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JustJust

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Everything posted by JustJust

  1. JustJust
    I had muscle twitching before the DX and then went gluten free (strict) and now 2.5 years later the muscle twitching in the legs is back even though all my lab values are normal. I'm still going to keep taking my calcium, vit.D and multi vit and even up the dose to see if that works......(of course, you should talk to a dr. before taking doses of meds above...
  2. JustJust
    My celiac started out with all NEURO/NERVE problems....had the CT-scan for MS just like everyone else with celiac seems to have, resulting with a negative. Low Calcium can cause Muscle twitching, you need to have lab work drawn to show your vitamin and mineral deficiencies, you probably have more than one, Ferritin (iron), B12, etc....... Justine RN
  3. JustJust
    Are you sure these are esophagus spasms? Sounds like Gastritis to me! Google Gastritis and stick to a diet that avoids coffee, spices, alcohol, etc..... for two months and see if you improve.
  4. JustJust
    Maybe someone can shed some light on this......... Not only was I daignosed with Celiac 6 months ago but I just had a Glucose tolerance test and it indicated that I have diabetes as well.... I AM SO UPSET!!! It's it possible that this could e a false positive because of the celiac? I know carbohydrates are absorbed in the small intestine so if I have no villi...
  5. JustJust
    Just wondering if anyone else had this problem............. My vit. D levels were extremely low so my dr. put me on 50,000 units of vit. D weekly for 3 months and I also took a Calcium supplement of 2000 mgs daily which had about 1,500 mgs of Vit. D in it......... Anyway, after 3 months my levels were within range but on the lowest side so they gave me two...
  6. JustJust
    THANKS BRIAN I WILL DEF CHECK IT OUT~
  7. JustJust
    THe stuffed animals in the freezer for a minimum of 8 hours will do the trick! Justine RN
  8. JustJust
    Hi Everyone, Just wondering if someone could recommend a good probiotic supplement for me! I am one of those Celiac's that never suffered from GI symptoms. The past ten years before I was diagnosed though I had been anemia had osteoporosis, joint pain and nerve pain.......... Once in a while I would get constipation and gas but nothing that the average...
  9. JustJust
    Can someone please suggest a brand of probiotics that are gluten-free that they use? Funny, I never in my life had any stomach issues and was only dx with celiac disease because of my iron deficiency and osteoporosis at the age of 27. However, since I have gone gluten-free I am now getting stomach pains........ I almost wish i didn't go gluten-free because...
  10. JustJust
    Phase IIb Study to Study the Efficacy of AT1001 to Treat Celiac Disease This study is currently recruiting participants. Verified by Alba Therapeutics, November 2007 Sponsored by: Alba Therapeutics Information provided by: Alba Therapeutics ClinicalTrials.gov Identifier: NCT00492960 Purpose This study will look at 3 doses of AT100...
  11. JustJust

    ARCHIVED New Here

    JustJust replied to Joss's topic in Coping with Celiac Disease

    JOSS, I WAS DIAGNOSED WITH RSD! NOT MANY EVEN KNOW WHAT THAT WAS, SO I WAS EXCITED TO SEE THAT YOU HAVE IT TOO. TOO BE HONEST WITH YOU NOW THAT I FOUND OUT I HAVE CELIAC (3 MOS.) AGO, I AM NOT SURE THAT I REALLY HAVE RSD? MY PAIN LEVELS HAVE GREATLY IMPROVED IN THE PAST THREE MONTHS. I WAS AT THE POINT THAT I WAS WHEELCHAIR BOUND FOR 4 MONTHS. THE PAIN...
  12. JustJust
    STEVE, I tell everyone about it! I look at it as a teaching moment for a lot of people. Since celiac disease is so common you never know who is also suffering from it that may be misdiagnosed! I suffered horribly for months and actully thought I was going to die and when I found out it was celiac disease i was so happy that I spread the word to everyone...
  13. JustJust
    Hello, My level for all three Antibody tests where each over 100. The range was like 3 -9. Does anyone else have OR HAD an antibody level this high before? I read a few people had 14 or 28 but 100, that's pretty bad don't you think? Also, does anyone know what that means? Does the higher the number mean the worse the condition? Thanks, justine
  14. JustJust
    IF ANYONE KNOWS MUSCLE PAIN IT'S ME! INFACT I DIDN'T FIND OUT ABOUT MY CELIAC UNTIL I STARTED HAVING THE PAIN. My legs would ache and i wasn't able to walk on my feet for a few months. I saw 26 doctors all of which blew me off and one actually accused me that it was impossible for me to be in so much pain for no reason. Well..... a month ago they finally...
  15. JustJust
    THANK YOU EVERYONE FOR THE REPLYS! I AM SO HAPPY I HAVE BEEN gluten-free FOR 10 DAYS.......... never thought i would make it this far............... only about 50 years left.....LOL
  16. JustJust
    I was told that the hydrolyzed vegatable oil that they put in most chapsticks like bonnie bell no chapstick it self have gluten in it. Take that with a grain of salt because I can't verify how reliable the source was. Someone posted that on their gluten-free web site!
  17. JustJust
    I just called panteine today because that is the brand of shampoo i used for years and they told me they couldn't guarentee the fragrance was gluten-free because it comes from suppliers who don't tell what is in it?!?!?!?! Just a little FYI
  18. JustJust
    Hi, Does anyone know of any shampoo conditioners hand lotions and cosmetics that are gluten-free. I am desperately trying to replace all of mine but have no clue as to what is gluten-free and what isn't! I call Panteine and they said they couldn't guarantee that the fragrance in their shampoo didn't derive from WBOR. I also called Dove and they said...
  19. JustJust
    OKAY I NEED HELP!!! THIS IS MY APPROX. 5TH DAY gluten-free AND I WENT TO WALMART SINCE I KNOW THAT THEY LABEL ALOT OF THEIR PRODUCTS gluten-free AND FOUND A BAG OF THEIR VERSION OF REESE'S PEANUT BUTTER CUPS. I LABEL CLEARLY LISTED gluten-free AND AFTER I ATE A FEW IN THE BAG CONTINUED TO READ THE ALLERGY SECTION OF THE BAG WHICH INDICATED THAT THE PRODUCT...
  20. JustJust
    O- here with Celiac and think my mom with O- has it too!
  21. JustJust
    Thanks for the info and encouragement! VERY CUTE PIC by the way
  22. JustJust
    Hi, I have been gluten-free for 4 days now and was just wondering if anyone new how long it would take for the Intestines to heal? My Dr. didn't really say much to me rather, is sending me to a dietician........ He did say to see in though is about 8 weeks. What is the standard follow up procedure for celiacs? How often do they do the biopsy to see if...
  23. JustJust
    Hi , As a newby here...... i noticed that most people had the type of celiac that they had in the signature section of their posts and was just wondering what that was all about? What type of genetic testing do I need to know what type of celiac I have? Any advice would be greatly appreciated. I had the biopsy done and an antibody test done but that was...
  24. JustJust
    I JUST HAD THIS CONVERSATION WITH MY MOM TODAY! I BRUISE ALL THE TIME ( I JUST STARTED gluten-free 3 DAYS AGO) FOR THE PAST TEN YEARS I WOULD WAKE UP WITH MYSTERIOUS BRUISES. I hope they start to go away soon. Best of luck
  25. JustJust
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