Cinnamon

I don't think anyone would ever say that Enterolab is a substitute for a doctor's diagnosis. The thing is that many go to the doctor and find that they are dismissed, or the doctor really doesn't know much about it, or they had a blood test which came back negative, or they are already off gluten and don't want to go back on for testing. In that case, Enterolab is something people can do on their own, not to get a diagnosis, but to get some important pieces of information.

My son was having only neurological symptoms. The doctor didn't know what it was and referred me to a neurologist, who didn't know what it was, and referred me to another specialist, who didn't know what it was. I discovered on my own that wheat seemed to be causing problems and took him off it myself. The next time he went to the regular doctor, I discussed it with him, but he never suggested testing of any kind, he just said something along the lines of, "if it seems to be bothering him, yes, keep him off it." We had no diagnosis and he didn't suggest any. But yet I wondered about some things. If he was a celiac, did he have vitamin deficiencies? Does he have the gene? The doctor didn't seem knowledgeable and I can't just go to a gastroenterologist on my own without a referral from the GP.

So then I considered doing the Enterolab test. I knew it would not provide any diagnosis. I just wanted to see if he had antibodies and I wondered about his genes. I decided to go ahead and test my daughter as well, since she has always had a "nervous stomach", though nothing really serious, seemingly. When I got the results back, it gave me several useful pieces of information.

First, it showed me my son did not have antibodies. Okay, that doesn't explain why he's reacting to gluten, but it's a piece in the puzzle. It showed me his fat malabsorption was normal. Okay, that's good to know, he probably doesn't have serious vitamin deficiencies. I saw the genetic test. He had the DQ2 celiac gene and the DQ1 gluten sensitivity gene. Okay, that's very helpful to know. He's predisposed to problems with gluten, and now I also know to watch his 2 older brothers, and myself, and my husband.

Then I got my daughter's report. I was shocked to see that she did have antibodies to both gluten and dairy. I never would have suspected the dairy. It doesn't tell me why, but it does tell me she needs to be off dairy, as well as gluten. Her malabsorption score was normal, so that was reassuring. She also has the same genes. Also good to know.

Like someone said, in a perfect world, we'd all have excellent, knowledgeable doctors who could give us an accurate diagnosis, but since that's not the case, I think Enterolab can give a few answers, at least, as long as you go into it knowing it will not diagnose anything and is not a replacement for good medical care, if you can find good medical care.

So did mine. Yet gluten clearly affects him, so he's off it. I don't know if it's an IgG reaction or just some type of intolerance, or if it's celiac and he has an IgA deficiency. But yes, there are definitely negative results from enterolab. I'm pretty sure they're on the up and up.

Oops, I didn't mean lame advertisement test. I wrote a-l-c-a-t. Didn't know it was a bad word!

I'm wondering about these tests, too. I had an anaphylactic-like reaction the last time I ate wheat, and went to a regular allergist, who didn't believe me. She tested me for all sorts of allergies, and I had tons of inhalant allergies which I did'nt know about, but no food allergies. She said the IgG tests were unreliable. So now I'm just walking around wondering if it was wheat or some other thing. I have 3 kids which I wonder about too. I keep wanting to do an elimination diet, but it's hard with kids, they are such picky eaters. Having a test done would at least give me a starting point. The tests are so expensive, though. I was looking at the Lame Advertisement test. If anyone tries any of these tests, let us know if they seemed accurate. Maybe I'll go ahead and try.

You could try taking Chlorophyll each day. Health food stores sell it, or the Internet. You can get it in chewables. liquid or capsules. It really deodorizes everything, though you might have to pop a couple more during a glutening.

There's a recipe on here called Brazilian Cheese Bread, and to me it tasted just like a big Cheez-it, but softer. I'll bet if you rolled out the dough thinly and baked it, it would come pretty close to Cheez-its. If you do a search on this site, you should be able to find the recipe.

Yes, there's Gluten-free ravioli and stuffed shells, and they are so good! Everyone at our house loves them. I get mine either at the Gluten-Free Market in Fair Lawn, NJ, or if I don't have time to drive out there, I order them online from the Gluten Free Mall. They come frozen and packed in dry ice. Yummy!!

Most health food stores around me have the Kinnikinick chocolate dipped donuts, so I've never had to order them online.

There is such a thing as an IgG allergy. The skin prick tests just test for IgE allergies, and celiac is an IgA reaction, but google IgG reactions. They are hard to diagnose as the tests are not accurate. If you do a food elimination trial that would show reactions, and then you'd know to stay away from those foods, but without an official doctor's diagnosis.

Domata flour and pizza crust mix

Grainless Baker ready made bread and donuts

Pamela's Baking Mix for waffles and pancakes

anything from Mr. Ritts

anything from Pamela's

Conte's ravioli and stuffed shells

Kinnikinick chocolate dipped donuts

Joan's gluten-free greatbakes bagels

I've had it, and it wasn't bad at all. It was kind of like getting a tooth filled. They give you a little numbing shot, which wasn't bad, just a tiny pinch. Then you really don't feel anything except a painless pressure. It's over really quick, too. It was only about 5 minutes start to finish.

What I didn't like was feeling numbness in my throat for an hour or so after it was over. My throat already felt contricted because of the nodules, and the numbness made it worse. I wouldn't try to eat anything until the numbness wears off, or only soft food.

Whoops, you didn't say whether Casey is a boy or girl and I assumed girl, since I know a girl Casey. My apologies if it's a he and not a she!

No, the scratch test doesn't hurt at all. I had 3 of my kids tested and they weren't bothered in the least, and I just had it done Friday and it's quite painless. Don't know how much it costs since I haven't got the bill yet, but I've heard it's inexpensive.

It may not show anything, since celiac is an IgA reaction and the scratch test only checks for IgE reactions .There are also IgG food reactions, which are harder to diagnose. So if she comes out negative, that doesn't mean all is well with her and gluten. If she's improved on a gluten free diet, that tells you something right there. It doesn't tell you whether it's an IgA or IgG or IgE reaction, but it does show an intolerance to gluten, at least.

It's great that you are finding this out so early in her life! You'll be able to spare her a lot of difficulties. My son was 10 and daughter 11 before we finally figured out what was wrong.

You're right, that's the heart of the Christian gospel, to believe. It's not our good deeds that save us, but believing in Christ's death to pay for our sins. That's what our religion is all about, not doing all the little things that go along with it. Thanks for helping me focus on what's important about the communion.

Lol!! That sounds like a good idea, though!

No, I'm not a Catholic, but I could probably speak to the pastor about it. Maybe I could just do the little cup of wine (actually it's grape juice), or maybe bring my own piece of bread. They just use regular white bread cut up into little squares instead of the wafer that some churches use. I just don't know if it's just as good to pop your own bread into your mouth if they haven't prayed over it as they have the wheat bread. Maybe it doesn't matter. I don't know!

Yes, I don't know what I was thinking. If one of my kids told me they were going to hurt themselves for my sake, I would be upset, no question. It's great to be able to bounce these kinds of things off others. It really helps see things more clearly.

I don't know if anyone can help me on this, as IgG reactions are poorly understood, but I trust you guys over the doctors any day, so here goes:

Last Sunday I had a terrible glutening. I decided I would take communion at my church. They only have it every 3 months, and I thought that if Christ could die on the cross for my sins, I could do this for Him. So I took the 1-inch square piece of white bread. At first I had my usual mild glutening symptoms, tingling and burning in my mouth, mild stomach pains, a mild headache. No big deal. But about 4 hours later, I suddenly started sweating, felt like I might pass out, my heart was beating wildly, had trouble breathing. I took some benadryl, and that helped my breathing. I felt weak and shaky for days afterward and the whole thing was really scary. I thought I might have a wheat allergy, so went to an allergist and had skin prick testing but it was negative for wheat. The doctor didn't seem to believe me, but she said it could be an IgG reaction rather than an IgE reaction and I go back next friday for further testing. Celiac is an IgA reaction, and many times people have negative blood tests for IgA but find they do better on a gluten free diet. Maybe it's an IgG allergic reaction for them rather than the typical celiac IgA and that's why there are so many false negatives on the blood test?

Has anyone here had a seemingly anaphylactic response to a glutening? Does anyone know anything about IgG food allergy reactions? I don't have a diagnosis of anything, I just went gluten free when my kids did and felt tons better.

Also, I just want to say to those who take the wheat communion, I felt that the Lord just showed me, DON'T DO IT.

Recipezaar has a recipe for gluten free oreos. They're great, taste just like oreos, though they were softer than real Oreos. They were time consuming to make, though you wouldn't have to make the cream filling. Open Original Shared Link

We found out the hard way that the dixie cup type of ice cream is not gluten free. Now I just buy Breyers.

I did the same with my son. He had some symptoms that weren't classic celiac symptoms, but his younger brother and sister have done extremely well on a gluten free diet without a diagnosis, but I couldn't get my 16 year old to try the diet without a diagnosis. So in we went to the doctor, and I was nervous about asking him to do a celiac blood test on a seemingly healthy teenage boy with no digestive symptoms. But I just honestly told him my experiences and just asked him to please do the blood test to ease my mind and rule it out. We have the Irish thing going on too, which I didn't mention but the doctor brought it up, and he agreed to do the blood test.

If I were you, I would just walk in there and say, "look, would you please just order the blood test to rule it out? It would really ease my mind" and if he balks, say, "well, will you please just do the test to rule it out, then I can go on from there to figure this out" and hopefully he'll listen to you.

Praying for you. Keep us updated.

I was meandering around the health food store and saw a supplement that is supposed to be good for candida and leaky gut. Supposedly it seals up the leaks in the intestine and keeps candida in check. I ask because my daughter has had a candida problem for a year now. She had scarlet fever last summer and was given some strong antibiotics to take, and hasn't been the same since. I've been giving her Candida Clear, and it works, but as soon as we stop it, the candida starts back all over again. She's taken this stuff for a year now, and I'm sure it's non toxic, but I'd like to put this thing to bed once and for all. I don't want to put her on the candida diet, since the gluten free diet is really hard for her as it is.

Also I wonder if it really does seal up a leaky gut, will it make a person with neurological symptoms have only digestive symptoms instead? That would be great! Has anyone tried it?

My 13-year-old had something similar several months ago, and it was quite scary. She was dizzy, brain fogged, seeing flashing lights whenever she stood up, felt sick, etc. I took her to the doctor and her blood pressure was 70 over something. They were sure she was dehydrated, and gave us the same advice that you were given, gatorade,etc. It did take several days to go away, but it did go away. I still buy gatorade and have to continually ask her what she's had to drink, how much, etc. She feels much better, but it took longer than I thought. I guess if you're severely dehydrated, it takes time to replenish, more than just a day or two or three. Hope you feel better soon! But if you don't, call the doctor back.

We go there and have had no problems with it. Don't eat the gravy, it has wheat in it. The chicken and mashed potatoes are gluten-free, though there's always the risk of CC anywhere you go. We've been fine so far.

Pizza "lunchables" - when I found a pizza crust the kids liked, I made a bunch of small ones and put them in the freezer. Then in the morning, I put a couple crusts in a baggie, and spooned some pizza sauce in a little container, and put some cheese in another container. My daughter had this almost every day last year.

Kraft mac 'n cheese - Tinkyada macaroni, with cheese sauce made from the sauce envelope from Kraft mac n cheese.

Fried rice - whenever I made rice for dinner, I made extra for the next day. In the morning, I melted butter in a pan, added the rice with leftover vegetables, salt, pepper, garlic and soy sauce. It only took about 5 minutes to make.

Tortilla chips with container of salsa, and cashews or almonds in a baggie.

Van's blueberry waffle with a container of peanut butter to spread onto it.