Rpm999
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Latest Celiac Disease News & Research:
Everything posted by Rpm999
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well i called the woman and she said she doesn't know, and i plan to go wednesday...she said they have/do various tests, so i should be fine right? they have specific testing in the whole place and like i said, he's had it many times so i should be fine...i hear he listens and tests for a lot, so what else do you think i should get tested for carla? because...
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ARCHIVED Anybody Ever Have This Symptom?
Rpm999 replied to Rpm999's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
anybody know? UGH it's just been driving me insane, this constant 24/7 appetite and nausea/empty feeling is going insane on me, eating does nothing for it, and since i'm so sick to begin with, eating bothers me so i feel stuck between a rock and a hard place...i've been sick for 11 months and only the past month, when i had that dye around, have i had that... -
ARCHIVED Can We Detox From Gluten Using Dpp-iv ?
Rpm999 replied to marciab's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
i have no clue about the detox thing, but people say DPP-IV is recommended to them by knowledgeable doctors since it's supposed to help digest gluten, but not to be able to eat it, in case of small traces/CC...it also helps digest casein but i never hear too much talk though, but never heard any bad experience, probably not too well known -
ARCHIVED Ketchup Gluten Free?
Rpm999 replied to igd's topic in Gluten-Free Foods, Products, Shopping & Medications
is there a link to that list? curious to see all the sauces -
ARCHIVED Anybody Ever Have This Symptom?
Rpm999 replied to Rpm999's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
can thyroid also cause sleep and appetite disturbances/swings? i've noticed since all these things started acting up (mostly when i had a dye injection, which i hear affects the thyroid) i've had the worst of both worlds, i can be extremely tired and extremely wide awake at the same time it's draining...since all that's acted up i've been so nauseous too -
ARCHIVED Anybody Ever Have This Symptom?
Rpm999 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
i have no clue if it's because of celiac or not, but i feel like i have the chills deep down in my nerves, but it feels like a weak, sickly type of chill, yet i feel extremely sensitive to heat and have both at the same time, i can be taking a hot shower or have the heat blowing on me, yet i still have that deep shivering, but i can barely even tolerate the... -
i'll call again, what should i ask if they have? i just want to make sure it's the most accurate, but hey who doesn't
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ugh my god, i called and he doesn't use igenex anymore....what a joke already
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the town that he's in is basically just forest so it doesn't surprise me he got lyme a few times, rhode island is such a big state for it, surprising they didn't have anything here until he came around
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ah i should have asked that, she said they had a few different tests so i'd assume so, especially since he had it
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been a while, but supposedly that doctor i called contracted lyme a few times himself, and he's a normal doctor, just lyme friendly....i called and they have all the specialized tests, western blot and all that, which i'm happy about cause it makes it easier for everyone and supposedly he's real nice...people suffer so much but all they need is a doctor that...
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yeah but it isn't like i live on my own or have a job at the moment, would that even be possible?
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supposedly it's California only though, i don't think there's something similar here
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lol i'll look it up but i honestly don't think there's anything here in rhode island...maybe somebody will know in mass there's mass health which EVERYBODY gets, but of course i no longer live there
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yeah the reason i say it is because there's other things i'm thought to have, possibly lyme, and some other things occurring aside from celiac...it's all a big cycle with any of those things i just really don't have a clue why insurance is so how to get, my dad has a decent job but my mom doesn't due to sickness and because my dad makes slightly over...
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is it possible to get disability at 17? i've been extremely sick for so long, and haven't been able to get any insurance whatsoever (tried them all), and i need to see specialists and everything...i'm just seeing my body rot away while everybody is hungry for money and going around in circles with pathetic doctors...i mean, i haven't been able to have a job...
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well my first question is, i always had these attacks that were swallowing based...i would be eating and it would just be the strangest thing, it would affect my breathing, feel like there were air pockets/choking type feelings, throw me into panic, i would feel like i had to throw it up but that forcing would make it worst...i remember being in the bathroom...
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sounds good, thanks....yeah hopefully i find out what, but i KNOW whatever may be wrong is causing me to be extremely sensitive....before i was sick, nothing bothered me, i actually overcame allergies i had as a child, then when i started to get real sick it became like EVERYTHING makes me act up....i was just curious about how come these reactions haven...
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great, let's hope so...if i had lyme, or anything with similiar symptoms, would it be surprising that i feel like that catscan dye i had 4 weeks ago amplified my symptoms? since i had that, i feel even more weak, dizzy, strange and it feels like it had an effect on my nerves, odd cold and hot feelings...before i had that dye, i'd sleep like 13 hours....now...
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yeah, supposedly the place is always packed which is good...i remember from when i had severe athsma as a child, if a place is crowded you know it's good...all the bad doctors i've had, the places were practically empty, and they weren't even low end...makes you wonder if they're even real doctors hahaha...but yeah, if he has had lyme, i'm sure he's the best...
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don't some walk-in's have specialists? i think there's different types, but people say he's great and "treating lyme aggressively"...supposedly he started off as a normal doctor, but contracted lyme
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there's one near me i hear...but supposedly it's at this walk-in, is that normal? because specialists usually have their own buildings, but i really have no clue about a LLMD and how that works
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i'll just have to make sure i compose a list of all my symptoms, thoughts, concerns...it's just horrible that i'm 17 and am this sick, i feel about 100 but are LLMD's going to test for all those things, even if i don't have lyme? i'm going to flat out say that i've just been sick for a long time with tons of symptoms and everything, but do they test...
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ARCHIVED Seasonings & Spices
Rpm999 replied to Rpm999's topic in Gluten-Free Foods, Products, Shopping & Medications
no no, i know all that, i'm just curious to HOW a spice would even have gluten? are certain spices made through a huge process, or something? i'm not asking for products or anything, just wondering how that works -
ARCHIVED Seasonings & Spices
Rpm999 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
we all know there's millions of them, but what do you need to look out with them? some people say too, but i don't get exactly what could be a risk...any certain ingredient that's a no-go?