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tallfran

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Everything posted by tallfran

  1. tallfran

    Happy birthday and may God bless you today!

  2. tallfran
    I agree that Agri-Business and modifying wheat to add more gluten has a lot to do with our troubles. But again, in defense of the doctor, he at least knew that celiac has something to do with gluten intolerance. It was not a clinical setting and we have no idea what kind of doctor he is. And he is right, if somewhat simplified! We can't eat gluten....
  3. tallfran
    That IgA is very low. According to the numbers on the blood work I had, normal is 68-378. That doesn't mean he has celiac. It also doesn't mean he doesn't. He apparently has what is know as Selective IgA Deficiency, seen in about 3 percent of celiacs, according to Dr. Green. You won't really know about the celiac until you get his IgG-TTA levels back...
  4. tallfran
    I found it at my local Kroger's... They have a big section of gluten-free stuff.
  5. tallfran
    I'm in Savannah, GA, and get to Jacksonville on occasion, though mostly either to the airport or passing through on my way to see friends in Gaineville. I am an older female, no kids, not retired yet. Love being active, hiking, backpacking, etc. Fran
  6. tallfran
    Good for you for trying, Krickett! Most folks think (and I agree) that the distillation process removes any gluten that might be present. I think that vodka is fine; I might use caution with some of the whiskeys. I'm mostly a wine drinker myself!
  7. tallfran
    Really consider the pain meds. Even without gluten, most pain meds (narcotic) make me very sick. Fran
  8. tallfran
    I'm another tall one. I stand 5' 11 1/2 inches. I really like being tall, but finding slacks that fit and shoes. God help us, SHOES . I wear a 12 on a good day, and my hiking boots and running shoes are 13's. And my foot is so narrow I can't just switch to men's shoes. Forget about dress shoes... Fran
  9. tallfran
    You might be allergic to sesame. I was reading a book on food allergies the other day, and it was one of the more common allergies. Good luck. Fran
  10. tallfran
    Sorry, it's "How Doctors Think" by Jerome Groopman, MD . I put it in as a subtitle, but maybe it didn't show up on your computer. Fran
  11. tallfran
    I saw this book at B & N this evening, picked it up, and read as much as possible in the slightly less than 3 hours I was there. I know there is a lot of bitterness on this board about failures in diagnosis, being told "it's all in your head, etc. The introduction chapter features a woman with Celiac Disease, who was misdiagnosed for many years...
  12. tallfran
    I eat frozen meals at work all the time. I like Amy's, and some of the South Beach diet ones are gluten-free too. They aren't frozen, but some of the packaged Hormel meals are also gluten-free, like the beef stew. It isn't too bad... Fran
  13. tallfran
  14. tallfran
    I have had peripheral neuropathy for about ten years now. I'm female, 61, not diabetic, not officially celiac yet; still waiting to see the GI doc, so am not gluten-free yet. My neuropathy is burning and tingling in my legs and feet, and tingling and loss of some sensation in my upper extremities. The docter put me on Cymbalta for the neuropathy, and at...
  15. tallfran
    Thanks everyone for their replies. I will see if I can find a copy. (I looked at the website and there is not a distributor where I live). I agree that it is possible to have a full and satisfying life after being diagnosed with Celiac. It would just be so much better to have it entitled "Living Free" or some such. Without has dreadful connotations for...
  16. tallfran
    I got my results back this afternoon from my doc. They are: IGA: 242 (range 68-378) ttG IGA: 0.5 (negative <7) Iron: 100 (range 40-165) Ferritin: 43.2 (range 11-306.8) Vit B12: 712 (range 180-914) Folate: 5.7 (normal >5.2) Everything there is normal. I think the ferritin is a little low since I am close to the bottom of a very wide...
  17. tallfran
    I've read about this newsletter or magazine. Does anyone here subscribe, and if so, what do you think of it? I am having a very hard time getting past the incredibly negative title... Fran
  18. tallfran
    I'm looking for a celiac support group in or near Savannah GA. I only know of one other celiac in the area, and she has been diagnosed for a long time and is not into support groups. I am in the process of being diagnosed, and could use the help and support, if for no other reason than buying special flours in bulk and splitting the m. I live alone and don...
  19. tallfran

    ARCHIVED Stupid Doctor

    tallfran replied to ~alex~'s topic in Doctors

    My dad was Type 1 diabetes, though in his early 30's when he developed it. I suspect that he was also celiac. However. I was born about 2 years after he became diabetic. As I was growing up, he always said that he just hoped he lived long enough to see my sister (1 year older than me) and I graduate from high school. He died about 5 years ago at the age of...
  20. tallfran
    1. Read Gluten-Free Girl by Shauna James Ahern. It just was released this past week, and she makes cooking gluten-free joyous. It is available at Barnes & Noble and Amazon. I read it in the store yesterday and then went back today and bought it. She also has a website, glutenfreegirl.com (I would make this a link, but don't know how). 2. It's entirely...
  21. tallfran
    Redbridge is made and distributed by the same folks that do Budweiser. I'm sure that if you spoke to the manager of the places you usually go, they would be happy to stock it for you. I buy mine at the Walmart Supercenter, so it's not like it's hard to find! I am certainly no beer expert, but I LIKE the Redbridge, and really can't tell the difference...
  22. tallfran
    Just read this book at Barnes & Noble. It was just released this week. The author was diagnosed with celiac several years ago when she was in her 30's. She is passionate about food, and the recipes and such look scrumptious. We're talking fine cuisine here... Her (relatively new) husband is a Chef in Seattle, and is not celiac, but is now doing a lot...
  23. tallfran
    I went out with my Red Hat group tonight, and one of the other members is celiac. I've known her for a couple of years, but did not know she was celiac. I think she told me she was diagnosed in 1984, so she has dealt with it for a long time, and is really upbeat about it. I really did not intend to eat gluten-free tonight (I'm not officially diagnosed...
  24. tallfran
    My docter started me on Requip for restless leg syndrome, which she is inclined to think is causing my exhaustion. I just had my labs for Celiac drawn on Friday, and will have an appointment with the GI doc for endoscopy/colonoscopy. I have only taken 3 days of the Requip, and am on the starter pack that starts at low dose and then advances. I have had...
  25. tallfran
    Well, I think my visit with the docter went OK. She listened to me, and ordered some labs (not all the ones I wanted though). She doesn't think I have celiac based on the fact that I don't have the severe diarrhea that a lot of you have (or had). I did take my copy of Peter Green's book with me, and she agreed that he should be a reliable source. My main...
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