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susieg-1

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Everything posted by susieg-1

  1. susieg-1
    Having been in the emergency room no less than 15 times in 30 yrs with vomiting so severe that i was treated with compazine suppositories, morphine, and fluids and released without one single Dr testing me for celiacs. This is a sad commentary on the medical profession. And to top it off I diagnosed myself after much research because i couldn't stand the...
  2. susieg-1
    Thank you soooo much for taking the time to research this. I got on the forum to find a safe ham to buy for Easter dinner and you have been great help!! Thanks again!!! Ham will be a good prelude to the gluten-free cheesecake that I baked yesterday! Now if I can only find a really good dinner roll recipe.
  3. susieg-1
    dropped out in 10th grade and have suffered with this disease undiagnosed and untreated for 30 yrs. the anxiety, depression caused me to become a heavy drug user for years and the combined effects have been physically and emotionally devestating. i now have a bachelor degree and want you to know that you have many many years to live with your decision to...
  4. susieg-1
    i also have problems with DH rash. remember that stamps and envelope glue are no nos. I also have new dishwasher safe potholders if yours are cloth from your pre-celiac era they could be the culprit. I also have a gluten eating family and disinfect remote controls and telephone handsets regularly. the rash if it is DH could take 6 mos to a yr to dissapear...
  5. susieg-1
    effects of celiac on body are due to nutitional deficiencies I beleive. I suffer great muscle fatige, bone and joint pain to the extent of barely being able to walk. If glutened accidently, these are my symptoms when most complain of stomach ailments. I finally self-diagnosed celiacs after drinking 1/2 beer caused severe reaction in muscle bone and joint...
  6. susieg-1
    I think aluminum. I take off plastic top and remove paper label then wash and grease and dust with gluten-free flour before filling. gluten-free french bread I brush with egg wash before baking and with all bread I brush crust with melted butter before removing from pan. I got the idea for coffee cans because I used to use them for baking sweet bread like...
  7. susieg-1
  8. susieg-1
    hang in there kid time will help heal also epsom salt baths, jason's skin andbath products sold at wegmans are great for your sensitive skin. buy new toaster, one new fry pan with spatula, new dishwasher safe pot holder and label everyting gluten-free in kitchen with colored stickers, 8 months gluten-free and still get occasional symptoms
  9. susieg-1
    Short reply, I also find removing all foods with artificial colors, additives, preservatives, etc.... seem to help. mostly pain free after 6 mo's on gluten-free diet .
  10. susieg-1

    ARCHIVED Idiot!

    susieg-1 replied to L.A.'s topic in Coping with Celiac Disease

    I like the suggestion to go at quiet time and speak with staff. I have gone as far as telling waitress that if my instructions for food prep are not followed, I immediately experience projectile vomiting!!! This seems to keep staff on their toes!!! LOL
  11. susieg-1

    ARCHIVED Idiot!

    susieg-1 replied to L.A.'s topic in Coping with Celiac Disease

  12. susieg-1
    I have yet to find bagels that are gluten-free and taste good. It seems like too much trouble to bake my own so I put cream cheese on toasted bread crust instead. My not so sensitive sister brought me bagels from Chicago (not Gluten Free!!) when she visited NY over the holidays. I absolutly love bagels and could have screamed when I not only could not eat...
  13. susieg-1
    Can't wait to try these, really miss cheese crax. Before I knew I was celiac I used to eat cheezits to settle upset stomach. Little did I know that I was only adding to the problem!
  14. susieg-1
    Have been gluten-free for only 6months. I find that nausea and bowel trouble are minimized by fasting for a day after being "glutened" and I naver eat out " have been become quite the gourmet cook as a result lol "as I am very sensitive and suffer with muscle fatigue, bone and joint pain and DH all of which I find to be more debilitating than associated stomach...
  15. susieg-1
    I add small amount of nut meal to all of my gluten-free baked goods also cream cheese or sour cream to add moiture hope this helps
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