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Miriam3

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Miriam3

  1. Miriam3
    Thanks guys! Yeah, mom is sweet. I checked after you recommended it and the local organic market has Pamela's. The box even has a recipe for using it as a sweet bread, and I think that's what will taste best with mom's recipe. I'll let you know how it works out!
  2. Miriam3
    Help! My mom is being a total angel about gluten-free this Thanksgiving. It took her some time to come around, but she has been super-supportive about the family Thanksgiving and wants to make a gluten-free version of her famous holiday nut bread for me. She called me asking for gluten-free flour substitutes and I'm trying to find a good solution for her...
  3. Miriam3
    I had horrible menstrual cramps when I was a teenager. Birth control pills helped a little, but depo provera or the Mirena IUD worked the best. Both stopped my period and cramps completely. And Mirena is local hormones so it's not even bad for your bones. If your cramps are debilitating and you don't plan on having kids right away, I highly recommend...
  4. Miriam3

    ARCHIVED Oats

    Miriam3 replied to JNBunnie1's topic in Coping with Celiac Disease

    What timing! I had oats three days ago and am finally over the feeling. I will never touch them again! A friend mixed a packet of Quaker Peaches and Cream instant oatmeal into my box of instant grits packets. I am never usually tempted to eat gluten on purpose, but peaches and cream was my favorite as a kid and I hadn't tried oats since going gluten...
  5. Miriam3
    I agree it could be the dressing! I went to a "pasta feed" the night before a run just to keep friends company and there was almost nothing there I could eat. The croutons, caesar dressing, lettuce and parmesan cheese were totally separate so I thought I was home free. I had lettuce, dressing and parmesan and I have never had such awful stomach pains in...
  6. Miriam3
    Same here. I only got an 10 for gluten antibodies, but I know that I'm not just being a hypochondriac about the gluten. I've been slowly but surely avoiding bread and other "junk foods" for years because they just didn't seem to make me feel good. I didn't know about celiac, so I thought I was just having "food coma" from too much starches. Rarely I would...
  7. Miriam3
    Welcome ScatterBrains! Wow, we have had very close to the same symptoms all along the way. Except for the eczema, I had everything you've mentioned. I was even on ADHD meds for a while. Milk was a big culprit. When I was a kid my allergist told my parents to take me off milk, but they thought that was silly. It's taken another 25 years to figure it...
  8. Miriam3
    I couldn't say it much better than what everyone is pointing out here-- between the guilt over having maybe passed on a gene, worry that they might come down with the same "inconvenient" condition, and belief that all special diets are optional "fad" diets, we are all fighting uphill trying get real understanding from our families and friends. I will say...
  9. Miriam3
    What about rice pasta and marina-type sauce? That's what I serve people when I don't want to call attention too much to the gluten-free thing. No gluten-eater I have tested Tinkyada rice pasta on has ever disliked it. They all say it tastes just like the normal stuff! You could offer to cook and bring it along so he doesn't have to go searching for it...
  10. Miriam3
    Thanks all for the input! Hmmm...maybe my immune system is finally on vacation after all the fighting it's been doing. Reminds me of those descriptions I hear about "high histamine" and "low histamine" traits. I'm not sure what's the scientific basis for it, and I never totally accepted it as real. But I have heard that high histamine people have lots...
  11. Miriam3
    I've been gluten-free for almost three months and CF for about one. I'm feeling better in lots of ways, but all of a sudden my immune system seems like it's taking a vacation on me. I've been fighting this stupid cold for almost two weeks; I found a wart on my finger (first time in 20 years) and just found I have a yeast infection (first time in four...
  12. Miriam3
    Well, docs will tell you there is a normal range, and 97 isn't out of it so it's nothing to worry about. It didn't worry me that the thermometer said a certain number, it worried me that I couldn't get warm and that sucks! I've seen cold hands and feet on a few sites as a possible symptom, but I guess it isn't a classic one. For me, I'm just happy to finally...
  13. Miriam3
    I've dealt with hypoglycemia for years-- and isn't it even more tricky when you have to come up with a balanced meal that doesn't include wheat? (My dietician originally had me eating wheat crackers and peanut butter for my hypoglycemia ) It helps to find some slow releasing carbs-- the kind with some fiber to slow down the carb burn. Apples are...
  14. Miriam3
    Thanks Drollchick, I'll give that a try. I've been choosing my own list of supplements for a while-- I think it's time to jump on board with something that's already formulated.
  15. Miriam3
    "Freezing in waves"... ....I guess that's not a real expression and it sounds confusing. What I mean is gluten or casein make me feel suddenly cold, sometimes so cold my teeth would chatter. Even in a really warm place (and I mean I live on a tropical island and this still happened)-- I'd get ice cold hands and sometimes feet. The chilled feeling comes...
  16. Miriam3
    What do you all do about supplements while you're recovering at the start of your gluten-free diet? I've been taking a B-complex supplement (B-1, B-2, Niacin, B-6, Folic Acid, B-12, Biotin and Pantothenic Acid) for almost a year now. I've only been Gluten-free Casein-free for 2 months. I was taking it before I got diagnosed because I was feeling tired...
  17. Miriam3
    For me (double DQ3, subtypes 7,9) the symptoms have been mostly non-gastro (ice cold hands/feet, eyelid and other muscle twitches, migraines, brain fog, fatigue, bad memory). Does anyone else have the cold hands and feet? I can't tell you how many tests of my thyroid I had to go through because of that! And it was always perfect, no antibodies even. ...
  18. Miriam3
    I'm at over two months gluten-free now. I started to feel better after four days-- meaning, the gas, cramps and bloated stomach started to get better. Over the last couple of months a lot of the water weight I was carrying around in my stomach and legs started to go down. My ankles look less puffy. Also I stopped experiencing really bad brain fog in...
  19. Miriam3
    Thanks all Your experiences will definitely help me try to put this in a sensitive way. I would just love for one family member to be curious like your mom, Rho!!! My aunt is my best hope for that. I'll talk to her this weekend and at least get her the message it might be a good idea to get her son tested. Let y'all know how it goes!
  20. Miriam3
    Hi all, I've got a dilemma most of you seem to have had at some point... I've done really well on a Gluten-free Casein-free diet and although I don't want to be some preachy convert, I want to tell some of the family members I suspect have similar issues about what might help them. Any hints on how to talk to people without intimidating them or turning...
  21. Miriam3
    Hi Fitgirlie, Hope you are making some progress in your diagnosis/plan for recovery. Just wanted to add that I also have the DQ7 gene, which it looks like new research is turning up as a celiac gene too. Enterolab gave me my results this way: HLA-DQB1 Molecular analysis, Allele 1 0301 HLA-DQB1 Molecular analysis, Allele 2 0303 Serologic equivalent...
  22. Miriam3
    Hi Jen, I did a search and found your thread after my enterolab results just came back. If you're still around the boards, I'm another DQ3 (Subtype 7,9). Here's what I got after a little over a month of gluten free (wish I had done things in a different order now!) But gluten-free has done me wonders of good and I'd be happy to exchange symptom stories...
  23. Miriam3
    Hi Ravenwoodglass, In case you're feeling alone in gene land, here are my new results: A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value Fecal Antigliadin IgA 10 (Normal Range <10 Units) Fecal Antitissue Transglutaminase IgA 7 Units (Normal Range <10 Units) Quantitative Microscopic Fecal Fat Score 8...
  24. Miriam3
    Thank you both! Anne, I'm a Seattle girl by origin too! You know how hard it is to be there with all the great restaurants and try to be all picky. I went back a few weeks ago to visit family-- at least chefs there are nice and usually happy to help people who need to "tweak" menu. But thanks for keeping me looking on the bright side (yay, wine!). I...
  25. Miriam3
    Just had this happen too! I've been gluten free for a little over a month now. I felt a lot better, but I finally realized the only times I DIDN'T feel better were after having dairy products. I don't think it's just lactose intolerance because I get bad "brain fog" and chills with ice cold hands-- besides the gas and cramps. Now I'm Gluten-free Casein...
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