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*lee-lee*

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Everything posted by *lee-lee*

  1. *lee-lee*
    Natalie - i'm so sorry for what you've been through. i also got positive blood results but the doctor remarked after he performed the biopsy how normal everything looked. of course, i got a negative result which confused me beyond belief. then i came on this forum and after much reading and a couple of questions, i've learned that most doctors don...
  2. *lee-lee*
    i've been dairy light for about 3 weeks now. i have a little half & half in my coffee, maybe a yogurt twice a week, a little mayo on my turkey wraps (made with corn tortillas) and that's about it. oh and some parm cheese here and there. i wonder if that's still too much? i have cut down considerably - i was all about cereal for breakfast, a yogurt...
  3. *lee-lee*
    would it be the same for adults too? i'm 1 month gluten free and my stomach still has that distended look. i don't look 8 months pregnant or anything but it definitely isn't normal looking yet.
  4. *lee-lee*
    it all happened very quick for me. i went to the doctor complaining of upset stomach, diarrhea, etc and mentioned my grandmother has Celiac. my doctor ordered a full Celiac panel and when that came back positive, she immediately began talking about a referral to a GI doc for a consult and biopsy. She explained, "the biopsy is the gold standard for diagnosis...
  5. *lee-lee*
    i've been reading a lot from new posters who say they can't get into see a specialist for many weeks or months. i was very fortunate to only have to wait 2 weeks after my blood work came back to see a GI and then only a week after that to have the biopsy. i think the main reason was because i explained to every doctor, nurse and receptionist who would listen...
  6. *lee-lee*
    hi Tye and welcome! in one word, the answer to your question is YES! i had random health issues (joint pain, acne, weight gain and fatigue, of course in addition to the big D) for about a year prior to figuring out it was Celiac. i would have never suspected everything was tied together - and of course, neither did my doctors. (and i realize now that...
  7. *lee-lee*
    thanks for the suggestions everyone! i think we might be going out this weekend so i'll be sure to have one of each LOL
  8. *lee-lee*
    The first thing most people say when i tell them i have Celiac is "OMG, you can't drink beer???" Thank goodness i was never a beer drinker! But my old stand-by was always Smirnoff Ice (you know, the MALTED beverages?) and now i'm left questioning what's good to drink when i go out. I need some simple, easy-for-the-bartender-to-make drink ideas...
  9. *lee-lee*
    well, i guess it's a good thing that we can't eat the bread (and butter) at restaurants!
  10. *lee-lee*
    ha ha Debmidge, that's a good suggestion! Fortunately though i think he's finally starting to understand so i hope i won't have to use that gross (but probably effective) comparison
  11. *lee-lee*

    ARCHIVED I Really Need Help, Please!

    *lee-lee* replied to Joon's topic in Doctors

    my doctor told me my blood looked good (well, of course except for the elevated antibodies that showed Celiac - she kind of mentioned that off handedly). my biopsy was negative but i've have a great response to the diet...and it's only been 3 weeks. nothing would make me go back on gluten. (i'm going for the genetic testing in a few days just because i...
  12. *lee-lee*
    i'm curious myself to hear what others have to say about this. before i went gluten-free (which was only a few weeks ago), diarrhea was my major symptom. now when i'm glutened, i mostly just get nauseous like i'm going to puke but nothing happens. it's usually at night so i just go to bed and i'm fine by the morning.
  13. *lee-lee*
    hi - i'm pretty new at this too but from what i've read just on this board, your symptoms could definitly be Celiac. I had a few of the same symptoms as you...TMJ as a teenager, cracking ankles for as long as i can remember, joint pain in the last year, fatigue, diarrhea plus acne that appeared out of nowhere and gradual weight gain (mostly in the belly...
  14. *lee-lee*
    From what i've learned in the past few months from this board, you don't have to have a ton of the "classic" Celiac symptoms to have the disease. Anemia and fatigue are 2 symptoms of Celiac though. i can't help with the test results but it means something if your doctor is referring you to a GI. that's exactly what my doc did. my initial appointment...
  15. *lee-lee*
    Hi Mally-bug...i'm in a similar situation as you are. (see the thread i started: Open Original Shared Link) Since i just moved away from my immediate family, i don't really know how it is to deal with anyone on a day-to-day basis besides my boyfriend. He likes to cook and i never objected...until now. I am so nervous that he'll do something to unknowingly...
  16. *lee-lee*
    yeah, you'll need to have someone with you. they wouldn't let me go until my grandma got there. aside from being a little groggy, i felt like could have driven but Grandma and the nurse both said no way!
  17. *lee-lee*
    Muffins - i debated the biopsy too but decided to go ahead with it and get it over with while i was still consuming gluten. i hated the thought of being gluten-free only to have to go back on gluten just for the biopsy. i was not nervous about it until i actually got to the hospital and they inserted the IV. but it went very well and the only thing i...
  18. *lee-lee*
    kristionii - are you my long lost sister?? i, too, just want to know so i can get on with my bread-less life. problem is, i can't just accept that i feel better on the diet. there's just something that nags at me that makes me want a definite diagnosis but i'm quickly learning it's just not that simple. best of luck to you...i hope your biopsy comes...
  19. *lee-lee*
    i had joint pain in my hips which also consisted of general leg aches for about 8-10 months before i suspected i had Celiac. i was tested numerous times for mono, Lyme's Disease, arthritis, thyroid, etc (all negative, of course) and also went through a month of physical therapy and multiple cortisone injections before being diagnosed with trochantaric bursitis...
  20. *lee-lee*
    they're starting to go away (very slowly) although not without some new ones popping up. i haven't taken anything nor have i seen a doctor so i'm keeping my fingers crossed they disappear never to be seen again...
  21. *lee-lee*
    ok, all you people who can interpret blood work! what do you see?? Antigliadin Abs, IgA = 1 Antigliadin Abs, IgG = 2 t-Transglutaminase (tTG) IgA = 19 (Flagged: HIGH) (there's a note below this one that says "tTG has been identified as the endomysial antigen. Studies have deomonstrated that endomysial IgA antibodies have over 99% specificity...
  22. *lee-lee*
    i'm still waiting for the doctors office to mail the blood work results so i can give you guys the specifics but in the meantime i talked to my GI doc yesterday so he could explain the negative biopsy result and he said the blood could have been a false positive...is that possible or does he not have a clue what he's talking about? he's sending me for...
  23. *lee-lee*
    i cooked some Tinkyada for the first time last night. it was about 1/2 lb of fettuccine and i used a huge pot with a ton of water. i followed the directions on the front of the package - boiled it for 2 minutes, removed it from the heat and let it sit for about 16 minutes. i think i could have gotten away with only 13 or 14 minutes because it was a...
  24. *lee-lee*
    i'm new to this too but my first thought would be for the doctor to take more blood and run a Celiac panel. that's what my doctor did (while i was still on gluten), it came back positive so i was sent for the biopsy (still on gluten). i just got the results - negative - and now my doctor is sending me for more blood work to check for genetic markers. in...
  25. *lee-lee*
    thank you so much to everyone for your supportive replies, suggestions and thoughts. i promise i will never eat a salad after brushing the croutons off ever again. a little background on mine and DBF's situation...we just moved to a new town after living apart for 9 weeks due to his job. long story short, the job isn't working out and we will be moving...
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