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tommchale

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Latest Celiac Disease News & Research:

Everything posted by tommchale

  1. tommchale
    As we all well know by now, drug manufacturers are notoriously bad about labeling their products... Anyway, I was prescribed Medrol today which was filled in generic form called Methylprednisolone manufactured by Cadista Pharmaceuticals. The patient prescribing information shows two types of unidentified starch as inactive ingredients: pregelatinized starch...
  2. tommchale
    This absolutely boils down to personal risk tolerance. After getting a massive glutening first time I ate the new Rice Chex, I wrote General Mills and inquired about their use of shared facility and equipment use. Sure enough, all Chex are made on the same equipment and "cleaning procedures" are applied to protect against cross contamination. Interestingly...
  3. tommchale
    It depends on your personal sensitivity to gluten. Lot's of people don't have issues with things like shampoos and soaps. I do as a result of trace amounts of gluten in stuff like that. In my view, you are much safer removing the possibility altogether as its pretty easy to find gluten free shampoos and soaps. Thanks, Tom
  4. tommchale
    Keep the faith! Healing can be a long process. Progress can be steady, but slow as most people don't experiece dramatic changes in just a couple of weeks. Avoiding all the "hidden" glutens is key also. Also, make sure your doctor knows you have been gluten free for a few weeks prior to being tested. Absence of gluten before the tests can lead to false...
  5. tommchale
    I have had a lot of trouble over the years from cross contamination - including toothpaste. Some celiac's are more sensitive to micro-doses than others and I have also found a "build up" type effect where very small exposure levels over a period of days or so gets me very sick. Call me crazy, but it seems to be the case. Personally I don't touch anything...
  6. tommchale
    While usually showing symptoms in childhood, its not unusual to have an uptick in symptom severity later in life. I only started to get really sick when I was about 40. Docs think it was triggered by a serious viral infection I had. They think I had low grade symptoms all my life and my illness kicked Celiac into high gear. Defintely get tested but don...
  7. tommchale
    Just a heads up to those who are ultra gluten sensitive. I emailed New Grist and told them that they use the same equipment as regular beer and have cross contamination issues :-) I know this because I get sick every time I drink it! Sure enough, they confessed and gave a detailed response about their cleaning procedures and testing. Sounds great on paper...
  8. tommchale
    There is a lot of question about Cuervo Gold, so I finally got around to checking out their website. Here is the info and URL as of 4/19/2008: Q: Which Jose Cuervo products are gluten-free? A: All Jose Cuervo tequilas, Authentic Cuervo Margaritas, Margarita Minis, and Golden Margaritas are gluten-free. Open Original Shared Link Thanks, Tom
  9. tommchale
    They can't seem to answer that question with any certainty. However, I have a number of tea bag brands that are waffle pressed and it's very easy to spot. The senseo pods have a smooth, waxy finish around the seam. Something has been heated to make the seal. Paper on paper heating does not seem logical to me. It looks very much like a cotton shirt that...
  10. tommchale
    Hi Sam - I have been researching this as well with Sarah Lee (company that actually makes Senseo brand pods) and they have verified that their pod filter material is in fact gluten free. However, they seem to be pretty much stumped as far as the adhesive goes. This is not scientific, but I have reason to think the Senseo may be making me sick. As you...
  11. tommchale
    Thanks all, now that I think back, the soy theory is consistent with some other episodes I have had, I will have to experiment with that. Thank you VERY much for the ideas!
  12. tommchale
    The interesting this is I have no problem with dairy at all, so the Gluten thing is really suspicious to me with ICBINB. There are way to many companies out there that claim gluten free but give no thought to cross contamination. I buy very little packaged dry food anymore as I have run across too many examples of products that have a big "Gluten Free"...
  13. tommchale
    Hi Richard - I think you may be on to something. I have been sick all weekend and the only difference I am coming up with is a switch to ICBINB because I ran out of real butter, which I normally use. I am a very experienced gluten free dieter, it took me something like 18 months to figure out most of the details, but even now I am still finding exceptions...
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