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lauriel234

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Latest Celiac Disease News & Research:

Everything posted by lauriel234

  1. lauriel234
    thanks for the info - very interesting
  2. lauriel234
    yes, she is celiac. gluten-free since 2002. she is taking 250 mg. depakote once a day. she was just tested a month ago & her levels were fine. now another doctor did more blood tests & levels were high. i don't know if both liver tests were testing for same things.
  3. lauriel234
    yes, she is celiac. misdiagnosed for about 8 years. gluten-free since 2002.
  4. lauriel234
    My daughter, 19, has been sick since April. Her first symptoms were hot flashes, weight gain (now up to 50 lbs.), shortness of breath, not sleeping (have tried Ambien, Lunestra, Rozeram) even with the pills (currently waiting to get in sleep study). Additional symptoms now include: rapid pulse/heart rate (EKG normal) and chest pain. She's had many blood tests...
  5. lauriel234
    We went through the same thing last year at Penn St. A few things we did that made it easier: ask them if they have room in the dining hall to store some extra food - this way you can send more at one time & she won't have a problem with storing the stuff. Also, see if they would let you keep a toaster (maybe they would even purchase it for you) there...
  6. lauriel234
    Thanks for the list - it was a big help!
  7. lauriel234
  8. lauriel234
    My daughter has been accepted at the following colleges: Shippensburg U., York, Rowan, Stockton, Penn State, Bloomsburg. Does anyone know any celiacs at these schools? They have been very helpful on the phone, but it is always better to directly talk to someone who has personal experience.
  9. lauriel234
    Besides all the concerns that everyone else is listing, ask them why they can't have dedicated fryers for french fries. My daughter really misses being able to eat fries in most places.
  10. lauriel234
    My daughter has eaten at Johnny Rockets a few times. They have a gluten free menu online. She's had the fries and grilled chicken with no problems. Just call & double check that they have a dedicated fryer at that location.
  11. lauriel234
    Has anyone tried to make 'pigs in a blanket'? (little hotdogs with a roll wrapped around them). Do you think that mix for chebe bread would work? I haven't tried it, but just thinking. My daughter really misses them, good for snacking or a quick lunch). They'd also be good for appetizers at a party
  12. lauriel234
    I found out this weekend that the Ruby Tuesday's in Stroudsburg, PA has gluten free french fries every Saturday. They clean out the fryer & change the oil. My daughter had a great dinner, grilled shrimp & fries. They also have a good salad bar. I'm going to email them & see why they can't keep it like that all the time & also see if that...
  13. lauriel234
    I happened to look at a box of Kix the other day and I think if you can tolerate oats, they're wheat free. My daughter had some with no problem - she eats matzo balls made from oats too. Check them out.
  14. lauriel234
  15. lauriel234
    We're staying on the Canadian side. I went online, looks like a lot to choose from. What are your favorite places? Thanks for the info. Laurie.....
  16. lauriel234
    Does anyone know of any gluten free restaurants in Niagra Falls area? Am planning a trip at end of August and would love to take my daughter to some different places. Also, are there any hotels that are gluten free friendly?
  17. lauriel234
    Has anyone eaten at Mama's Italian Restaurant in Oakdale, NY? Am thinking about making the long drive this weekend (1 1/2 hr.) and want some info first. Any recommendations on what's good?
  18. lauriel234
    I remember reading a few months ago about a new research trial either at University of Maryland or Columbia University. Now I can't find any info at either site. Does anyone have any info about any research trials going on?
  19. lauriel234
    My daughter likes Chevy's too. She eats the chips and salsa and we get the steak fajitas and she just eats the steak. I don't think the rice is gluten free and she doesn't like beans. We've been there several times and she hasn't had a problem.
  20. lauriel234
    I don't know where you live, but in NJ/NY area you could check out Pathmark - I think their own brand of 'corn pops' are gluten free.
  21. lauriel234
    I just read this posting about McDonalds fries and am very upset. My daughter has been eating the fries almost everyday for lunch. I just sent McDonalds an email trying to find out when this change occurred. I think we should all send letters and/or emails or call them to let them know how upset we are about this. I also asked them why there was no press...
  22. lauriel234

    ARCHIVED Chinese Food

    lauriel234 replied to kathy1's topic in Gluten-Free Restaurants

    We take my daughter's wheat free soy sauce with us and the restaurant is nice enough to make fried rice with it or some type of brown sauce if she wants it. There are a few brands out there - San J; LaChoy; Shop Rite.
  23. lauriel234
    Has anyone tried Heartland pasta and/or cereal? Just heard about it and wanted to know any reactions to it.
  24. lauriel234
    Does anyone have a recipe for mozzarella sticks? I appreciate your help.
  25. lauriel234
    My daughter sees Dr. Elena Treskova, St. Joseph's Hospital, Paterson, NJ. (also has a couple other offices around this same area). She also might be able hook you up with an adult gi.
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