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mosaicmom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mosaicmom

  1. mosaicmom
    I have a couple of links I wanted to share but I need to warn anyone who reads them that they have political undertones. Even so, this effects people who choose any alternative medications to help heal the body, even supplementation... so it applies here. Ron Paul originally introduced a bill and info can be found here: Open Original Shared Link And while...
  2. mosaicmom
    I'm hoping that results will be Celiac's instead of IBD due to the constipation. Outlook regarding medication is not as bleak, that's for sure! Yes, chronic constipation and the issues that arise from such is what we're currently experiencing. Don't know from what yet.
  3. mosaicmom
    Ravenwood... If the bumps are as I described, which aren't blistered, can a biopsy even be done? Do they just scrape?
  4. mosaicmom
    Do stomach cramps come only because gluten is ingested, and only a reaction to gluten OR does gluten do enough damage to cause other foods to cause pain in the digestive process? This would be pre-diagnostic... so the damage could be there. For instance, I send my daughter with crushed fruit but the acidity in the fruit causes stomach burning b/c of...
  5. mosaicmom
    Thank you for your reply. It's a web I'm trying to untangle from... all the misinformation for almost 17 yrs. I'm so frustrated. I can't say that hers turn purple. What's funny is, I get like... one bump occasionally that ends up turning purple... but I'm not the one being tested and it surely isn't enough to go in there. I'm going to cling to the one time...
  6. mosaicmom
    My daughter has had DH once- perhaps twice (maybe as a baby in conjunction with a stomach flu- on her diaper area), most recent, 4 years ago, providing what she has now isn't DH. Like I said, it has shown up more in a classic sense without a doubt- 4 yrs ago but I'm having a hard time differentiating what is on her skin now. I thought of taking a picture...
  7. mosaicmom

    ARCHIVED Abc 7 News

    mosaicmom replied to babinsky's topic in Publications & Publicity

    I'm so glad someone used the word "glass". This is similar to what my daughter has said in describing her pain, glass, or blades, but it isn't in swallowing, it's usually by the time it's trying to digest.
  8. mosaicmom
    Type in keywords "The Celiac Brain". There is so much out there about Celiac and behavioral problems. It's what helped the nurse practitioner (in retrospect) to immediately look for Celiacs (mental health issue). Gluten free is big in the Autism and ADHD circuits. Start typing in key words, and use learning disability (adhd is one) but if you apply the information...
  9. mosaicmom
    I'm definitely going to come back and post the results of the Celiac panel they ran on my daughter a month ago when I can get my hands on the test results (I didn't know they ran one, came across the paperwork, and was told it came back negative- despite not having known they did one in the first place) But to the OP (original poster) and to anyone else...
  10. mosaicmom
    New here too and your story is our story- my daughter s 17, and they believe it's Crohn's ALTHOUGH before being told to stay on gluten til the upper and lower scopes, I did put her immediately on a gluten free diet for 10 days and not only did we (and WE is a huge statement for a kid who fights me on every thought I have) see a marked improvement in the pain...
  11. mosaicmom
    I dont know if this sounds disgusting to others or not, but it makes a good paste, and could be faked for white pizza in place of rigotta. Mix in food processor chick peas and garlic to a paste, like hummus. Spread on pizza crust. I know it's not tangy, but it's a good paste.
  12. mosaicmom
    I visited my deli the other day and noticed the Boars Head sign that stated all meats and condiments were Gluten Free. Just thought I'd pass that along.
  13. mosaicmom
    I didn't look at the date of this post, but my daughter 17- needs to read this. All but asbergers.adhd is her.
  14. mosaicmom
    AliB Yes, he was a wise man. Now I know who I'm quoting when I told my husband to shut up and drink the aloe vera juice we had... "death begins in the gut", I kept telling him. He felt better while I had him on it. He's not the on with C issues that I can tell so far.
  15. mosaicmom
    I've been using it for about 2 weeks also. My key words were candida and crohns... what I had to go on at first. We use Spectrum organic ev coconut oil, lots of garlic, quercetin (blend it in food processor with coco oil), and a few other items that are thought to break down the tough exterior of the yeast cell wall.
  16. mosaicmom
    I agree, absolutely. To justify a bit, I am dealing with an inadequate military health system that has failed me in this process for over 3 years- going on 4 with a diagnosis. We ran treating allergies here, mental health over at psychiatry, GI many times for no real outcome except for "wait and see", no one listened. I don't trust them. I'm not being overly...
  17. mosaicmom
    Dd was dx's 12 months ago with BP1 as you have (original poster). I am blessed to have a mom who is anti meds and pro diet nutrition, and countless friends who were drilling it into my head for years about their problems with gluten and yeast. Didn't click at all. No one could think diet alone could cause OCD, PTSD, personality problems out the wazoo, BP...
  18. mosaicmom
    Have you thought to try a berry superfood instead? They make them and they're not bad. Usually out of a base of berries and grapes but the real superfoods are goji, noni, mangosteen, and lastly (but the biggest punch) acai berry. There is no other antioxidant food higher in the ORAC count than ACAI, but in order to sell in the US, it is pasteurized... don...
  19. mosaicmom
    Reading about lymph system in GI tract, but we're not there yet with knowing. Very concerning to see dd has had lymph node in each arm swollen and painful over the last 2-3 months. She never told me, but she's had one swollen near her groin. My worry is b/c of the occurrence of lymphoma with Celiac's. Could it be something adrenal related? How would...
  20. mosaicmom
    She was on a vitamin regimen prior to this being looked at. I will have to try and force her back into it. She was dx'd with Bipolar 1, which is worse than 2. She also has anxiety like no other. My husband has ptsd and anxiety- preexisting, but also before going to Iraq- so not totally a gluten issue for him. She- dd- believes it's schizophrenia whereas...
  21. mosaicmom
    Aside from a multi and other specifics which I can't get my kid to take regularly... I try: slippery elm (go to Godsherbs.com and it's the stomach and bowel formula #2, I believe) Pumpkin Fish oil Quercetin Coconut oil (extra virgin organic) Fresh garlic Probiotics Prebiotics and some others
  22. mosaicmom
    If you've received a mental health diagnosis in the past, one that you could agree with in some ways and others around you might've agreed... Did they go away upon gluten-free diet for significant periods of time? Or does gluten damage receptors in the brain that cause the disease and no turning back? Also have read selenium deficiencies in those with...
  23. mosaicmom
    There's someone out there who's blog I'd love to have access to that is now gluten free, and she's an avid baker. If she were on here, she'd be checking this section out. I don't want to give her name directly (or internet handle), but it was a reference to a Bible character- screenname. She used to post on a Christian forum, but have not seen her around...
  24. mosaicmom
    Sure, give me a day or so. I wouldn't even know what to ask for. I guess I'll lurk around info relating to Hashimoto's. Thank you for the reference point in which to start. I'm taking notes.
  25. mosaicmom
    Ravenwood, I'm most interested in your sig line. I hope I'm not out of line but I'd like you ask you some questions. If they're personal, please pm me if you'd like to answer but find this is not appropriate. I'm finding this to be an enormous help. Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002 Misdiagnoses for ...
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