lcarter

I need to be 100% dairy free to be safe, but have had a poor experience with Daiya products as well. I finally figured it out and decided it was the pea protein that they add to their products that bothers me. [Unfortunately, I must avoid coconut milk, plus sugars like agave and stevia too , besides gluten.]

What an asinine thing for Cruz to say about Celiac Disease --- it only shows his ignorance! I can't believe this guy....he is so pompous!

I know we need to be eating gluten for quite a few weeks before being blood tested, but not necessary for gene tests. But, what about GI biopsies? I have been gluten free for 6+ yrs and my GI went ahead and did GI biopsies which were all negative. There's no doubt that wheat gives me GI problems.

Have they checked you for Crohn's - Inflammatory Bowel Disease which can affect your digestive tract anywhere from the mouth to the anus? Pancreatic problems can be a side feature of this disease. An endoscopy [through the mouth into the small intestines] can only go so far into the small intestine. Sometimes, a Pill-cam [pill + camera that is swallowed...

Since you are "self diagnosed", kind of like me, there are a couple of other possibilities you might want to check out that could explain some of the other food sensitivities you are noticing. A gluten free diet would make a significant difference in 2 other digestive disorders that I can think of: [1] FRUCTOSE MALABSORPTION [and a more serious condition...

I tend to have this too, but mine is more triggered by sugars...especially upon the first sip of soda. It's more like a throat muscle spasm; definitely NOT a burp. It's like my body is saying, "NO WAY!" to the sugar. [besides the gluten sensitivity, I am Hereditary Fructose Intolerant] Anyway, since the trigger is gluten for your little one, perhaps it is...

I used to get these frequently before starting a gluten free + dairy free + low sugar diet. About that time I was told to add Bronson's "Super B" vitamin complex and it has really made a difference. Now I hardly ever have mouth ulcers...and the few times they have popped out, they were much milder and didn't last near as long. So, I would suggest talking...

BP Drug Linked to Gluten Sensitivity By Chris Kaiser, Cardiology Editor, MedPage Today Published: June 22, 2012 Reviewed by Dori F. Zaleznik, MD; Associate Clinical Professor of Medicine, Harvard Medical School, Boston and Dorothy Caputo, MA, BSN, RN, Nurse Planner Action Points

I have found that we really can

Yes, other diseases can cause villi blunting: Open Original Shared Link "Endoscopic findings of the descending duodenum associated with celiac disease may include absence of folds, scalloped folds, visible submucosal blood vessels, mucosal mosaic pattern, and absence of villi. At histology, chronic inflammation of the duodenal mucosa with blunting or...

Here's a significant research paper of interest to all of those who have had a negative biopsy. Another reason not to fully trust negative biopsies is (1)labs miss read them 20% of the time, according to the attached research report, (2)the doctor may not take enough samples -8 are recommended,(3) or there are not enough taken in the right places, as damage...

Contact the following local support group for information on Austin + San Antonio: Open Original Shared Link

I, too, recently gene tested with Prometheus labs and was told that I am negative for both DQ2 + DQ8 - so have an "Extremely Low" chance of developing Celiac Disease. Well, I am, for sure, sensitive to wheat, rye, barley and oats; also extremely Dairy Intolerant to both factions [lactose + protein], plus have Fructose Malabsorption. In any event, a gluten...

I sure hope that this in vitro test works and becomes standard practice. It will make it it sooooo much easier to diagnose! I am one of those "old folks" who slipped through the net before Celiac was even on the radar and diagnosed with an elimination diet and challenge. Since I get so ill when exposed even slightly, it's not recommended to do another challenge...

here's another reference to this new type of test: Open Original Shared Link