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pewpewlasers

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Latest Celiac Disease News & Research:

Everything posted by pewpewlasers

  1. pewpewlasers
    You'll need an endoscopy and/or blood test to detect celiac. They'll do biopsies and look for damage. Pretty sure they cannot see celiac with a colonoscopy.
  2. pewpewlasers
    The doctor doesn't know that I can't eat or drink. But they fit me in as soon as they could. I haven't been able to eat anything since Saturday. That was the last real meal I had, and it was gluten free pizza. I paid for it so bad afterwards too. The pain was terrible. Since Saturday I've had one banana, a few bites of rice here and there and yesterday just...
  3. pewpewlasers
    Got my insurance back today! Good thing too. Got my gastro appointment scheduled for Thursday. The biopsy from my endoscopy three weeks ago came back abnormal. No signs of celiac (no shocker there, I've been on a gluten free diet for so long now). I have a hiatal hernia though. I wonder if he'll put me on a gluten challenge now or just do the colonoscopy...
  4. pewpewlasers
    The only meds I got was the one that made me sleep during the procedure and then liquid gas meds for after. I had terrible gas pains after the procedure that the gas drops did not help. I've been thinking of seeing an allergist to help and find what foods are bothering me because it seems to vary. Some foods just give me headaches, some make my stomach feel...
  5. pewpewlasers
    No, but the er doc I saw said that I should try it. I think it's a good idea. I have a problem with eating large meals. (Larger than a few bites at a time) I've had a huge loss of appetite recently, more so after I had the endoscopy. Maybe I will start tomorrow and see how it goes.
  6. pewpewlasers
    The problem is, is that after being gluten free for over a year I started having symptoms unrelated to eating gluten. I know when I've been glutened because it hurts in my stomach. Now I have really bad pains in my lower abdominal area and other unpleasant symptoms. My GI doc did the endoscopy to check to see if there was any damage but I told him I have...
  7. pewpewlasers
    I saw the ER doc last night after calling my Mom crying that I had an "accident" for the first time. Boy, I am still embaressed about that. She insisted that I go to the hospital because of my other symptoms and that my insurance is giving me a hard time and I'm in the process of getting it reinstated. So...that means that I can't see the GI right now. I...
  8. pewpewlasers
    It really depends on the person and the food. There have been times that I knew right after I ate that I was glutened because I would break out in a sweat, feel like passing out, and having to run to the bathroom. Other times it has taken a couple hours and sometimes the symptoms are more severe and they vary anything from a migraine to feeling like my stomach...
  9. pewpewlasers
    I would ask your doctor about an endoscopy. Have they told you why they haven't done one yet to rule out celiac?
  10. pewpewlasers
    Everything went great. I even got pictures. The doc didn't talk much to me afterwards because I was pretty out of it. All I remember is him saying that everything looked normal except I had some sort of something that isn't working correctly. Maybe some sort of valve that isn't closing like it's supposed to or something. I wish I wasn't out of it so I...
  11. pewpewlasers
    That sounds like I lot of what I went through at his age but had no idea what was causing it. I was really spacey, like being in a constant brain fog. I had insomnia and I also had periods of sleep walking and talking. I remember a time when I was in a treatment center for severe depression when I was about 13-14 and I had the worst case of sleep walking...
  12. pewpewlasers
    My first endoscopy is tomorrow morning. My GI doc wants one even though I have been gluten free for over a year. I've had new symptoms I have never had before that seem to be unrelated to celiac. I'm a little nervous, I think just because any medical procedure when they put you to sleep is a little nerve wracking. One part of me hopes he finds something...
  13. pewpewlasers
    I think I know what kind you are talking about. All the gluten free bread that is premade taste like crap too me. It tastes terrible and it's too expensive. However, I made "Gluten Free Pantry Favorite Sandwich Bread Mix" in my bread machine and it was really good! It came out moist and soft, just perfect for sandwiches. This is the only gluten free bread...
  14. pewpewlasers
    If you have to, see another doctor. They should know you need to be eating gluten in order to see damage from having celiac disease. They shouldn't completely rule it out because of the results of your endoscopy after being gluten free for three years. I just saw a new GI and I am having my endoscopy this upcoming Tuesday. However, I have been gluten free...
  15. pewpewlasers
    I am so surprised how uninformed some doctors are. I saw a new pcp and she ordered a celiac blood panel and I haven't been eating gluten for over a year. I told her they wouldn't find anything because I need to be eating gluten.....yet she still ordered the test. I was pretty confused about that and I had to tell her about how the blood test worked.
  16. pewpewlasers
    Has anyone ever been awake to watch on the screen? I'm getting one on the 13th and I am curious to see what it looks like in there. I heard some people don't get completely knocked out and they can watch, but haven't had anyone say so personally.
  17. pewpewlasers
    I understand where you are coming from. When I was a teenager and even younger and I had severe digestive and stomach problems; no one listened. Doctors seem so quick to dismiss what you have to say about your body. You are the only one who knows how you are feeling! I think it's a good idea to get it checked out. It is better to be aware early and...
  18. pewpewlasers
    Sometimes they add gluten to processed chicked or it is marinated. I had that problem with chicken nachos once. The waitress went through so much trouble to make it gluten free and it made me sick for a week. I'm pretty sure it was the chicken.
  19. pewpewlasers
    There are a lot of ceaser dressings that contain gluten. Normally, I stick to ones that come in the packet with the ingredients listed right there or stay away. Dressings are tricky I have found. Best to be safe than sorry!
  20. pewpewlasers
    Health care professionals are sometimes terrible. I had one call me saying I might have cancer after a routine screening. Turned out it was nothing and I still have no idea why they said that to me. You know your body the best and if you feel like you need a test done you ask for it. Doctors can look past so many things and just want to sign prescriptons...
  21. pewpewlasers
    This is useful to hear. I just saw a new gastro today and he wants to scope me even though I have been gluten free for over a year.
  22. pewpewlasers
    I saw the gastro today and he wants an endoscopy without a gluten challenge. It seems kind of pointless to me to go looking for damage from gluten if I have been gluten free for over a year. He said we will just do the endoscopy and take it from there. He said if it is normal he might consider doing another one but do a gluten challenge. He said he doesn...
  23. pewpewlasers
    It really varies from person to person. Some people feel better immediately, others it takes longer. For me it took a month for all my symptoms to go away.
  24. pewpewlasers
    It is possible to not have symptoms after ingesting gluten. I don't know myself because any little bit and I'm sick for a week. However, my Mom occasionally "cheats" and won't get sick. I wouldn't advise eating gluten because it can cause damage.
  25. pewpewlasers
    Welcome! I will tell you from experience that switching to a gluten free diet before a confirmed dx was a bad choice in my case. My Mother got diagnosed and she suggested that I try going gluten free. Within a month all my symptoms were gone. That was good! However, I still occasionally have some problems and have had severe problems that seem to be unrelated...
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