Jump to content

Jaimepsalm63

Advanced Members
 View Profile  See their activity

  • Posts

    56

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Jaimepsalm63

  1. Jaimepsalm63

    Happy birthday and may God bless you today!

  2. Jaimepsalm63
    Thanks H****. I'll have my docs look into it. I've been going back and forth with putting weight back on and taking it off. I had the genetic tests done, I just didn't get the results written down for my own file like I should have done. I'll call my GI and ask for those results too. Some things are looking up and others down. So it goes.......ho...
  3. Jaimepsalm63
    My oldest son is allergic to All molds (mushrooms in this category), nuts, legumes (which includes as you know peas, peanuts, and beans), corn, soy, oats, garlic, coconut, and cauliflower. I haven't found a website that is awesome like this one. I just make everything by hand and check references in books that I have about what is in each family group before...
  4. Jaimepsalm63
    Check other things out. It could be a lot of things and not just Celiac. Case in point, I had gastroparesis on top of Celiac, and I have a couple of other autoimmune problems. Don't rule anything out because you limit yourself without knowing why. I know I can only do liquids now, but at least I know why I can only do liquids. It's not as frustrating...
  5. Jaimepsalm63
    I'm the only gluten-free person in the house. I have my own cabinet, take the top shelf in the refrigerator, and the top shelf in the pantry area we have. I have my own oven now (we have a double oven) because the convection oven (has a fan) was blowing gluten all over my gluten-free food. I don't have a toaster because I do my toast in the oven on broil...
  6. Jaimepsalm63
    Hey Jbusta88, When I first began the gluten free journey I was so frustrated because I felt worse the first 6 month. than I had when I was eating gluten. Don't give up. Every body is different every journey is different. There are common threads with some things and nothing in common on others. Do make sure you aren't dealing with CC though. (My...
  7. Jaimepsalm63
    FYI to all, if you have Celiac and are trying to get LIFE insurance...you'll be denied and told you only have 10 years left after the date of diagnosis. I know that's bogus, but that's what I was told. Maybe they'll tell you that you have more time...good grief!
  8. Jaimepsalm63
    It would be so helpful is there was at least one place doctors would just study people with Celiac. Of course I dream. I too have not just Celiac, but also gastroparesis (autoimmune), Sjogren's (autoimmune), reynaud's (autoimmune), and now they also suspect lupus???!!! I mean seriously, can some doctor or group of upcoming doctors catch on and actually...
  9. Jaimepsalm63
    Hey Yasemin, Welcome to the forum. It sounds like he's still having gluten from somewhere. You can help him all you want, but it is up to him to make sure he doesn't eat the gluten when you can't see him. Make sure everything in the household is gluten free for him. That will help him while he's there, but if he's at work and grabs something that...
  10. Jaimepsalm63
    Matty, IMHO you are right on! I know it's overwhelming and almost unbelievable what some of us have as results of the autoimmune problems of Celiac. Sometimes, it's live and learn to really understand what needs to be done in order to feel better. I'd like to point out that sometimes it feels strange to feel ok, because people aren't used to it. ...
  11. Jaimepsalm63
    The generic of Activa for Wal-Mart is gluten free. I do react to gluten so if it doesn't say gluten free I can't have it. My husband found it for me to help me get more probiotics in my system. We have 3 flavors here in Colorado Springs, Strawberry, blueberry, and raspberry. I love Great Value and how they label!!
  12. Jaimepsalm63
    Hey Coldnight, Well, I have gastroparesis (as well as Celiac) so I have the opposite problem in some ways and the same in others. Food doesn't get digested (same), but it sits in my stomach (opposite). I can't have raw veggies (same), because they'll cause a bezoar (like a hairball for a cat) in my stomach and get stuck there (opposite), but I also can...
  13. Jaimepsalm63
    Wonka, Glad to hear you're better. I hope my post wasn't taken in such a manner that you thought I was talking to you....I wasn't :-) I found that some people have a convection oven (has a fan) and they don't understand that the fan in the convection oven is spreading the gluten from the past onto the food of the present. My husband was sweet enough...
  14. Jaimepsalm63
    For anyone not getting better with the gluten free diet....TALK WITH YOUR DOCTOR! The SCD is NOT for everyone. It is some people's opinion on this site and just that....their experiences and opinions. It is not healthy for every person on here. It may do for some, but not others. See your doctor and talk to him/her about the Specific Carb Diet...
  15. Jaimepsalm63
    Yoekie, I would see a good gastro doc. I know mine saved my life, literally, more than once. As for the SCD idea that's been going around...talk to your doctor before starting something like this. I talked to my gastro doc last month and he said it's not a good thing to limit certain foods out of my diet when I didn't need to. The gluten was a given...
  16. Jaimepsalm63
    I used to decorate cakes for a living. Yes Fondant is gluten free. It also is a "learned" thing to eat. I think it's too sweet and can't stand the taste. It also hardens within the hour. I'm a butter cream person myself, but you have to make sure that there is nothing added to the butter cream flavor wise that is a grain based flavoring. Make sure...
  17. Jaimepsalm63
    A+ Biopsy dx Irish/English/Scottish/Welsh decent
  18. Jaimepsalm63
    With the gluten free kitchen, my GI doc told me to watch out for the oven if it's a convection oven. He said the fan will collect gluten and then spread it to my food. We were fortunate enough to afford a double oven....my husband insisted. Every item that goes into a convection oven (not conventional) needs to be covered FULLY to prevent the gluten in...
  19. Jaimepsalm63
    1. Ok, I have to agree that Ener-g white bread is made for the float things that you throw in the pool for the kids to swim after or for the dog as frisbees. I pray the squirrels won't die on my property...or worse yet run after me and bite me with their little rabid lips when they take a bite. (1 loaf bought and used for other things than eating....bleah...
  20. Jaimepsalm63
    It stinks that your doc did that to you!! Here are my two cents though with an official dx. My husband isn't able to get life insurance for me now because of the official dx. On the flip side, (even with a dx) I have people telling me they don't believe me and think I'm bringing a lot of trouble (when I went on a church retreat in which I was one...
  21. Jaimepsalm63
    For those trying to keep up with the subject of difficulty swallowing, I have some news on my end at least. Maybe this can help someone else. I saw my awesome GI doc today and he is looking into Sjogren's syndrome. He said I have most of the symptoms of it. He is doing another EDG on the 23rd to make sure it's not an infection or problems with the throat...
  22. Jaimepsalm63
    This is a wonderful topic point. Thank you all for the suggestions you've put out there. In our house we have a variety of issues going on. My youngest son can't have dairy or mushrooms. Very simple. My oldest son can't have Corn, Soy, Oats, Garlic, Cauliflower, Tree Nuts, Coconut, or Legumes. At least he can have dairy. I can't have Gluten, Corn,...
  23. Jaimepsalm63
    Thanks for the info on the Vit C Angie!! I saw the price on the bacon and said to myself (gluten free products) and my son (who needs the nitrate free products) that the bacon will come 2x a year for Christmas morning and Easter Morning.....probably better for us anyway. My husband and other two kids weren't so happy though, oh well.
  24. Jaimepsalm63
    I have the same problem and it's getting worse. I'm seeing my GI doc on Saturday and am going to talk to him more about it. We already know the foods I have to stay away from, but when it gets to the point of having problems with something as simple as even distilled water.....um, yea. I saw him a few months ago and told him about it. He threw...
  25. Jaimepsalm63
    I've decided to do plain/lightly salted rice cakes instead of the gluten free bread for "sandwiches" or using them instead of popcorn. (One of my sons can't have corn, soy, or oats while another son can't have dairy...I'm the one who has to be gluten free and can't digest corn at all.) They come in a variety of flavors too if you're looking for that. ...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.