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ShayBraMom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ShayBraMom

  1. ShayBraMom
    Well, she already had her scope, if she imprioves on teh diet you should go glutenfree! She might be not celiac but still Glutensensitive, which causess the same issues as Cleiac, though no damage to the intestine. It can however if she stays on gluten and she's sensitive to it turn into Celaic desease down the road. eitherway, specvially since her bloodtest...
  2. ShayBraMom
    I am German, living currently for the past 6 years in the state, that in Germany however they do cook other things in the same oil they cook the frenchfries which are not glutenfree, the Apple and cherrypockets for example are fried in German y (which makes them so much tasdtier I don't like the ones here in the states) but ti does however add gluten to the...
  3. ShayBraMom
    None of my two ever vomited, but their beelies do however get HUGE, and both of them ALWAYS HAVE and had their reacrtions at night, anywhere from about 2 hours tow 3-4 hours after going down! The average is about 3 hours after going down! and it continues all night long almost, my daughter will be so gassy, but she can only pass the gas when she's upright...
  4. ShayBraMom
    Well, but if hse's removed from Gluten now, any Damage she might havein her small intestine could be gone by April, why the biopsy so late? If she's off of Gluten already you guys have to do the biopsy now! I remember we did the bloodtest with my daughter, by the time the results got back and I got to talk to the Gastro it had been 2.5 weeks since I removed...
  5. ShayBraMom
    I'm osrry but also happy for you that you do have certain blacn and white proof to some extend. Your thorough post also answered my question I was going to aks myself. My son has DQ2 and my daughter has DQ2 and DQ 8! My gastro only looks for antibodies in my blood but not for the genes, so anturally I was curious, how it works with the Genes. Your explanation...
  6. ShayBraMom
    I forgot,maybe you'd like to send a qwuick email to the company as well to express interest and why you thinkit is important to carry some of the stuff. I passed all the suggestions on, they know I wrote aobut it in this Celiac-forum, maybe your support will also help top get them to make some stuff for us! Here the email! Just reffer to the customer-Request...
  7. ShayBraMom
    OMG, I just aobutlost it "got more gas then your car, think celiac" this one is golden! I"m in tears I laughed so hard, this is a very good one!!!!!!!!!!!! all of the suggestions are awesome!!!!!!!! Somebody said something aobut the green ribbons, there are so many ribbons out there, I personally don't even look anymore, but I do know that I read other...
  8. ShayBraMom
    Omg, this is awesome! tjhank you for this awww to my day here, I even told my hubby aobut it, specially the last several lines, too funny! Thank you so much for sharing this!
  9. ShayBraMom
    Oh, you mean Hirshsprung-desease, they tested my son for that too, they need a pretty good piece for that biopsie to test that! Well, is he getting regualr Milk, is hemaybe not doing too well with Milk or milkproducts? My dd reacts the same way to milk (mostly plain) like she does to Wheat, but in addition to that it makes her verry constipated, Dairy is...
  10. ShayBraMom
    I'm so sorry to hear that, I"m pretty sure it's from the Celiac desease! Muy Babydaughters teeth are all totally seethrough when they break through the gums, I hope it'll be a bit better with her second set of teeth then, allthough UI know that they are already in the gums waiting to come out in several years! I hope it'll help that we fouind out so ealry...
  11. ShayBraMom
    I've contacted a company named Awareness-Depot, they got all kinds of stuff for Breastcancer, Childabsue, you name it- but guess what, nothihng aobut Celiac desease. since aobut on in 133ericans has Celiac but only one in 5000 gets diagnosed in his life time, knowing what this desease can do ect., I do think things like Wristband are a cool thing. Yes, they...
  12. ShayBraMom
    First off all congrats to the results, I guess the only bad thing aobut is that you have to start from scratch and still got no answer or solution! Well, either way with the resuklts, if in two month on the gluten with the meds there is no improvement you should maybestill try him for a longer while on glutenfree again, if he reacts positive to it then you...
  13. ShayBraMom
    thank you so much,. Tazo Tea in particiular is listed there and that is great! My gklutenfree shoppinguide has a hundred teas or so listed but not Tazo! Tazo does not have a Contact nu ber on thrier boxes so I wrote them this morning, god know when htyew answer. Thank you so much!
  14. ShayBraMom
  15. ShayBraMom
    Apparently it can, Im pretty suire it also has to do that the gluteing possibly blocks your intake on Nutriens due to the immunereaction or even sucks it right out of you! Maybe you should try to give your body electrolytes, Magnesium /Potassium to be exact which if lacking or low in the body usually causes severe legcramps. See if drinking a small bottle...
  16. ShayBraMom
    First of all, somebody recxently had said that they buy all their riceflour which is pretty expensive in the Healthshops in the Asian Stores ! THANKYOU for that tip, I paid instead of 5.99 per lbs for Riceflour in a healthastor, only 3.99$ for 5!!!!lbs~! I was so happy I litteraly walked on clouds out of the store! Now to my questions! How is it with...
  17. ShayBraMom
    If she is still breastfed even at her age for example, your hormones can cause her having something like a "period". If not, she really HAS to be checked out, take her to the Pediatrician, you don't know hwat caused the bleeding there, a girl her age sjhould not ever bleed from that area! It could be that she has a silent infection IN there, which could if...
  18. ShayBraMom
    Well, first off all you need to let your hubby see how horribly sick your child gets, if he works at night, take pictures, record the moaning and crying, make a videotape what ever you need to document this. then the next day let him watch it, and her will need to watch every second of it! After that, present him with the list of longterm-damage that arises...
  19. ShayBraMom
    Congratas, that is awesome news! Hard worked for at that too!
  20. ShayBraMom
    I'm givnign you my favourite Link too I jsut gave somebody else, it explaines in here as well aobut Non-Celiac-Gluten-Sensitivity, I think it also mentions somewher ein there that there are poeple out that, sensitive to wheat and what not but do never have allevated levels of antibodys- that's how a lot of people of originally had only the bloodtest done...
  21. ShayBraMom
    Thats exactly why only one in 5000 people will every get diangosed in their lifetime with this desease, because the Docs still think that Celaic typically presents with wasting away due to vomiting and diarrhea! Here, this is my favourite Link. It explains so well and so easy to understand, waht Celaic is aobut and also thatthat it actually typically does...
  22. ShayBraMom
    THANK you si much guys, I"m so glad I found this forum! Really, it does help to get an unbiased opinion! I think this is how I'll do it too, I already spent 200$ for a good breadmachine I'll probably stick with the bread in handmade things and stay with the pasta. I did buy some of the Tinyiada Pasta yesterday, I've tried it before and I think at actually...
  23. ShayBraMom
    I already spammed you guys aobut homemade breads, I also told you guys aobut my first shopping experience and aksed some more question! Now another one! Does it make sense to make your own gluten-free pasta? Is that even possible I tried to find recepies for it but couldn't? We are huge noodleeaters, but switching the whole household to glutenfree noodles...
  24. ShayBraMom
    So today we went shopping for Glutenfree stuff. I had asked yesterday waht the main stuff asked for is for making your own bread. I got gluten-free Bread Mix, gluten-free Chocolate Chip Cookie Mix, gluten-free Brownie Mix, gluten-free All Purpose Baking Flour, Tapioca Flour, got a Box of Egg-REplacer (oh my how expensive 7$ for 1lb, got Glutino Honeynut Cereal...
  25. ShayBraMom
    since we switch to totally glutenfree in this house after an incident where my daughter picked up a couple of noodles my son hasd dropped adn ate them before I could diggem out of her mouth (it's been salmost a weeek and we still deal with the effects) I ordered myself a Book with glutenfree recepies and a Zo Breadmachine which is supposed to be asweome for...
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