolerances. Over time it gives you a mild form of gastritis. Once I quit gluten (i have a wheat allergy and gluten intolerance) it went away. Now if I get into some gluten my stomach burns instantly. Popping I am not...
  15. Susan123
    Elmiron works wonders for many people but for some it makes their hair either fall out or break off. I don't know the percentages but the majority can take it with no problem. I do know it is not an immediate response and can tak months up to a year before you feel anything. I had no relief with it but relief with the argnine in 1 month. I just...
  16. Susan123
    I got one along the lines of this conversation. It is not regarding feeding kids or hubby but fish. Fish food has gluten in it. Do you think it is ok to feed them as you pinch it in your fingers and spread it on the top. My boyfriend has been doing it so far but I feel like I am neglecting them.
  17. Susan123
    Food Lion carries it.. I got it last night and tried it . It is good. Not too sugary.
  18. Susan123
    I take L-Argine 1000 and Cranberry (macronium) and was told that the L-Argnine is just as good as the Elmiron and won't make your hair fall out. My hair was breaking off constantly when I was on ELmiron
  19. Susan123
    Interesting. I wonder what the connection if any.... If you don't mind me asking. What kind of treatment are you on for the IC? Any diet tricks?
  20. Susan123
    Being a fast food addict.- Wendy's - Cheese Fries, Chili, baked potato (with brocolli or cheese or both), southwest salad, honey mustard dressing and ranch and any burger w/o bun of course. McDonalds, side salad and ranch, fries, Burger King, Tendergrill chicken w/ or w/o garden salad, Boston- chicken, turkey mashed potatoes, gravy ( i confirmed-...
  21. Susan123
    On the other side of the coin. I have been dizzy since last july and my mother has been dizzy for 11 years. I am still dizzy after being gluten-free for 6 months. It was determined that mine was Positional vertigo. I went to a ENT doctor who referred me to a Vestibular Therapist. They run many tests but usually can pinpoint the cause based upon eye...
  22. Susan123
    I clench not grind and am gluten sensitive. My dentist said the major cause is stress. I clench more when I have a lot going on at work. Don't think it is related to gluten.
  23. Susan123
    Thanks for the concern and response. Cranberry juice it very painful for people with IC. It is not bacterial it is a bladder wall that is irritated and leaky. You can imagine putting cranberry juice on a cut. Ouch! I found out the hard way. I do eat blueberries as they are recommended.
  24. Susan123
    Thanks. I took antibiotics for months and then I found out it not a bacterial disease and they never did anything for me. I try to drink only water because they say carbonation irritates the bladder. I am going to a support group this weekend so hopefully I will get more info. Still recovering from a cyto with instillation.
  25. Susan123
    I love their snickerdoodles!!! Never had a problem always really soft. Are you buying in a specialty store or a regular grocery store. Maybe in a grocery store they sit on the shelf longer?
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