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ShayBraMom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ShayBraMom

  1. ShayBraMom
    Hey, I know exactly how you feel! I just got here last week or so and I feel very happy here! I only got the suspicion for my kids but have to fight for the tests. My son had been testet last year for celiac which came back negative, thats why this year a year later our Ped. Gastroenterologist does not take me very seriously since I brought my 10 month old...
  2. ShayBraMom
    From what I understand is, you Daughter is doing good but the Levels are still up, down a bit but up right? If she is doing good then you are doing good! Her levels are going down, that is important! Not everybodys Levels drop the same! It can take anywhere up to 1-2!!! years for the Levels to drop! A year is a long time but it can still take even longer...
  3. ShayBraMom
    I recently asked you guys about your kids nails (or even yours if you are Celiac or NCGS) BEFORE they went on Gluten-free! My kids where both born with normal nails, and over time they ahve changed shape and apparence! Several of you chimed in that you did notice those nails on you or your kids and did not realize that they could be also a Symptome fo the...
  4. ShayBraMom
    I have the solution for you! first of all, if they do retest the blood ect. haven them send it to Prometheus Labs (which takes also MedicCare and Tricare ect.) or to EnteroLab, both are SPECIALIZED in looking for Celiac or Non-Celiac-gluten-Sensitivity. both have the same symptoms, it's just with Celiac it's already the full-blown desease where it attackes...
  5. ShayBraMom
    Welcome, I'm glad you found your way here! I"m sure this is what you need here, everybody iss o nice and supportive! And besides that, maybe you want to check enteroLab, you can get Stooltest that are so sensitive that they'll pick up often long before bloodwork or Biopsy shows results. Check it out! Open Original Shared Link Good luck!
  6. ShayBraMom
    I would also recommend EnteroLab as well! I'm debating right now myself! To my thread two people had answered that they worked wiht them and it was awesome! The lab itself says it doesn't matter if they kids are on the Glutenfree diet or still on it, the Stooltest they have is so sensitive it will still pick up, in fact they encourage people NOT to consume...
  7. ShayBraMom
    You asked how I know about Stooltest. Read here, this doctor developed a Stooltest whicha apparently is able to detect long before bloodtests sometimes! The Stooltest is done by EnteroLab which is specialized in Celiac and Non-Celiacs! Just read the Article here Open Original Shared Link and then click on the highlighted "Stooltest" in the Artcile at...
  8. ShayBraMom
    You asked how I know about Stooltest. Read here, this doctor developed a Stooltest whicha apparently is able to detect long before bloodtests sometimes! The Stooltest is done by EnteroLab which is specialized in Celiac and Non-Celiacs! Just read the Article here Open Original Shared Link and then click on the highlighted "Stooltest" in the Artcile at...
  9. ShayBraMom
    Well, we saw the Pediatric Gastroenterologist again today! I talked to him about my suspicions, I felt like I was not taken way to seriously. I did however in the end march out of that office with prescription for my son to be retested witht he full Celiac-Panel and for my Bab-daughter the same. Now, my question- I kept wheat away from my daughter for...
  10. ShayBraMom
    Gee, that IS hard! Well, you Celiac can't help it, the Baby eats Babyfood ro what ever you can send through the Baby-FoodBlender (Walmart got an Awesome one for only 20$ by DEX, I use mine every day) Well, the Vegetarian can eat what you guys eat, he'll/she'll just need to leave the meat away and as for the Picky eater- well, live sucks! He/she got no excuse...
  11. ShayBraMom
    PS: yo9u should also consider that she's teething like a Maniac too and that hurts like crazy, specially at night, give her a dose of Tylenol or Motrin before Bed with the Tummysoother. Aslo consider adn maybe have her tested foer Acid Reflux, make sure her upper body lays elevated, about 30 degrees is enough, a towwel rolled up under hte matress edct...
  12. ShayBraMom
    PS: yo9u should also consider that she's teething like a Maniac too and that hurts like crazy, specially at night, give her a dose of Tylenol or Motrin before Bed with the Tummysoother. Aslo consider adn maybe have her tested foer Acid Reflux, make sure her upper body lays elevated, about 30 degrees is enough, a towwel rolled up under hte matress edct...
  13. ShayBraMom
    I know what youy are going trhough my DD will be 10 month old on Friday, tomorrow! It is so hard to say what is wrong! Regular colic I doubt since she's already so old. I'm breastfeeding too, and it can be everything from Veggies you eat, you yeastproducts, to YOU eating wheat or you eating anything Dairy like Cheese, Milk, Fish, Nuts, Soda and so on! I'm...
  14. ShayBraMom
    To mu knwoledge, once the bloodwork shows positive then she is positive and has celiacs (since they not only look at some specific levels which point out damage in the small intestine which will repair itself over time if you keep her on the celiac-diet, they test for the Celiac-Gene and that one can't really be overlooked), it does happen though that bloodwork...
  15. ShayBraMom
    My best friends son who's seven is deadly allergic to even trace ammounts of peanuts!!! Needless to say that like with wheat it is very hard on the kids because no B-day cake is usally absolute peanutfree, most paretns don't even know what's in it because htey had it made some place! He has the same problem, even after living for so long with the diagnosis...
  16. ShayBraMom
    We have Silk Milk Soy "VERY Vanilla". They giot Vanilla and very Vanilla, the last one is the best and even I love it. That's all my son loves to drink. It's Gluten, Casein, egg, MSG, Wheat, Peanuts, Cholesterol and what not free. Maybe he just doesn't like the plain Vanilla, maybe you need to switch to silk soymilk VERY Vanilla, it's the one with a purple...
  17. ShayBraMom
    mmmh, my son I think has been tested for Celiac and came back negative. He's been constipated since birth, he's been on MiraLax for a while now which helped. My Babydaughter was really colicky the first 3 months, started getting constipated more and more often starting 3 month, as the colicksyptoms got better in the evening her constipation got more and more...
  18. ShayBraMom
    Well, originally I did know that something was going on with my son because of the way the nails grow, first his toes and then his naisl! But after we found out that he has seizures (absences) I thought maybe it's somehow connected to that. Then when we found out this year in April that he has this very very rare, genetic Mutation, I thought it's from that...
  19. ShayBraMom
    I know the standart stuff like sever bloading, headaches, irritability and so on! did anyone else notice stuff like splitting, flaking, cracking toenails on their children (before the diet and diagnose), also fingernails that grow wider on top then on the bottom and are thing and splitting!? I suspect that my kids are non-celiacs. My son has had constipation...
  20. ShayBraMom
    Acutally yes! I'm very new to this but I know one thing! Newer Studies separate the people with all of the Symptoms of Celiac but negative results for Biopsy and blood as NON-Celiac-Desease. It ahs all the Symptoms like Celiacs, the only difference is that in the non-Celiacs the Immunsystem does NOT attack the instine, in Celiacs it does! It's called NCGS...
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