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dollamasgetceliac?

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Everything posted by dollamasgetceliac?

  1. Jenny I will have to agree with you People must be treated equaly even if they have a Handicap. Our Handicap is a hidden handicap. I feel honored when somebody respects me whether I am in a wheel chair or suffering in silence. In some stores they will show you the item tell you whether they like it or they say hey we have this new item etc... Now that...
  2. That is strange, because the person I talked to said that I had to call all the manufacturers that are not Kirkland. I told him that I had been a customer for several years and had spent thousands of dollars on food and paper and even my computer. The thing is that perhaps if I call a larger store I might get better customer service. i think that if they...
  3. Hi , I just called them today as well, same thing, Mam we can't help you, you have to give us the bar code then we will call you back, and guess what Trader Joes called back with in 15 minutes! They also acted like I was a pain in the neck. The thing is that " Artificial flavouring is bad for you" and " Natural flavouring is either gluten free or not and...
  4. Hi; I just want to let you know that Gastrointerologists often mistake Crohn's for Colitis or IBS. Many Crohn's patients have part of their intestines removed. The wounds are deeper and can be spread out over the entire digestive system. Also Crohn's is becomming more commen, Children can get it at any age. I am not a doctor , but I know lots of them...
  5. I know this may complicate things but maybe you would like to try researching the ADHD issue. I had trouble with that and found out that this Doctor Feingold had asked parents to change the diet of their children with Asthma, turns out that the mothers reported that the Asthma, hives, Learning Disabilities you name it vanished the diet iliminated all foods...
  6. I think that some companies make say rice Pilaf or whatever so they share the same facility that has wheat = Gluten . Then for example I saw that some Gorbanzo beans were shared in a facility that uses Shellfish I imagine that they do not want to run the risk of getting sued. Many times I have called a company that sells an item and they have said that...
  7. Sorry what is RA? I am not computer savvy so I really am bad at abriviations.
  8. I know that there is a thread on Endometriosis There is also Endometriosis in men, I know that it can spread inside your entire body. i do not know if there is a link between Infertility in Men and Endometriosis? But we are begining to think that there is a link between Endo and Celiac. There is a book how to get pregnant, you can get a ovulation monitor...
  9. I truly mis being active, to think about the fact that I was able to do so many things and now I simply can't. I think that I have to forget about my expectation of myself and the expectation of others of me. That is hard to deal with. i feel as though everybody is pushing me. When people ask me" How Are You? " it is a loaded question. It is obviouse...
  10. Keep in mind that the meters are not 100% accurate. They can be off by as much as 10 % - 20% either way. They are just used as a guideline. So dont panic if you get a 140 reading. You might not be "damaging" your organs. It could really only be 126. When this happens to me, I just restest in an hour to make sure it has gone down to "normal". And it...
  11. I like to get out of bed too I think that a person knows there body pretty well, I mean you live in that body 24/7 so you know most likely what to avoid. If a food makes me so sick that I feel like staying in bed all day , that is bad. My allergist said: avoid the foods that are causing you to get hives and make you feel sick, he said never mind that the...
  12. Hey that sounds like a dream come true. Why do regular Doctors always turn me down when I ask for a test, I have tons of symptoms? We have spent so much money on Doctors, labs, surgeries and meds , now the gluten-free food ( to tiered to shop) so I get the ready made stuff for now. Any way how can I get my Doctor to test me? He says your symptoms are...
  13. Thank you, I thought that was a great article. I spent the whole day shopping yesturday reading labels checking lists , somethings were good like the Enjoy life Nut and Gluten free food bars thank God it did not have Honey so that is one thing I can just keep in my purse and move on, what really bothered me is that i got exhausted at the end of the day...
  14. this thread continues on the "Celiac related testing and research" board continue to post there!
  15. I had Elevated Pancreas numbers at one point, The Drs. thought it was Pancreatitis due to a water pill ( Hydrochlorothizide) It is a side effect . Pancertitis is very PAINFUL The thing is that I stopped the med and the Enzymes dropped. So the Drs. said you never had it , my blood must have gotten mixed up with someone else. Now I wonder does the pancreas...
  16. Add That to my list , I think I have soooo many related diseases to Celiac it is amazing. I had a Laporoscopy in my early 30's that revealed Endometriosis. I had to have a Historectomy , because of all my abdominal pain, last year I was ent back and forth to the OBGYN and the GI Doctors, untill they deceided that if they took it all out I only need to...
  17. Hi; I have Crohn's and Celiac; I just read about your condition and it sounds pretty similar to Crohn's. Not as Serious I think? I absolutely avoid Honey the allergist said there are no allergy test for honey but if I eat it I get severe nausea and abdominal pain. You might want to read up on the side effects of some of the medications that your Doctor...
  18. Hi Shay; I can identify with the Migrains, I had them for 2 years every day, I had it after the doctor perscribed Antibiotics; I was begging the nurse to ask the doctor to stop the Antibiotics; instead they told me to come in the next day. I entered the room there was a nurse practisioner in training , a psychologist and a student: they went through...
  19. I am trying to move this thread to related conditions, Help I hope I did it right?
  20. Finally I found 2 people like me! Me too my temp is chronically low and when I get a severe infection ( Like I am halucinating and well I'll save you the details) my temp goes up to 99 max. One Doctor said I hate to mess with you it seems dangerouse, at least he was honest. I never heard of this before in other people, the Most Dr's look at me though...
  21. this thread continues in Celiac:related diseases and research look for my username "dollamasgetceliac"
  22. This is a continuation from the thread on the prediagnosis board " do I have diabetes?" continue discussion here
  23. Fiddle-Faddle I am so glad you said that about the Endoscope test. I had one then a few months later they did the Celiac test that was positive so they said that they wanted a repeat Endoscope and I deneid it, They said it was all normal. Any way if anyone does the test and is sedated remember not to sign any major documents afterwords. Or do not talk...
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