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texasmama

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Everything posted by texasmama

  1. texasmama
    Thank you all again for the support and feedback. Lauren's sleep is so very disturbed that I really believe that something else is going on with her. It is not getting any better, either - if anything, it is getting worse. Except for our 24 hours experiment back on gluten, she is absolutely gluten free. I watch everything she eats like a hawk and have...
  2. texasmama
    AMQmom, Worriedtodeath and gfgypsyqueen - thank you for sharing your stories. It helps me to make a better decision for my daughter. Ursa Major - you make very good points and I appreciate your feedback. Lauren eats only incidental soy (some soybean oil and soy lecithin) but I can consider getting rid of that, as well. It also helps me make a better...
  3. texasmama
    My 2 1/2 year old daughter had a positive IgA and Ttg gluten panel with Enterolab and a malabsorption (fecal fat) score in the severe range. She has been gluten free for three months. Many of her issues have resolved but she still has very disturbed sleep at night, waking 2-8 times per night. She has been dairy free her entire life. She saw a pediatric...
  4. texasmama
    I have four kids, ages 12, 7, 5, and 2. The three youngest and I are gluten free so our home is gluten-free. I am struggling, too, with keeping up with the cooking. Everything is made from scratch pretty much. I cook in bulk (homemade chicken nuggets with gluten-free flour) and we eat them for several days. Boiled eggs, nuts, fruits and cooked veggies...
  5. texasmama
    I second testing for B12. You can be in the low normal range and still have some nasty symptoms. It happened to me. I am on B12 weekly self injections and it helps so much.
  6. texasmama
    We did the enterolab testing - see my siggie for results. We also have had good results on the gluten-free diet. The most marked improvements have been with my 28month old. I needed the concrete information provided by enterolab in order to wrap my brain around this and take us all gluten-free. I'm glad I got the testing and I'm glad we are gluten-free...
  7. texasmama
    He was already off of dairy and I took him off soy, corn and eggs on Saturday. I am treating the rash with his prescription ointment and it is looking much better. Once we clear it, I will trial one food at a time by reintroducing them. My experience has been that the eczema shows up within 24 hours or so of an exposure. I figured this out with dairy...
  8. texasmama
    I have been udsing a prescription ointment on the rash and it is looking better. The issue is finding the trigger so we can avoid it coming back. I will work on healing it up while doing the dietary chanmges. Thank you for all the advice and help.
  9. texasmama
    Thanks for the feedback. I will look into soaps at school. I have decided to remove eggs, corn and soy and see what happens. He is in agreement, as he wants to resolve the rash. We will only eat the plain Stax chips, as those are made on dedicated lines. I will keep his diet as whole foods as possible for a week or two and see if it makes a difference...
  10. texasmama
    He takes benadryl at times for the rash and I will check it. Otherwise, he is not on any meds. His vitamins are gluten-free. He rarely uses play doh and the other things. We have no pets. Our home is gluten-free and I think it is almost impossible for anyone to have snuck him a treat. He is very aware of gluten being an issue and refuses food given...
  11. texasmama
    Not sure why my pictures aren't showing up. Maybe a mod can help me....
  12. texasmama
    My son has been stricly gluten-free since 1-4-08. He has had some degree of eczema most of his life. A week after going gluten-free, it cleared almost totally and then a few days later came back worse than ever. I don't think it is dh - it doesn't look like the pics and has no fluid filled blisters. He is dairy free, as well, and has been for years. ...
  13. texasmama
    Thank you for the feedback. Our home is gluten-free and we have given up eating out so the chance of cc is really low. I have replaced cc cookware and such. He is only moisturized with plain coconut oil - no soaps or lotions. Maybe it will just take him longer to heal up. I believe I will get rid of all soy, too, though it is incidental for the most...
  14. texasmama
    My five year old son has been gluten-free since 1-4-08. He has had eczema most of his life. He has been dairy free for two years. We eat very little soy. Now he is off gluten. About a week after going gluten free, his eczema was miraculously almost gone. Then a few days later it was back as bad as it has ever been. I am puzzled. Is this detoxing?...
  15. texasmama
    The only person I trust to cook for my kids is my dad, who is a long term gluten-free celiac himself. His whole house is gluten-free. It is nice knowing he knows what is safe for them and won't make any mistakes. I get panicky about restaurants, too. We are new at this - about 6 weeks into it - so some of this may be just me getting comfortable with what...
  16. texasmama
    The gene testing is actually not as valuable as the gluten sensitivity testing, IMO. We had the full panel done on 5 out of 6 of our immediate family members because I wanted to know for sure. This is not an easy lifestyle change to make and I was not sure I could keep it up for myself when I wasn't certain I had a problem with gluten. It turns out that...
  17. texasmama
    Five of us have had this: Gluten Sensitivity Stool and Gene Panel Complete ($369) Gluten sensitivity stool test, tissue transglutaminase stool test (test for the autoimmune reaction caused by gluten sensitivity), intestinal malabsorption test, gluten sensitivity gene test, and for a limited time, free milk sensitivity stool test (Best Test Panel for...
  18. texasmama
    I often use humor as a coping tool so here is my original "Ode to Gluten". Not very good poetry but maybe it will give someone a chuckle. Ode to Gluten Gluten, oh gluten, once you were my friend. But now those days are drawing to an end. For gluten, my gluten, you were killing me, Causing much damage with villous atrophy. Gluten, dear...
  19. texasmama
    I don't have diabetes. In fact, my blood sugar is super duper. I think that the peripheral neuropathy is either connected to the B12 deficiency (though that should be resolved with weekly injections) or the celiac. I actually take coQ10 to prevent my migraines, though it hasn't helped any lately. They are worse, too. What a strange puzzle this is! By...
  20. texasmama
    I have been gluten-free for about a month now with no slip ups that I am aware of. I am very, very careful. But my symptoms, particularly the peripheral neuropathy, have gotten worse and not better. Is this common? I know that both of my boys seemed to have a detoxing period of about a week when coming off gluten. Their behavior was horrible. But it...
  21. texasmama
    You might google polycystic ovarian syndrome to see if that fits for you. I had it for years but having my first baby cured me of it and no problems in that area since.
  22. texasmama
    About 9 months ago, I had negative blood work for the celiac panel. Never had a biopsy, just a colonoscopy for different issues. My Enterolab results came back with two celiac genes, gluten sensitivity and a moderate fecal fat score absorption problem. That was my experience.
  23. texasmama
    Thank you for this feedback. I will check out the site. I am avoiding soy and canola oil but do eat the other foods. I use some mixes but am preparing lots from scratch.
  24. texasmama
    My experience has been this: I had tingling in my hands and numbness in my feet, horrible weakness and exhaustion, depression and lost a third of my hair. My B12 was in the very low normal range. Everything else tested out fine, including thyroid. My doc put me on B12 injections and after a few weeks, I was 90% improved. This was in October, 2007. ...
  25. texasmama
    I was off gluten for about two weeks before the test. Hubby is gluten lite, meaning he is gluten-free at home because I only cook gluten-free due to the kids and he eats gluten out. That is interesting about the IgA deficiency. I was very surprised that our scores were so high on the malabsorption. Thank you for your reply.
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