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dadoffiveboys

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Everything posted by dadoffiveboys

  1. dadoffiveboys
    Ok so then for the food law which we were discussing.. if a product were to contain "Gliadin" or "Glutenin" it would have to be labeled as WHEAT. This DOES NOT MEAN it is GLUTEN FREE. Correct now right?
  2. dadoffiveboys
    Alright.. then is the "gluten" in rye/barley from the proteins that barley/rye naturally contain or is it incidental like in oats from crop cross contamination? I eat gluten-free Oatmeal without a problem (although expensive). If the gluten in rye/barley was cross contamination from the crops.. then it would have to be listed as WHEAT in the ingredients...
  3. dadoffiveboys
    So Glutenin (which is the protein in wheat) or Gliadin (which is the protein in wheat) must be labeled correct? I thought Gluten = Glutenin = Protein in Wheat. Please correct me if I am wrong.
  4. dadoffiveboys
    What about if their proteins are the SAME as a wheat protein? The medical literature I read said the proteins are the same which is why I said what I said - are the barley and rye proteins not the same? I agree 100% we need better labeling.. so here is my question: Wheat contains four proteins.. the two most offending are Gliadin and Glutenin. Does...
  5. dadoffiveboys
    You may be right there - I am not sure the difference between barley and rye proteins.. but so you all know.. I have an allergic reaction to the gluten in barley and rye as well and my family has a MEDICAL DIAGNOSIS of gluten allergy.. so should I be pushing for this since I am one of those VERY RARE people (any my father and my four boys btw!!!). that has...
  6. dadoffiveboys
    It can still say WHEAT FREE.. what I am saying is they have to do one of the following: "Label the package: Allergens: WHEAT" OR "Ingredients: contains barley" Both would be legal.. I'm talking to Frito Lay right now try to force them to add the appropriate allergen labels because I bought a package of Tostitos that said: Ingredients: Corn, Oil, Salt...
  7. dadoffiveboys
    I had similar symptoms to yours - and the only test with anything I got was an IgA level was 48. <25 was normal and >50 was abnormal.. 25-50 was equivocal (This lab was from the Mayo Clinic lab.) I had like 20 biopsy's done - intestines, stomach and esophagus and came back with GERD and gastritis.. no signs of 'celiac'. If you see any of my other...
  8. dadoffiveboys
    My first post in this thread shows it.. see the other thread were I posted links to the FDA website and the law. The law isn't clear because lawyers wrote it!!! Also.. it's all listed AT THE END of the law under the DEFINITION of 'major food allergen'. It then proceeds in (1) to list the 8 allergens. Then paragraph (2) states a protein of the allergens...
  9. dadoffiveboys
    This law only mentions putting an allergen label on foods that CONTAIN gluten - no talk about gluten-free.. If the proteins of Barley/Rye - namely glutenin (aka gluten) are in a food, then it will label it as "Allergens: WHEAT". This was a new amendment to the law. Derivatives of barley or rye which could contain glutenin would also have to be labeled...
  10. dadoffiveboys
    Please note: This indicates that gluten is NOT considered one of the 8 major allergens but that WHEAT = GLUTEN.. i.e. Gluten will be labeled AS WHEAT. (just for clarification) But if a product has Wheat Gluten in it.. they MUST list Allergens: WHEAT on the label (What is the difference between wheat and gluten anyhow.. can you REALLY separate...
  11. dadoffiveboys
    Open Original Shared Link OR Open Original Shared Link Then look at this section (NOTE: it unfortunately ONLY enforces WHEAT protein (aka Gluten) and not that or Barley or Rye which we also have a reaction to! ************************ HERE IS THE APPLICABLE SECTION - AT THE END OF COURSE ******* (b ) Effect <<NOTE: 21 USC ...
  12. dadoffiveboys
    There is no difference between wheat gluten, barley gluten and rye gluten (there is but slightly)... If I read the law.. they MUST label any 'gluten' as WHEAT, correct no? And Casein labeled as MILK.
  13. dadoffiveboys
    Not true.. the law was AMENDED and here it is directly from the FDA website.. **************** see below *********************** ``(qq) The term `major food allergen' means any of the following: ``(1) Milk, egg, fish (e.g., bass, flounder, or cod), Crustacean shellfish (e.g., crab, lobster, or shrimp), tree nuts (e.g., almonds, pecans, or walnuts...
  14. dadoffiveboys
    I called up Frito Lay and spoke with their nutrionist which was very helpful. I was told that my call was the first REPORT they had of an allergic/celiac reaction to their product - and that they take it VERY seriously (which is good to hear!). Unfortunately she couldn't assure me they would change anything apparent to me but they look into their manufacturing...
  15. dadoffiveboys
    I would recommend checking for Folic Acid deficiency. My father had a bad case of peripheral neuropathy (diagnosed by a neurologist) and a deficiency in folic acid. This affects the amino acids that make up the nerve cells or something like that. It takes MONTHS to recover the damage as nerve cells heal very slowly. Also I noticed if oyu go gluten-free...
  16. dadoffiveboys
    Sounds like my kids. They get C and buttocks rash when they eat gluten (and some other things as well). In your case you know they were exposed.. my recent one was accidental. My 7 year old and 3 year old both ate the Tostitos that were made in the factory with the flour chips . Both now have a rash covering their entire buttocks and are C'd. Neither...
  17. dadoffiveboys
    We've had both the 4.5qt and 6qt mixer. We ended up giving away our 4.5qt mixer (no room for two of those on the counter) and got the 6qt - mainly because (as you can see by my name) we need the larger size because of the family size - currently 6 soon to be 7! Otherwise both handled every kind of batter. There is a lower power mixer (<250W) which...
  18. dadoffiveboys
    I wouldn't use a microwave if you are ... you would have to try some sort of 'steamer' otherwise to keep them soft while warming them up but I've NEVER had luck doing that so. Try the low setting on a broiler or a toaster oven (which isn't used for non-gluten-free stuff!!!) It will make it crispy though (you can make mini 'pizza' like stuff and put...
  19. dadoffiveboys
    One thing.. we have alot of those resturaunts where I live.. but the particular franchise DOES NOT always offer gluten-free food or menus.... namely Outback, Carabas, Bonefish Grill and Cheeseburger in Paradise. When I went to those locations and requested a gluten-free menu they didn't have one and couldn't guarantee it - but did tell me up front...
  20. dadoffiveboys
    Actually not true - the protein of a major allergen (casein/gluten) must be disclosed as milk/wheat. It is in the text of the new law if you read it
  21. dadoffiveboys
    As a note to what Gemini said.. I have symptoms similar to yours.. I had multiple biopsies and I had NEGATIVE results - blood test and biopsy. However, I definitely have a gluten intolerance/allergy! Insurance wise, if you have celiac it DOES affect your rates (increasing them!) - so no official diagnosis is sometimes a very good thing - and I am not going...
  22. dadoffiveboys
    My question is still valid.. the question wasn't on 'celiac' disease.. but on gluten intolerance as well and it makes the first question .. just a little hard to pinpoint. The reason I say this.. is this question is what MATTERS the most! In an ideal world, we would want everyone to be in the 0-2 years and never have it 'bad'.. reality is most people...
  23. dadoffiveboys
    This makes me think.. my family has a history of "pernicious anemia" (so I was told).. this is Vitamin B12 deficiency then.. Do you think I ought to see my doctor for B vitamin supplements? Do you think that is causing my son to have his frequent nosebleeds or my other child's low appetite? Just curious since you seem to know about this some! thanks...
  24. dadoffiveboys
    I've gotten rashes very similar to what you described (except not as severe ever)... I take Allegra constantly and it helps with the itching some. Mine WERE caused by Gluten allergy.. but I don't have 'dh' so to speak (I'm not sure the differences). Mine were small bumps like uticaria.. but the bumps like you described I get as a 'heat rash' - ie if you...
  25. dadoffiveboys
    Guess what? My son had a rash on buttocks (dh?) and an ADHD massive outburst, pee'd through his bed and had a nosebleed for four days straight. My third oldest same thing - rash on buttocks. We checked the codes.. had a 71 in the date code... man am I pissed!!! Those are the two (along with dad aka me) who ate those! (I had D... and some skin outbreaks...
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