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Amelia01

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Amelia01

  1. Amelia01
    I've been on the gluten-free diet since May 2007 and haven't even once cheated (patting myself on the back). My diagnosis was via biopsy (marsh II) and my bloods were always negative (even prior to gluten-free diet). Not believing the diagnosis I went for a second opinion in 2007 to a gastro doc associated with the celiac association. He was skeptical about...
  2. Amelia01
    After 4+ years of trying and having done every imaginable test from which only minor auto-immune issues were discovered (highish natural killer cells and suspect clotting issues) and a miscarriage (that was due to a chromosomally defective embryo) when I fell pg naturally I was given both prednisone (25mg) and clexane (similar to heparin). I took the prednisone...
  3. Amelia01
    As for starting solids of any kind, the WHO recommends nothing but breastmilk or formula prior to 6 months then start with low-allergen foods like rice cereal, banana, pear etc. Regarding gluten, I recently spoke with Dr Catassi who is undergoing a clinical trial together with Dr Fassano and the trial starts gluten at 6 months with some infants and not...
  4. Amelia01
    As for starting solids of any kind, the WHO recommends nothing by breastmilk or formula prior to 6 months then start with low-allergen foods like rice cereal, banana, pear etc. Regarding gluten, I recently spoke with Dr Catassi who is undergoing a clinical trial together with Dr Fassano and the trial starts gluten at 6 months with some infants and not...
  5. Amelia01
    Thanks for the beer tip! I will have to check those out next time I'm in the US. As for a good tasting lager --- I'm not sure if it has come to America but Spain's Estrella Damm for Celiacs is EXCELLENT! It is real beer made from malt and is approved by both the Spanish and Italian celiac societies. It has a gluten level of fewer than 6ppm. In the...
  6. Amelia01
    Hip hip hurray Angela!!!! I had a similar outcome going off gluten. 4+ years of trying with 1 miscarriage and many many many exams and various assisted reproduction techniques and after 8 months of being gluten-free got pg Elm -- it might take a bit of time, but don't despair. Keep up the hope and keep on the diet. And have fun trying amelia...
  7. Amelia01
    I recently asked the same question to the University of Chicago celiac program (did not receive a reply) and the University of Maryland. Yes, they are just now recruiting for the test program but we are not eligble (we live out of the US). Based on a Swedish study done it was suggested to us by a colleague of Dr Fassano's to start introducing a little bit...
  8. Amelia01
    Thanks so much Ken for scouting out additional restaurants in my area (and right around the corner too!). Once I found the Be Bop Cafe I didn't venture further, but both the places you've listed look sublime (ahhh wonderful salamis and exquisite cheeses are right up my alley!). abbracci a te ed a la tua moglie! Amelia ( )
  9. Amelia01
    Ken - I'm sure if you scout around you will find some internet caf
  10. Amelia01
    I have to add my experience to this thread. Up until 5 months ago I was desperately looking for the same answer. In our case (pretty much unexplained infertility, 4+ years of ttc and many assisted reproduction tecniques) it took 10 months gluten-free to fall pg (naturally!). I attribute the problems with untreated celiac disease to inflammation and...
  11. Amelia01
    Thanks for posting this. Just would like to add that some of their lipsticks contain wheat germ extract and some don't. And there is wheat in the mascara! I've just noticed that now even their gift with purchase baggies contain ingredient lists for all the products. Once again.... we really need to ready all the fine print! Amelia
  12. Amelia01
    hi I'm 20+ weeks pg and on top of being ultra-diligent with being gluten-free and avoid all possible contamination (have been gluten-free for 1 year) I also need to be extremely cautious with all the foods that are no-no's in pregnancy. I don't have the antibodies to toxoplasmosis, so am soaking all fruits and vegetables that I intend to eat raw...
  13. Amelia01
    I know we should all try to educate restaurant staff about celiac disease, but when they just have never heard of gluten or think it is dairy (and how many of us knew about it prior to diagnosis?) maybe best say severe wheat and grain allergy. It is probably easier to understand and may help even with cross-contamination risks, usually allergies are known...
  14. Amelia01
    Ciao Nancy, Ask your farmacia to procure for you the Orgran products. It is an Australian company that has distribution of their products in Italy. All of their products are gluten-free, egg-free, dairy-free, OGM free and Vegan and the ones I've tried are really good (yellow cake mix, vanilla and chocolate animal cookies come to mind). I don't recall if...
  15. Amelia01
    Many Barilla pasta sauces that are made and distributed in Italy are not only free of gluten but the company also declares (to the Italian Celiac Association) that they are free of any possible contamination. I'm not sure about soy, though, but I would gather that the company is very stringent about disclosure. Maybe let their consumer hotline number...
  16. Amelia01
    There is a definite link between untreated celiac and infertility. Unfortunately though, most doctors (and even specialized fertility clinics) believe that the correlation is only malabsorption as a cause for miscarriage. As Cherry Tart has pointed out, the entire body is affected by gluten consumption. celiac disease is an immune disorder and immune issues...
  17. Amelia01
    Thanks everyone for the replies. The few weeks that I had of morning sickeness have gone away but I still feel full and uncomfortable after eating ANYTHING! My prenatals are gluten-free but I am doing dairy, which had never really bothered me before. I don't do straight millk but start of the day with a probiotic yogurt and must admit have been consuming...
  18. Amelia01
    I'm just about 12 weeks pregnant and cannot digest a thing. My stomach (not bump) is always uncomfortably distended and full of air and that together with the heartburn and constant belching I really feel like I did when I was eating gluten (going on 1 year gluten-free). I know (well, I've heard) that pregnancy can bring about all sorts of unpleasant symptoms...
  19. Amelia01
    I quit smoking 4 years ago in order to get "healthy" ... strangely enough it is about the same time that I think the celiac disease really kicked in (although was neither tested nor diagnosed until 1 year ago). Coincidence???? Not sure. Needing to blame something, anything for the celiac disease, I chose to blame having quit smoking.
  20. Amelia01
    Interesting concept about the wine / glue effect, but need to point out that celiac disease is pretty common in Italy, so I don't believe the wine consumption has staved it off. Too bad though. If drinking wine with gluten flushed it out with no harmful effects, I probably wouldn't have it. Amelia
  21. Amelia01
    I'm not sure how to tell people what my needs are. It goes so beyond saying I can't eat flour, grains or anything containing same. But I would feel awful about saying "by the way, don't use your butter or any condiments that you stuck a bread coated knife in and forget using your gluten peremeated wooden spoons". I thought about putting together a "card...
  22. Amelia01
    All of my celiac blood tests came up negative, not even borderline. I was diagnosed with Marsh 2 degree celiac through a biopsy. My mother and father have both been tested only with a blood test (Mom negative, awaiting on Dad's results). What is the chance that they could be false negatives like mine? I suspect my Mother could have issues but her GP flatly...
  23. Amelia01
    If you have to have celiac disease and be anywhere in the world, I'd say that Italy is the best place. celiac disease is becoming more and more diagnosed in Italy (common in the gene pool?) and the government actually gives food subsidies to biopsy diagnosed celiacs. You can buy food in pharmacies (if the one you go in hasn't any ask them where the closest...
  24. Amelia01
    I had to resurrect this thread because I have just found gluten in a very odd place - in the cat litter! I called their 800 number to complain about the fact that it is marketed as "dust free" but when I pour it I am engulfed in a cloud of fine dust and when Sam comes out of his box he has dust up to his "elbows" and tracks the stuff all over! The...
  25. Amelia01
    Hi Rachel, I was in downtown Chicago over the holidays and hate to say that I had a very difficult time eating at the lunch hour with something healthy and quick. I didn't eat out much at dinner and didn't do any delivery but had more success with a full restaurant than with a "fast food" or sandwich place (trusted nothing at all at Food Life in WaterTowerPlace...
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