mslee

Well after 30 years of symptoms & 16 years of countless Doctors & labs I can tell you pin pointing which autoimmune condition you are dealing with is no easy task. About 9 years ago they dxed me with SLE Lupus, gave me treatments that didn't work for me...I just kept getting sicker & sicker. 2 Years ago they found celiac & I can't get a straight...

Hi There! I wanted to let you know you are not alone, I was dxed with celiac in July of '08 I have been gluten free ever since. A couple months before my celiac dx they thought I had autoimmune hep. my labs had shown it for almost a year. So they ordered a liver biopsy, & they said the results really surprised them....my liver was very healthy with only...

thank you for the replies! Nasalady have you been through treatment for lyme? amcken3, I hope you are doing ok! & have been able to cut gluten out of your diet. I have been fighting with the yeast issue but have come to the conclusion healing my gut is the first step to getting rid of that...the diets did help but only went so far because of all...

Hi Nasalady! I think I have it, I have a dx of sle lupus & fibro as well as hashi's & celiac. They have checked out my heart a couple times & my lungs, no cause of pain found so we (Drs & I ) are guessing inflammation somewhere in the chest..which can be a symptom of lupus or fibro. didn't know it could be a symptom of celiac. good...

Yes they are both autoimmune, I have sle lupus & have been trying to understand the connection. After talking to a few Dr & other with these medical conditions it seems the when you have one autoimmune condition you are likely to have more than one. A couple Drs I saw said it's possible the untreated celiac might have caused my lupus. I get another...

I have both, & sle lupus dx 97 2008 told I've had hashimoto's antibodies since 2001 (no treatment until recently) 2008 celiac dx I never really had typical hypothyroid symptoms other than fatigue, cold body, & dry skin. They found abnormal labs & I have been on levothyroxine for 4 months but haven't noticed any huge difference in the way...

Hello, I was dxed with lupus & then with celiac 8 years later. Many symptoms have gone away, but some have also changed... Like I feel more muscle pain now than before going gluten-free, also a bunch of new food sensitivities. I have been strictly gluten-free/soy free for almost 2 years & mostly dairy free as well. My ANA has stayed the same. ...

Hi Guys! I don't know if you remember me, but I haven't been around for a while either...but I have a bunch of autoimmune stuff going on too. I posted about Lupus, I have been wanting to get back to you but had an insurance mix up & still waiting to see new Rheumy to get another opinion about lupus & celiac. See him in a little over a week....

catching up on the links! thank you they are helpful & interesting! I found this one (some up dated info on zonulins) while looking further into it.., Open Original Shared Link

Just now getting to this post...lots of helpful info here, Thank You! I'm rusty on the labs, glad you got some answers. Yes as for the 11 dx criteria, it counts if you have had the symptoms in the past. I never thought I had the malar rash (do have sle lpus), because the it was never itchy or raised...looked like rosacea. But recently it looks...

Hi, Just wanted to let ya know I'm still here, the end of the year is always crazy! I have some apts coming up with highly recommended Dr.s so I am hoping for some more info soon. Have been discouraged by the whole health care bill thing...hoping for the best. I am lucky I have decent insurance...just not any options for one covering an LLMD. ...

thank you for the replies! I have had a busy weekend & have not had a chance to read up on all the links but will for sure! Nasalady, I too have had some lyme labs come back positive recently...but due to insurance issues I may not be able to get treatment for a while. I'm wondering if the lyme could be the root. I will get back to you t his...

Hi, Just wondering if there are others out there who have lupus (I do), or who were diagnosed with lupus before celiac & had it turn out to be "only" celiac. I am surprised how little info there is here on the subject. I have had 1 Rheumatologist say it is common to have both & another say it is very uncommon. If you have any info I would...

oh, wanted to add I had to play with elimination diets to pin point problem foods. I think there was such severe damage that my only chance to get better was to cut out problem foods. It will be a couple months until I have labs run again (for lupus/sjogrens/raynauds/liver etc) but will let ya know if there are changes.

Hi Chasbari, I'm guessing with sjogrens your ana remains positive? I'm not sure if I read it on the LFA site, or in one of the many books I read trying to understand all this...but I know lots of people with lupus do claim florescent lights bother them. Sun exposure is a known trigger of lupus. They always said they don't know what causes lupus...