Scott Adams
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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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It's good to hear that you've figured out your issue, however, you are in a celiac disease forum, and not a lactose or casein intolerance forum, although that topic is also discussed here often, but in relation to celiac disease and gluten sensitivity, which, I believe that you don't have...is that correct? Basically the solution that you found for yourself... -
I've never heard of an association between the type of nerve pain you describe, and celiac disease, but we've run many articles on the connection between celiac disease and enamel defects, which can be viewed below. Of course, it's possible that it was somehow related, but I've just not seen it described in any medical journals/studies. https://www.celiac...
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I would go through this article and see if some of the things mentioned might help. Above all, be sure she's 100% gluten-free. An endoscopy really can't tell you that for sure, and the fact that she still has high antibody levels tells me she's probably getting hidden gluten in her diet. Does she eat restaurant foods? They are a primary source of contamination...
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Celiac.com 09/07/2021 - Updated 09/08/2021: This article was updated to reflect that Wendy's may still cook the new fries in shared vats, which means that they would not be gluten-free. That's right, French fry fans, popular hamburger... -
As long as it's gluten-free, adding collagen should not be any issue, nor would B vitamins.
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We've updated the article to reflect that they are still using the same vats to cook the fries, so they are not gluten-free. We believe that the original source updated their article, without noting it, and the original version did indicate they were rolling out new vats as well. In any case, we've made the corrections accordingly.
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I'm sorry to hear about the doctor not ordering the DGP test, which is considered more accurate in children. Perhaps you can find a doctor who will order it for you via a phone/video appointment, which is more common now due to the pandemic? You also probably know that if you have celiac disease that your children have an ~44% chance of also having it...
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It may be a little late, but this article may be helpful:
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I had Covid 19.. did nothing much
Scott Adams replied to fllstuart77's topic in Related Issues & Disorders
Thanks for sharing this. Of course your experience with covid-19 may not carry over to other celiacs who get it, which is why it's best to get vaccinated. Likewise, the CDC recommends that you get vaccinated even if you've already had it, due to the different variants out there, and because you may have gotten a very tiny amount of initial virus, thus you... -
Thanks for the follow up, and the most critical thing with his recovery is that his diet stay 100% gluten-free. As you've probably learned, this is harder than it seems, and there are many sources of hidden gluten, including in medications, cross-contamination (especially in restaurants), etc. That said, recovery can take 1-2 years depending on how much...
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It's definitely hard to tell for sure, but the things you listed should be gluten-free, so perhaps you have an additional food intolerance, perhaps to dairy/casein, which is pretty common for celiacs, or to corn? Have you tried keeping a food diary to see if there is a pattern?
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@nb888 thank you for the update! Others will find this helpful as well. I know that according to research ~9% of those with celiac disease also cannot tolerate oats (avenin) protein, even if they are gluten-free oats.
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This article is older, but still accurate: "IgA anti-gliadin antibodies are less sensitive but are more specific. In clinical trials, the IgA antibodies have a specificity of 97% but the sensitivity is only 71%. That means that, if a patient is IgA positive, there is a 97% probability that they have celiac disease. Conversely, if the patient is IgA negative...
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Hi @Carolyann, welcome to the forum. This topic is rather old, so you may not get a reply from those who've posted here. It sounds like you've found answers for your issues when running, have you been able to resume your training? Is your diet grain-free? It sounds pretty close to a paleo diet.
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DH reaction to rice or rice flour?
Scott Adams replied to Maureen Haley's topic in Dermatitis Herpetiformis
Grains can be cross-contaminated when shipping them in box cars, or at the mill when they are ground into flour. Perhaps you should look for a rice flour that is labelled "gluten-free"? Normally it would be gluten-free, but just to be sure this is what I would do. -
If moving was the only change it certainly seems like it could be contamination, or...and hopefully not, that she's cheating on the diet (peer pressure can cause this as I've experienced with my own daughter). Shared things like toasters, ovens, etc. can be a source of contamination. This article may be helpful:
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Are you trying to imply that casein intolerance could be the underlying cause of celiac disease...or gluten sensitivity, and that quitting milk might allow either to eat gluten again? I hope not, because that is just incorrect. Actually there is far more evidence that the opposite is true, that celiac disease can cause, sometimes temporarily, casein intolerance...
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Celiac.com 09/08/2021 - Even with a clear declaration by the FDA that all distilled alcohol is gluten-free, we still get a lot of questions about alcohol, and cocktails. Specifically, get a lot of questions about gluten-free cocktails... -
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Welcome to the forum! I agree and now, before trying a gluten-free diet, would be a great time to get a celiac disease blood screening. Depending on your results they may also want to do a endoscopy to confirm celiac disease. If for some reason you test negative for it, then you may still have non-celiac gluten sensitivity, and could try out a gluten...
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I took a look at their website and I don’t see any indication that there is wheat in this product, not even an allergy warning for wheat like you already mentioned…is it possible that you may be sensitive to one of the other ingredients? https://www.brachs.com/products/halloween/candy-corn.html
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Based on the ingredients it certainly looks like it is gluten free, but certainly cross-contamination could be an issue. It seems strange that they would remove the wheat warning from their packaging if they still manufactured them in the same facilities as wheat products.
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The Gluten Intolerance Group is based in Seattle, WA, perhaps you could contact them to see if they know of anything in your area? https://gluten.org/
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How long to heal?
Scott Adams replied to Makky's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There is a way to stay gluten-free, and/or take AN-PEP enzymes like GliadinX makes in situations where there may be cross contamination (disclosure, they are a sponsor here). This has been my approach, and others are also finding this to be a good approach. There are many people on this board who do stay gluten-free, don't eat out, and bring their own food...
