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Breila

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Breila

  1. Breila
    I feel a little silly posting this, because I should be old hat at the gluten-free thing by now, but I could use and will take any advice anyone can throw my way. Just over two years ago, my middle son was diagnosed with celiac at the age of 7. It was hard for him to make the transition, but he had been sick for so long and he had a good understanding...
  2. Breila
    I remember reading somewhere (I think it was an EMT's blog) about a woman they picked up in the ambulance who KNEW she had a peanut allergy, but thought smooth peanut butter was okay. Geesh. I half jokingly told my son the other day that I was just going to start telling restaurant people that he had a bread and pasta allergy so they'll stop offering...
  3. Breila
    Thanks Kibbie. I've been in contact with the school for the last week and they have been great about working with me. We are putting an IHP (Individualized Health Plan) in place that will hold with any public school (including universities) within the state. It isn't as all encompassing as the 504, and they did give me the option of a 504, but the school...
  4. Breila
    I've read most of the ADA, and with the exception of situations that it does NOT cover, I don't recall the act mentioning ANY specific disability. A disability is defined as such: Everything I have read indicates that eating is a major life activity, and I would tend to agree, and the general consensus from what I've seen is that celiac is covered...
  5. Breila
    It's under My Controls. There you can view topics or threads you have subscribed to. HTH.
  6. Breila
    I honestly have no idea, we have a traditional diagnosis, if you will, so I haven't given it thought. I would imagine that if your ped. was on board with the diagnosis, that should be enough. Though, if it has been diagnosed as an intolerance vs. celiac, that may make a difference in what you are entitled to, ie. under the ADA.
  7. Breila
    Thanks Kibbie. I guess I'm just so pleased that the school and the teachers have been so accommodating so far that I don't want to put them on the defensive. Can you tell I'm just so NOT a confrontational person? LOL. I know I need to work on that. OTOH, the principal at our school is just amazing, I can't imagine that he would take offense, shrug. Some...
  8. Breila
    We go TorT as always, then check the candy against a gluten-free list when we get home. I've found that he can usually keep most of it, and what he can't keep, his older brother is usually willing to trade for, so it all works out.
  9. Breila
    We do most of our grocery shopping at TJs now, and save money in the process. I find that though my selection is a bit limited there, I can certainly get a week's worth of food within my budget, and it's better quality food than when I try to do that at the regular grocery store. My favorites in the gluten-free category are polenta (we LOVE polenta lasagna...
  10. Breila
    I tried to search, but "504" is too short a word, LOL. I'm trying to determine what the benefit to my son would be of seeking a 504 with the school. As it stands right now, his teacher's have all been very accommodating and willing to work with us, and I'm providing all of his food. I do know that that I technically have the right to request appropriate...
  11. Breila
    Before DS was diagnosed, he would eat a meal and 15-30 minutes later start complaining that he was hungry. Once we got the celiac diagnosis, we figured that he had been misinterpreting a gurgly upset stomach for "hungry" this whole time and sure enough, once we went gluten-free, the constant "I'm hungry" stopped. Now it has started up again. We haven...
  12. Breila
    Margaret, We met recently at the local Celiac meeting, nice to see you here. I have a 7 yo son too. It is really hard to feel left out, so far we've been really lucky that there has only been one birthday party where pizza was served and he had to bow out. Every other event I've managed to provide a gluten-free version of what was being served...
  13. Breila

    ARCHIVED Second Gi Appt

    Breila replied to lizard00's topic in Doctors

    My son is diagnosed celiac, and since we know it came from somewhere genetically, we did determine to have the entire family tested via blood test. However, our insurance sucks and we're just plain out of $ right now, so the genetic testing and anything further than that simply can't be done. Since I've lived a lifetime with mild "sensitive stomach" issues...
  14. Breila

    ARCHIVED Second Gi Appt

    Breila replied to lizard00's topic in Doctors

    From what I have been told, there is one dietitian in this part of the state that "specializes" in celiac disease, and she works for the Ped. GI's at Duke. I don't know if she's available for private consultation though. Lizard, I'm glad you've found a good GI. I'm still debating on what to do about myself, I'm very torn right now.
  15. Breila
    After having been at home with my kids for 10 years, it's time to consider a career. I thought I was set with what I wanted to do, but I'm finding myself increasingly drawn to food science even though science in general is scary to me, LOL. Anyway, I thought it would be worth asking around here. If anyone does do this as a career, I'd love to have a...
  16. Breila
    Bob's Mill corn products are produced in their gluten plant and therefore carry the risk of cross contamination. I, like you, specifically went looking for the bob's mill brand figuring it would be safer and was surprised to NOT see their gluten-free logo on the bag.
  17. Breila
    I wonder, and would appreciate input on this from anyone here, about the possible effects of this drug on the people who make the choice NOT to take it and instead control the disease with diet. IF this drug hits the market as "cure" for celiac, what happens to the labeling laws and so forth for the food available to celiacs? We've come a long way in the...
  18. Breila
    I remembered after you posted that the tube polenta we use does indeed say gluten free on it. But it takes 2 tubes to make a meal for my family of five which can get kind of cost prohibitive. I'd like to find some dried if at all possible. Thanks for reminding me about the tube kind though.
  19. Breila
    Thank you!
  20. Breila

    ARCHIVED Mad Mother?

    Breila replied to lynne1978's topic in Doctors

    Yup, I was told I was paranoid when I told my DS's ped that I thought he had classic celiac symptoms when he was 4 because he was on the growth charts. Trust your mother's instincts, it took us 3 years to get the diagnosis because I doubted myself, don't do that.
  21. Breila
    If Bob's Red Mill doesn't even have gluten-free polenta, who does? I know the issue is CC and not the actual ingredients of the polenta, but my DS doesn't have immediate GI reactions when he gets glutened, so I'm usually unaware of CC but try to avoid it at all possible.
  22. Breila
    Saw this on a package today, I've never seen it before, and of course the word gluten raised my red flags. But is corn gluten the same thing? I didn't know corn HAD gluten, LOL.
  23. Breila
    Adding, it appears I'm missing the total IgA as well. What would you rec. as my next step? Back to the Dr. to request missing tests? On to a GI (that was what the Dr. rec. IF I feel like I need to take it further). I'll be honest, I have no severe GI symptoms, nothing that interferes in my daily life, yk? But I do have issues that *could* be related...
  24. Breila
    On another thread someone questioned awful breath in their child who was suspected celiac. I commented that my 7yo, who is diagnosed celiac, had atrocious morning breath that is now subsiding on the gluten-free diet. I never considered it a symptom though, only realizing that the two may have been connected after the fact. Now my 2 yo is getting the...
  25. Breila
    We've had really good luck with the shortbread recipe in the most recent issue of Living Without. I'm not sure how copyright rules apply to those sorts of things, so to be on the safe side I won't copy it here, but you may be able to find it on their site.
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