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ek327

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Everything posted by ek327

  1. ek327
    alot of great ideas! We are entering our 2nd year of school with celiac disease. DD is 8. She usually takes lunch meat and cheese rolled up together. often will take pretzels or chips of some sort (she loves TINGS). she often takes carrots and ranch (wishbone). string cheese and yogurt are good. she recently has begun eating cottage cheese as well...
  2. ek327
    Make the "whole foods" run in Columbus, it will be worth it!!!. They have their own dedicated gluten free bakehouse, and many of their items will be in the freezer. Almond Scones are especially yummy. Cookbook: Carol Fenster's "1000 Gluten Free recipes".
  3. ek327
    I have a couple of suggestions in the Twin Cities. Dr. Karen Krenik is an internal medicine specialist in Edina--not sure of the group. She is very aware of the celiac disease. I work at Allina Clinic in Champlin--I am an Nurse Practitioner in family practice, and have DH (gluten free x 6.5 years), my daughter has celiac (8 yo--diagnosed one year ago...
  4. ek327
    OH--and Gluten free pantry's truffle brownie mix, Pamela's chocolate cake mix...
  5. ek327
    My daughter just turned 8, and was diagnosed last June. It does get easier. Last summer, we had a crisis at the grocery store--she cried over the donuts. We made donuts at home the next day!! It is trial and error, but things get easier. I would recommend the book "No more Cupcakes and Tummyaches" by Jax Peters Lowel--a great story for kids with...
  6. ek327
    Remember that 5 % of kids are at the 5th percentile. Some kids are small. Has she always been at the 5th percentile, or has she lost ground in growth? What size are you and her father? Sometimes, small kids are just small kids. Also, she should be off the bottle by now. I would try switching her to a cup, and not giving it between meals. the extra...
  7. ek327
    alopecia can be autoimmune--as we all know, if you have one autoimmune, you may have another. (ie. celiac, type 1 Diabetes, rheumatoid arthritis, lupus, etc). I have a small area noted in the past couple of months of alopecia. I also know someone recently diagnosed with celiac disease who has had alopecia since childhood. can definately be related. Interestingly...
  8. ek327
    try the Pamela's pancake and baking mix chocolate chip cookes. if the batter is a little gooey, add more flour mix. if they are really gooey and spread out, you usually need more flour.
  9. ek327
    I have a 2nd grader who is doing great in school. She was diagnosed this summer (June) by biopsy after positive antibodies in the spring (late april). At the beginning of the school year, I took in a handout for teachers on celiac disease. I worked with the administration of the school to allow Emma to bring her own snacks (the school has a pre-set list...
  10. ek327
    It is also great for chicken wings --or chicken. I mix olive oil and garlic--finely minced, throw in some mesquite flour for a wet rub--put it on the chicken and bake. Yummy. also great addition to pancakes or ch. chip cookes.
  11. ek327
    We made a phenomenal chicken last night. we used cornstarch--with lots of kosher salt and fresh ground pepper, then an egg-wash, then "breadcrumbs". I use either ener-g crackers or craklebread for the bread crubs--last night, it was a combination of both. We did fry it in a combination of olive oil and butter--can also use bacon drippings. crispy, and...
  12. ek327
    Thank you sbj for adding some objectivity, and common sense.
  13. ek327
    My daughter, 7, had the biopsy this summer after a very mild positive ttg and endomysial antibody. With my history of DH, I knew with the positive antibodies, that she had celiac. I opted to have the endoscopy done for definative diagnosis. Until antibodies alone are accepted as diagnostic, getting the actual diagnosis the standard way is a good idea....
  14. ek327
    A knowledgeable dietician should not only be able to help you with what you can and can't eat, but what you should eat--to help with the history of malabsorption, and to find sources of micronutrients found in wheat, but not in rice, potato, tapioca starches/flours. There is much more to eating right for a person with celiac than to "not eat gluten".
  15. ek327
    My daughter will be eight next month. she was diagnosed this summer. her favorite breakfasts: cooqi bread/toast "Ellie's Bread" with Nutella. post cocoa pebbles glutino english muffins with poached egg and cheese sausage or bacon sometimes freezer waffles pamela's are favorite pancakes for sure yogurt and fruit. soft polenta (corn grits) with...
  16. ek327

    ARCHIVED New Gp In Minnapolis Needed

    ek327 replied to kbtoyssni's topic in Doctors

    I have a couple of suggestions in the Twin Cities. Dr. Karen Krenik is an internal medicine specialist in Edina--not sure of the group. She is very aware of the celiac disease. I work at Allina Clinic in Champlin--I am an NP in family practice, and have DH, my daughter has celiac (7 yo). I work in Family Practice. We also have a pediatrician at our...
  17. ek327
    It was fun for my daughter. the food was pretty mediocre in general, and the servers and staff were way less knowledgeable about gluten free. I felt very much more on my own there than anywhere else. I was glad that I was the only gluten free one. (My daugher was not diagnosed yet). Remember, though, that norwegian food in general is pretty blah. (I...
  18. ek327
    My daughter was diagnosed this summer--with an endoscopy after postivie blood tests. she has adjusted beautifully. her teacher is great. I googled gluten free, teacher and found a really nice information sheet to print off for her. Luckily, I have been gluten-free for 4 1/2 years, so it wasn't completely new for her. cooqi makes a bread called Ellies...
  19. ek327
    I also haven't done DF, but had an excellent gluten-free experience. If you have kids, I recommend the Crystal Palace for breakfast/bruch buffet. the chef came out and took me on a tour of the buffet, pointing out safe and unsafe foots. made me a waffle--gluten-free. really knowledgable and helpful. (pooh characters make the rounds during the meals-...
  20. ek327
    Hi, I'm going to a conference in April in the Napa Valley. I'm looking especially in St Helena, Calistoga, Yountsville, and Rutherford. (conference is at the CIA). I am looking for a good B and B or Inn of some sort that can accomodate gluten-free. I also will have evenings free for dinner. would love suggestions. thanks!!
  21. ek327
    I would find someone new. I am a nurse practitioner, and I do check online regarding gluten free status of meds that I am prescribing for my celiac patients. I also note that on the prescription so that the pharmacy is aware if they are filling it with a generic equivalent. Maybe it helps that my daughter and I are celiac, and I am aware...
  22. ek327
    quinoi or teff work well, but usually in combination with something like sorghum or tapioca or potato. they have really good protein and micronutrient content--much better than rice, actually. white bean flour is nice. (I find the garbonzo or fava flours taste is too strong). if you try coconut flour-do NOT use more than 5- 10% of total flour in your...
  23. ek327
    I have to disagree with the previous writers. I think the biopsy is the best way to go. primarily to determine if there is damage, and what extent. My 7 year old had it, and it really wasn't so bad. she went to sleep, and when she woke up, it was done and we had our answer. In addition, down the road, there will be no question as to the diagnosis....
  24. ek327
    Deerfield bakery in Deerfield illinois does wonderful gluten free cakes. deerfieldbakery.com, I believe. you can also check with bittersweet bakery in Eagan, mn. glutenfreecreations.com also sells cake blanks (cakes without the icing that you can frost/decorate yourself. (though if you are going to do that, you might as well back the cakes, I think...
  25. ek327
    you can actually buy cupcake pans that are made to make shapes with separate cakes at Target, etc. they are really cute.
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