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tyki

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Everything posted by tyki

  1. tyki

    ARCHIVED Disneyland

    tyki replied to momof2's topic in Traveling with Celiac Disease

    The Cinderella Breakfast in the Castle can be really hard to get into from what I have seen in the travel guide books. However, breakfast with Winnie the Pooh, Tigger, Eeyore and Piglet at the Crystal Palace (right on Main Street) was a great way to get things started with my 5 year old grandson (Tyler), who had a phobia about characters....but "eating at...
  2. tyki
    Tyki was in Disneyworld Orlando with her 5 year old grandson in August, we are both on gluten-free diets. The folks at Disney were super-di-duper. We started the day with breakfast at the Crystal Palace in Disneyworld, for breakfast with Pooh, Tigger, Eeyore, and Piglet. I had called ahead for Priority Seating and let them know we needed gluten-free consideration...
  3. tyki
    My uncle does not specifically get mouth sores, nor does he get diarhea. However, within 8 hours of eating wheat, rye or barley, his face and arms break out in a rash of blisters. Diarrhea and stomach pain are not the only signs of celiac. The mouth sores you have could well be the dermatitis symptom. If the new blood tests were for the antibodies...
  4. tyki

    ARCHIVED Survey

    tyki replied to flagbabyds's topic in Related Issues & Disorders

    1. Do I have Celiac Disease? Yes 2. Type 1 Diabetes? No Female Just a reminder, the answer to the first question will be skewed. The audience here on the Celiac Board is going to be heavily weighted with people with Celiac Disease since that is who the board is designed for and the percent of people answering yes to the first question will be much...
  5. tyki
    Have told a bit of my history in other posts....but going way back....my paternal grandmother was gluten intolerant (even if we didn't call it that) and a devout Roman Catholic. In fact, she worked as a cook in the convent after my grandfather passed away. Anyways, her solution to not being able to eat wheat, was that she had her own small silver chalice...
  6. tyki
    veggf, For all I know my "nutmeat bread" could be your potica. You see my maternal grandfather immigrated to the US from Morovia (part of the Austro-Hungarian Empire). He liked to refer to himself as a Bohunk. Part of his family lives now in Prague. It was his mother who taught my grandmother to make the nutmeat bread. With the way so many things...
  7. tyki
    My meals both directions were a boneless grilled chicken breast (not overcooked), fresh vegetables, fresh fruits, a gluten-free cookie, and a cinnamon rice cake and margarine. As I said, others who were getting standard meals were getting a lasagna meal with a dinner roll. The pasta would have made it inedible for me. The other passengers looked on enviously...
  8. tyki
    I used the Gluten Free Pantry Sandwich Bread mix through this past holiday season. You see, tyki's favorite grandmother taught her years ago how to make nutmeat bread (its more like a bread roll with ground nuts where cinamon would be in a cinamon roll) like her mother-in-law from Czechoslovakia had taught her. Nutmeat bread for the holidays is a family...
  9. tyki
    I agree, American Airlines does a super job. My husband and I went to Hawaii in November. We called the 800 number a couple weeks before the trip and I ordered gluten-free for me and low calorie for him. We also called the day before our trip to make sure the meal choices were noted. Then when we boarded the plane we let the stewardess know where we were...
  10. tyki

    ARCHIVED Heritage

    tyki replied to Rikki Tikki's topic in Coping with Celiac Disease

    Father's side - Scottish Grandmother (years of people thinking her inability to eat wheat was all in her head but they played along to keep her happy). Irish Grandfather - really don't have health history on him, he was killed in an auto accident when I was young. Paternal Uncle - HD, but at 75 he says he's not changing his diet...he just weighs how much...
  11. tyki
    When I first figured out that celiac disease and gluten were causing my problems, there was a bit of relief to know what the problem was. However, that was short lived. My hubby and I made a commitment to go gluten-free for my health. We went through the kitchen and moved everything that had gluten in it to a seperate cupboard (when the Boy Scouts did...
  12. tyki
    Just a couple of short comments. Like the others have said, if the grandparents won't adjust and cooperate with the gluten free requirements then you as the parent need to look out for your teens welfare. Perhaps this will give you a slightly different perspective: If the grandparents had handguns laying around on the coffee tables, and a candy dish...
  13. tyki
    Jo Ann, Tyki lives in Dayton Ohio, and our local Meijers are also carrying several of the Gluten Free Pantry mixes. Chocolate Truffle Brownie mix - family at a picnic didn't even realize they were gluten-free. Cornbread muffin mix was good as well. Tyki has also picked up the favorite sandwich bread, Brown Rice Pancakes Waffles & Irish Soda Bread...
  14. tyki
    Well, its been two weeks, almost to the day. I had a voice mail from the docs office yesterday and I called in this morning. The blood test results are back and they were negative. Well, now that was 2 weeks of waiting to be no further along. Of course from reading things on the web, I understand that really all that tells me is that there wasn...
  15. tyki
    I had not gone gluten free prior to the blood test. I had had a significant drop in the amount of gluten I was eating, because of cutting the fast food and pizza out of our routine for my husband's weight loss diet, which meant I was fixing more salads, veggie casseroles, and the like. There had not been a conscious effort to go gluten free, and in fact...
  16. tyki
    Well, I convinced my doctor that it was probably a good idea to run the Celiac Panel on me and my blood is on its way to the lab as of Monday, now the waiting begins. Celiac Disease runs in my family, although until 2 weeks ago I didn't have a name for it. I can remember 30 years ago, hearing that "Grandma can't eat wheat, Grandma is bringing her special...
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