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leadmeastray88

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by leadmeastray88

  1. leadmeastray88
    Kimball does genetic testing: Open Original Shared Link Last time I checked with them I think it's around $300 Remember that gene testing is not diagnostic. It can just show if you possess the gene markers for Celiac. Even if you do have one, it doesn't mean that you have Celiac or that you will develop it...but that it's possible. The problem with...
  2. leadmeastray88
    Oh goodness... There are 2 things very wrong about what she told you: First, if you're going to have a biopsy, you HAVE to be consuming gluten for your biopsy to be accurate. A "normal" amount is the equivalent of 4-6 slices of bread a day (some have said). Secondly, if you have Celiac's you CANNOT have ANY amount of gluten, not even a little...
  3. leadmeastray88
    Hi again, Yes there are 5 tests they should run: Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (tTG) IgA Total Serum IgA And no, none of them are 100% accurate. In the Post-Diagnosis thread, one member posted today that they had negative bloodwork but an extremely positive biopsy...
  4. leadmeastray88
    Hi there, You already got some great advice. I agree with skymgirl that it would be wise to do some more testing just to rule out other things. If nothing shows up, there's nothing stopping you from trying the diet. If you feel better, you have your answer. Many people here are self-diagnosed solely by positive response on the diet and are very...
  5. leadmeastray88
    Wow, you sure have an array of symptoms! If I were you, like I said earlier, I would demand an endoscopy from your GI. If he isn't willing to do it, find one who will. Don't settle for an IBS diagnosis!! Here we like to call that "I Be Stumped". It makes sense! "Your bowels are irritated, so you have Irritable Bowel Syndrome". What next? "Your arm is...
  6. leadmeastray88
    Unfortunately, the symptoms for Celiac is what makes it so hard to diagnose...they could be anything. There aren't really any "textbook" symptoms, as some Celiacs have no GI symptoms at all, but have migraines, vertigo, etc. instead. What are your symptoms? Just because your doctor said you don't have Celiac based on your bloodwork doesn't rule it...
  7. leadmeastray88
    IBS - 2 weeks Acid Reflux - 2 weeks Sleep problems - 2 months Lack of energy - 1 month Headaches - 2 weeks Memory Fog - Didn't have this Overall, I felt 100% better by the 2 month mark. The gluten de-toxing takes awhile!
  8. leadmeastray88
    For those who are skeptical to use oats, you could always substitute them with quinoa flakes.
  9. leadmeastray88
    When I have a chocolate craving, the first thing I think of is "massive, fat-filled chocolate bar". Here's a much better (and healthier) way that I satisfy my 2:00 p.m. chocolate craving! You'll need: a medium bowl of air-popped popcorn a couple handfuls of gluten-free semi-sweet chocolate chips a handful of mini marshmallows a handful of...
  10. leadmeastray88
    Hi there! I'm from Winnipeg, MB. I have a cousin who is Celiac from Halifax also.
  11. leadmeastray88
    Hi Diane! I'm so sorry to hear that you're still having trouble. The first thing that set alarm bells off with me in your post was the burger issue - have you made sure they don't put bread crumbs in them as filler? Learned that the hard way at a restaurant. There's a link on this site that lists all of the ingredients you should watch out...
  12. leadmeastray88
    My doctor has no problem prescribing me Buscopan for this. I've tried other antispasmodics and this one has worked the best for me. Whenever I feel like I've been glutened, I take it and feel better within the hour. It says it can make you drowsy, but it isn't a debilitating tired (for me anyway). You can however take it up to 3 times a day if your symptoms...
  13. leadmeastray88
    That's what my doc told me - IBS due to stress. And he refused me a scope because he said I was stressed out enough. My dad's cousin had "IBS" for years, and she just had a Celiac panel last week which came back positive. Go figure. I don't even want to know :S
  14. leadmeastray88
    CRUST: Note: If you're like me and like a thicker crust, I double this! 1 cup chopped pecans 1 cup gluten-free flour 1/2 cup butter 1 tbsp sugar Melt the butter and add to the dry ingredients. Press into a 9x13 pan and bake at 350 for 20 minutes. Cool completely before adding the filling 1st LAYER of FILLING: 1 8-oz package plain cream...
  15. leadmeastray88
    Crystal, I am so sorry that you're having so much trouble. The trouble with Enterolab is that Dr. Fine's research has not been published. Because of this, there are few doctors who know about his testing and even fewer who consider it to be a valid method of testing. The validity of these tests has been questioned time and time again on this forum...
  16. leadmeastray88
    Yes, nausea can definitely be caused by the gluten! I was nauseous so often before going gluten free that my doctor thought I was pregnant. The nausea disappeared after taking gluten out of my diet.
  17. leadmeastray88
    Please take note though that Enterolab cannot diagnose Celiac disease. It can only detect active dietary gluten sensitivity by stool sample. Enterolab can find gene markers for Celiac, but this in itself is not a diagnosis. What you should do is really up to you. Do you feel better gluten free? If you do, then you know gluten is a problem for you....
  18. leadmeastray88
    If you are indeed gluten sensitive, like mushroom said, you still felt crappy after 3 days because you were detoxing. It can take 2 weeks or more before you can start feeling better after going gluten-free. You need to make sure you are completely gluten-free and give it another shot!
  19. leadmeastray88
    Hi there! Welcome to the board! In order to know if your blood levels are high, we need to know the normal ranges for that specific lab. Either way though, from what I've seen on this board in the past, the numbers you have seem pretty high. Your doctor is right in saying that it is probably Celiacs, and is also right in sending you to a GI for an endoscopy...
  20. leadmeastray88
    These are my personal favorite: https://www.celiac.com/gluten-free/index.php?showtopic=49937 If you love peanut butter, you'll love these! I make a batch and cut them and freeze them - so I just grab one as I head out the door! You should also check out the Recipes thread in this forum, there are some great ideas there!
  21. leadmeastray88
    Not sure what to think of this: Open Original Shared Link DISCOVERY OFFERS HOPE FOR CELIAC SUFFERERS Canwest News Service Published: Wednesday, January 07, 2009 A researcher at the University of Alberta has found a cost-effective way to produce antibodies against gluten, potentially opening up a whole new world for people with celiac disease....
  22. leadmeastray88
    Even though Costco can offer these low prices, there is obviously even still a percentage of that which is 'profit' for the companies. I just find that the present percentages of profits are astounding, and incredibly high. You can't deny that. That is simply robbing us blind.
  23. leadmeastray88
    I got this in an email and was left speechless! If you buy lots of meds and pay through the roof, you may want to read this!! P.S. The lady who did this is a Budget Analyst, I did not do this ----------- Did you ever wonder how much it costs a drug company for the active ingredient in prescription medications? Some people think it must cost a...
  24. leadmeastray88
    My bad, I missed that one number - forget what I said What happygirl said is right though - an endoscopy biopsy may be useful for two reasons: 1-to test for Celiac 2-to explore and make sure everything else is okay
  25. leadmeastray88
    Hi there, I would say that YES, you need more tests. The thing about the ones you got is that they didn't do an IgG or Total IgA. What the total IgA does is it tells you if you're "deficient" in those antibodies (and if so, those IgA tests you got mean nothing!) and then thats where the IgG comes into play instead. Before going gluten free, I would suggest...
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