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USF1970

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Everything posted by USF1970

  1. USF1970
    Hey all, I've been gluten free since 1998 (endoscope biopsy) and my doc calls me his most 'compliant' celiac disease patient - I don't screw around w/it. Imagine my surprise when, after my last endoscope in Dec., 2011, my celiac disease has returned with a vengeance. In the past year I've lost 40 lbs, have severe diarrhea and a sudden onset of severe...
  2. USF1970
    I'm so sorry that you are having such problems.....mine pale in comparison. Since I'm only three hours away from Mayo in Jax, I had thought about going there. But if I continue to have problems, perhaps I'd be better off seeing Dr. Rupert in Atlanta. I have been tested for parasites after EXCESSIVE bouts of diarrhea. Turns out I have microscopic colitis...
  3. USF1970
    I don't understand all this talk about enzymes, etc., but i've been eating Udi's bread for about a year and have developed severe malabsorption problems (40 lb. weight loss and sudden onset of severe osteoporosis). Just had an endoscope in December and after 14 years of 'clean/no problem' scopes, my villi is once again blunted and flattened. Now I notice...
  4. USF1970
    Does anybody know about the possibility of oat cc in Larabars? I've had to begin keeping a food journal after my celiac disease came ROARING back last year (lost 40 lbs. and have had an onset of severe osteoporosis - a recent endoscope showed flattened villa after 12 years of good scopes....alas.) I've been eating Larabars recently but had one today and...
  5. USF1970
    The food journal has been very helpful. I've eliminated all Udi products (much to my chagrin) and have had no stomach issues until today when I ate a Larabar which I have been eating sporadically once they became available in my hometown. Add those to my list of foods to avoid. Again, I didn't realize I was having stomach 'issues' b/c after all, I am on...
  6. USF1970
    Again, thanks so much for this info,......
  7. USF1970
    Again, thanks so much for this info,......
  8. USF1970
    Thanks to everyone who has responded to my posts. I've already begun keeping a food journal. Yesterday, the BRM cereal made feel crummy, crummy. Today I had half a bagel and half a HD roll both from Udi's. I've been eating UDI's since I discovered it (about a year ago). I'm wondering if it's those two products. I've had endoscopes every two years since...
  9. USF1970
    Thanks for the msg. board tips. I just mentioned Udi's which is new to me. I didn't realize that perhaps I can't tolerate their gluten-free products. Of course that doesn't mean that others can't. One question though....you mention a secondary intolerance. That may indeed be my problem but would that cause my villi to be blunted and flattened? Isn't...
  10. USF1970
    Thanks so much; what great suggestions. I've already begun keeping a food journal. Yesterday, the BRM cereal made feel crummy, crummy. Today I had half a bagel and half a HD roll both from Udi's. I've been eating UDI's since I discovered it (about a year ago). I'm wondering if it's those two products. I've had endoscopes every two years since 1998 and...
  11. USF1970
    Didn't realize I could call out the name of the manufacturer but that's it....Bob's Red Mill. I'll check out the other ingredients. I've been using gluten-free oats for a long time and have not had a problem but today, it really hit me. Thanks for the tip-off.
  12. USF1970
    WOW....and I thought the regular gluten-free diet was TOUGH. Thanks for the two replies - it is something to consider. The odd thing is that I haven't been feeling bad; its the weight-loss and endoscope that alerted my doctor. Today, however, I ate a gluten-free rice hot cereal by a well-respected manufacturer and have felt crummy, crummy all day. I'm...
  13. USF1970
    Doughnuts..........definitely. The ones i buy feel like lead in my stomach.
  14. USF1970
    I miss great flaky biscuits w/gravy (can make the gravy but not the biscuits), egg noodles, condensed mushroom soup, dumplings,edible pie crusts, fried fish, hush puppies......the list can go on and on. I'm so absolutely SICK of everything I eat that I'm just about done w/food....eating a lot of salads and nutritional drinks.
  15. USF1970
    Couldn't agree more...I too, hate this diet......
  16. USF1970
    Don't know how to reply to your post but I'll give this a try. I've been gluten-free since 1998 and have felt fine....no complaints except that I'm TRIPLY sick and tired of this diet. I too, absolutely HATE it. And now, after being called my doctor's most compliant celiac disease patient, it has come back with a roar. I've lost 40 lbs and have sudden...
  17. USF1970
    I've been gluten-free since 1998. However, since I was also diagnosed w/Barrett's Esophagus (BE) at the same time, my GI doc does an endoscope every two years. My most recent one, this past December, reveals flattened villa, etc., all evidence that the celiac disease has returned. Since he considers me his most 'compliant celiac' patient, my doctor is...
  18. USF1970
    WOW....am I ever glad to hear from you. We could SURELY use some help. I am the branch manager (I'm using that term loosely as I don't have time to do much managing) of the Savannah Celiac Support Group. Are you relatively new to Savannah? We've been organized since about 2004 and the local newspaper has been WONDERFUL to us. Here is a link to the first...
  19. USF1970
    Restaurants in Savannah We have FABULOUS restaurants in Savannah. Three are gluten-friendly but fairly expensive. They are: Sapphire Grill Open Original Shared Link Kasey's Grill Open Original Shared Link New South Cafe Open Original Shared Link Will you be renting a car? Do you know where you're...
  20. USF1970
    Hi Fran, My son just brought your post to my attention. We do indeed have a Celiac Support Group here in Savannah. We are meeting THIS Saturday, March 8th, 1:00 p.m. at The Outback Steakhouse on Abercorn (on the southside NOT the downtown location). We have over 100 people on our email list but only about 15 to 20 come to meetings (at best). However...
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