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Gwen B

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Gwen B

  1. Don't let them get away with it. Go back or at least call the manager and tell him what happened. It's only by educating people that things will change. There are a lot of gluten free folks in the U.S. and we should have some marketing power over the food industry!
  2. Sounds good. I used 1/2 Bob's Red Mills all purpose flour to palm oil but didn't chill it beforehand. I used the food mixer and did not use egg to bind as I have tried with more success previously( but with ghee- not sure I should eat it though). Is this where I went wrong? Many thanks. Gwen
  3. I have been using Spectrum shortening as a substitute for margerine on my gluten, dairy, soy free diet as there do not appear to be any butter alternatives here in the U.S. I tried baking pastry but it didn't work so well as I just used a gluten-free flour mix (Bob's), and shortening as I would have done in the days before I knew better. It was so wet...
  4. I got accidentally glutenned one time and thought I'd make myself some comforting pancake mix, not pamelas but Bob's Red Mills. My stomach pain/gas was greatly worsened and did not know why that would be but there after I avoided mixes for a while with Tapioca in and was fine. I can now tolerate it in breads and flours except when I have been glutened. Seems...
  5. Yes barley is definately off limits but as far as I know (ha, ha) scotch whiskey is supposedly ok like other grain alcohols because of the distillation process. There may be some possibility of grain being added back to maintain the colour in blended whiskeys but aged blends ie or single malts were supposed to be safe. Anybody know anything different?...
  6. I agree. Some products seem ok but just don't work out for you. My mother can tolerate Rice Dream milk, I can't. She reacts to the bread my grandmother gets on prescription. I'm not going to try it. I buy gluten free, wheat free stuff as far as I know!
  7. It was scotch whiskey, single malt. I assumed that all distilled spirits were safe but use a single malt just to be safe after reading a couple of threads about slight possibility of grain being added back to the spirit in some blended scotch. I'm fine with gin or vodka but not so sure about the whiskey I don't really like sodas much except ginger...
  8. I've noticed that many sodas have 'natural flavors' in the list of ingredients. Are there any to avoid ? I don't drink many sodas unless they go in a cocktail but have wondered about ingredients. Just got glutened last night and have little clue how
  9. I totally agree. When will the marketing execs realise that 1% of the population is a sizeable market segment, who are not buying these products and therefore the food companies are loosing money?
  10. Like the quote. Totally agree with all thats been said on this thread. Things do get better honest gfgirl. I've been pretty strict since January and am now feeling about 75-90% better. I've had few bad days and only occasional cc incidents which seem to take less time now to heal afterwards. I still can't tolerate dairy, soy, tapioca but carraggeenan...
  11. Trader Joes lists the rice milk on their "No Gluten ingredients used" list on their website but I haven't tried it yet, so don't know if it contains soy lecethin.
  12. Have been using the Wholefoods own 365 brand and am fine even though it does have carrageenan in it. Not sure if I'm sensitive to it anymore. I have slept much better anyway. My mother is using Rice Dream in the UK (also celiac and not healing as fast as I have) and although they don't list it as gluten-free but actually declare may contain traces of barley...
  13. Thanks for such a swift reply. I will switch milks. I can't beleive they're allowed to say gluten-free and not mention the barley enzymes on the ingredient. That's just not fair. No wonder I have been lying awake feeling queazy for the last week or so. They only change I made was to Rice dream instead of almond milk/hempmilk. I avoided Pacific foods because...
  14. Rice Dream rice milk used to use barley enzymes in the processing. It is now labelled as gluten-free but is it really? Just had a bad reaction to something and wondered if it was that or the chocolate I had last night - it said may contain milk and soy traces but I thought that I'd be ok. Bit cross because I've been sooo much better for the last few months...
  15. Yes. I accidentally bought Mirin (a sweet rice vinegar and often used in dressing the seaweed and many other dishes) and when I looked again most brands of Mirin contained wheat.
  16. Thanks. I'll put it on my shopping list.
  17. Thanks, I'm going to get some of those today. I know what you know about the vit craving. I've been drinking green smoothies most days, I use Kale often but it while it has improved my digestion of raw foods, I'm still fatigued and fogged The B's are they subligual? Does that mean they come in lactose? Not sure about vit D as it can build up in your...
  18. THANKS everyone, this is really usefeul. I must have forgotten to follow my own thread! Sorry I didn't get back sooner, been a bit wiped out lately because of some wierd flu or else I've found something else to make me ill! I did try ghee last week and it tastes fanatastic on toast, vegetables, 'butter' chicken, curry. Used it to make wonderful chocolate...
  19. It is really frustrating all this detective work, but I just hope that sticking with the diet will get me better in just a little while longer! Bobs hot cereal- had that a few times without any affect but had the pancake mix one morning after being mysteriously glutened the day before and it made me worse, terrible pain and stomach cramps. I thought...
  20. sorry to hear you're not feeling better on this diet. As for the bloating, have you given up dairy and soy yet. It took me a few months to figure that out but it has fixed that problem, although I also am now avoiding Tapioca in gluten-free foods like bread (and most snacky type stuff) and I'm not sure how digestible Carigeenan (in some rice/almond/hemp milks...
  21. Does anyone know of a dairy free, soy free, gluten-free margerine in the States? I can't find any that are soy free and most also use hydrgenated oils which I want to avoid. The UK sells olive oil margerine, is there one here in the US?
  22. I just checked to see if the articles are still there. They are under the Celiac Disease-summary/overview.
  23. Sorry Tim, didn't check the titles properly, got glutened a couple of days ago and am not past the headache/brain fog yet! : 'Celiac Disease-Gluten sensitivity: What's the difference? By Ron Hoggan and and the same subject is discussed in 'Early Diagnosis of Gluten Sensitivity: Before the Villi are Gone' by Kenneth Fine I mixed up the titles and...
  24. There is an aticle on the main Celiac.com site entitled celiac vs. gluten intolerance - What's the difference? which goes into detail. The crux of the matter as you say is that the cure is the same. I think that if you have gluten intolerance you may still have digestive issues but the damage to the intestinal villi is not (yet) so bad to be declared celiac...
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