Rpm999
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Latest Celiac Disease News & Research:
Everything posted by Rpm999
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wow i'm pissed off beyond belief, the place calls me and first says it isn't positive, then say they never tested western blot when they said they did, THEN says it isn't positive or negative...what a joke they didn't even freaking take me weight or do a physical exam, i knew it wasn't work it when i saw it was a walk-in....they say they put you on 3 years...
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thank you so much, sounds perfect to me...hey, i want to send you a message cause i had a few little things i wanted to ask about something but your box is full...i just don't want to plague this thread with all my little things when there's other people needing to ask crucial things too
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ah thank you that helps a lot...i was going to send you a message last night but it says your inbox is full, so i'll send it when there's a little room ....but is there a specific blood test/panel i need to ask for to have the genes tested? i want so be sure with that, i know there's enterolab but when i go back to this doctor i'll just have him do any...
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i'll have to find out...but even if it came up, it could just be because of everything else going on, right? isn't the only way to find out if it's genetic through something on enterolab? i assume it's attacking my body and bothering me, but i want to know if it's the genetic disease that i'm now stuck with, which like i said would shock me...but do you have...
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and what's the way to find out if you definately have celiac perminately by genetics or whatever? i'd be shocked if i did since i had no issues before, i had some blood test and it just came up slightly abnormal...everything bothers me which would make sense with what my immunes gone through
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guess i don't have to worry since they came positive but yeah, silly mistakes people make can screw it all up huh?
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i think i have most of this figured out...i believe i had lyme for a while, and that bad attack i had weakened my system severely and allowed lyme to sink in...before i had that attack, i had mini ones which i should have went to a GI for because it was throat swallowing based which i can't see being complicated, and me being careless led up to a big one...
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horray! it's crazy because i don't remember any bite, and never have pulled a tick out in my life...so almost every person with lyme has heavy metals i hear? how does that work, do infections have some sort of strange chemistry with them? glad lyme came up because it seems like everyone with lyme has other issues cause of it so i'm sure treating/finding out...
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no not the doctor, i mean the test, cause it isn't the big fancy igenex one
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it's definite if it was positive right? must be something strong for it to, but wow i knew i wasn't going crazy with my 30 million symptoms i guess there
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holy poop, lyme came back positive....like i said, i just know the test is a western blot one but it wasn't like it was a false negative or anything so i guess i definately have lyme, or something similiar
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ARCHIVED Anybody Ever Have This Symptom?
Rpm999 replied to Rpm999's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
i hear the dye can really effect you if you already have thyroid problems, so it makes me wonder if that could be why he said not to as well...i'll definately never get a scan with that dye after what it's done lol but it's still scary -
ARCHIVED Anybody Ever Have This Symptom?
Rpm999 replied to Rpm999's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
the worst month how? with dealing with it? not physical problems, right? i had it lucky, before i became real sick, people used to wish they were like me naturally, i have the spirit where nothing phases me, very layed back, very open...somebody could take something away from me perminately and i'd be like hey, that's why there's other things and i always... -
ARCHIVED Anybody Ever Have This Symptom?
Rpm999 replied to Rpm999's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
oh i know, i'm just wondering because i've had such a bad time with doctors so i need to be my own doctor and find out these little loops and things i should have tested...one doctor said vitamin deficiencies don't exist i know i have celiac for whatever reason, but i've had other things happen so i'm trying to get it straight...time is precious and i wouldn... -
ARCHIVED Anybody Ever Have This Symptom?
Rpm999 replied to Rpm999's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
anybody know? i really want to know this because i know it can all be complicated and i feel so sick that i don't want to make any mistakes one more bad reaction and i'll explode...i'm thinking of getting a thyroid scan, cause i'm wondering some acid reflux like attack i had was actually my thyroid, because it really interfered with my breathing, put me... -
i'm going to see an allergist/immunologist soons for various issues and have a few important questions 1) enterolab isn't the only way of finding out food allergies/intolerances, is it? if it is, will allergists have it? what's the real method here? and is there certain tests for allergies then certan tests for intolerances? 2) how is the way of finding...
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ARCHIVED Anybody Ever Have This Symptom?
Rpm999 replied to Rpm999's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
well got some thyroid things tested, but question, is it i hear with hashis you can hang swings, but is it possible to be hyper and hypo at the same times? i swear, it's so strange, i'm wide awake and tired at the same time, i get a lot of extremes at the same exact time -
well i went today, wasn't the best experience with the guy, but he tested for lyme...all he said was western blot, didn't specify, so i hope it was a good test...and free t3 & free t4, anybody know which specific thyroid things that'll show? anyways, he gave factive for a week, just to see how things are, anybody know/heard anything about it? i'm nervous...
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i give you and many others on here so much credit, i would have never guessed how hard sicknesses like these can be, it hits you like a bomb...i've gotten so much help on here, let's just hope this doctor is what people say because so many doctors just can't comprehend basic things, and when you feel your body getting worst and rotting away, you need the...
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ahh thank you, i'll ask about that...but before i go, i was wondering, is it possible if you have lyme or anything similiar, to have problems detoxing? just with how things have been, and still being sick from the dye, i'm wondering if my system is just not getting rid of what it needs to and making me nothing but worst
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ARCHIVED Anybody Ever Have This Symptom?
Rpm999 replied to Rpm999's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
yet again, thanks for everyones help -
i thought it was a good idea to right all my symptoms down since my memory is so shot, and wow, i'm going to have like 2 pages to show this guy
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ah thanks, sounds good...these neuro symptoms are just so complex and strange, i want to make i get things tested that need to, it's horrible just having the third person/out of body feeling and problems with your senses
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yeah i've been needing a bowel test for a while i swear everyday they change
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can BO cause neuro problems? i've been having strange bowel movements, at times they're green, at times mucusy, my bowels are always strange....sometimes there's even little pollup/snot looking pieces seperate from the bowels, sometimes some just strange weird things come out....could this cause any of that?