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sugarsue

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Everything posted by sugarsue

  1. sugarsue
    I wanted to mention, if you look for a new doctor, check out a Dan! doctor. They specialize in children with autism, but this means that they are familiar with conditions that go along with autism, which include problems with the gut and they are huge supporters of the gluten free diet! Our pedi is a Dan! doctor and he has given us great support and care...
  2. sugarsue

    ARCHIVED Eczema

    sugarsue replied to sugarsue's topic in Dermatitis Herpetiformis

    Thanks you two! My dd is allergic to dairy and I have been letting her have some so I have cut that out as of 2 days ago but she didn't eat too much since she noticed a difference if she ate it every day or large amounts. She used to take fish oil and we had stopped so I'm starting that back up again too. I think we cut that out around the time she went...
  3. sugarsue

    ARCHIVED Eczema

    sugarsue posted a topic in Dermatitis Herpetiformis

    DD (age7) has molluscum which I've posted about before. She went on a gluten free trial even though her celiac panel came back negative. Her sister is highly gluten intolerant. Once she went gluten free, her molluscum started erupting and resolving itself. But I learned yesterday that the other skin issue she is having is eczema. The dermatologist...
  4. sugarsue
    Thanks to those who helped with the molluscum issue. The verdict today is that, yes she does still have molluscum but it is resolving itself nicely (I think from going gluten free!) but that it appears she has very bad exzema too. He said if it were for me, he'd do the skin biopsy and test for DH too but since she's only 7 it's not worth the test right...
  5. sugarsue
    Hi! Sounds like you are in the right place and it sounds like you are a great mom and noticing that something is not right with your child! Mom's know! My daughter used to spit up her entire bottle when she was a baby. I got so I was scared to feed her because the entire thing would come up every time. The doctor's said it was fine but I knew something...
  6. sugarsue
    When they itch really bad, I put benadryl gel and that calms the itch to get me through it. Taking allergy meds like zyrtec helps some but not enough to keep it totally away. My Dad claims to have itchy armpits too but he's not open to trying to remove wheat. Not sure if it's realted but sounds likely. I think the question of male v.s female is an interesting...
  7. sugarsue
    I am allergic to wheat. When I eat wheat, my arm pits itch really bad and if I scratch them, they get a huge welt so I can't scratch!! The itch is so bad it keeps me awake at night. Other than that, it only adds to my overall allergic load to all my other seasonal allergies. My seasonal allergies aren't as bad if I don't eat wheat. I stay away from it...
  8. sugarsue
    Hello! Yes, she has had LOADS of antibiotics in the past with chronic ear infections, tonsilitis, etc. She has chronic candida now from it and we are working on her yeast problem. I know she does eat too much sugar and carbs. I am working on cleaning up her diet by removing artificial dyes which she is very sensitive to and the gluten but I have not cut...
  9. sugarsue
  10. sugarsue
    DD7 has a bad case of molluscum. She has tested negative for any celiac or gluten intolerance or wheat allergy, but I could see some possible behavor improvements when she went gluten free so we decided to do a trial run. Since then, she feels a lot better, is a lot less angry. But the molluscum has spread all over her body (pretty much everywhere except...
  11. sugarsue
    Thanks! The doc today says it's molluscum and did not perform a biopsy. So far, it seems she is negative to gluten intolerance and celiac. So how come I'm upset about that? I guess I was hoping this was the answer to all her issues and now I feel lost and back to square one. Now I need to decide whether to take her off gluten for a trial anyway since...
  12. sugarsue
    Even if she tests negative for celiac, she could still benefit from gluten free. My 7 yr old is very affected by artificial dyes, dairy (which she is allergic to) and now I suspect gluten. She is very active and shows signs of ADHD. She tested negative for celiac's. I plan on doing a gluten free trial on her. I have noticed when she has been wheat free...
  13. sugarsue
    Thanks for the reply! Turns out, a few days later after this post, my friend was babysitting and fed her Top Ramen. She's been super sick ever since so I forgot I was worried about her a few days before. It became very obvious to me what happens now when she's glutened (badly glutened anyway). I didn't think I'd ever forget what the gas and D smells...
  14. sugarsue
    If I take dd (7) to the dermatologist, does it matter if she goes gluten free before we go? Her celiac panel came back negative but her doc said to go gluten free and see if it helps her rash/bumps. She's got major adhd tendencies and can probably benefit from gluten free anyway. If I take her off gluten, do you think that will make a difference to the...
  15. sugarsue
    Thanks, yes, he meant for them to be for being gluten free and eating at Grandmas. I don't give her any gluten intentionally. If I ever have to put her back on, for further testing, he would not use them then. The doc that took her off had her go gluten free because he is a Dan! doctor and this is a protocol for his patients and she fit the bill and had...
  16. sugarsue
    We saw a new neurologist today and I am thrilled to finally find one who believes that dd's gluten intolerance is significant regarding her seizures. He may refer us to a GI doc if he feels it's important to find out if she has celiac or not. I'm worried about this since it would require that she go back on gluten but I'll worry about that later! He...
  17. sugarsue
    Thank you for the reply! We see her pedi on Tuesday and after that I'll look for a dermatologist if our pedi can't recommend one. We are lucky that we don't need a referral. Your post has me hopeful that maybe we will find the answer and worried that you are right and she will be diagnosed celiac.
  18. sugarsue
    Gluten and non-gluten waffle eaters at our house have agreed that these are the best waffles ever! I am sooooo happy! We are bringing the mix with us on our Holiday Vacation at the end of this month!
  19. sugarsue
    dd (6) has not been feeling well. She's lost 2 lbs so she's back under 40 lbs again. She is getting a mottled look on her cheeks, red and white. Her diarrhea has started back up and her impulsiveness is creeping back again. I don't know if she's just got a virus, if she's getting glutened or maybe having another food sensitivity. If your child (or...
  20. sugarsue
    Hi, my daughter is 6 and gluten intolerant. Our doctors do not believe from the results of her celiac panel that she has celiac, but the results came back as inconclusive. She's been gluten free for 3 months and improving in many areas. I'm finding that she is very sensitive to gluten and I always wonder about the celiac side of it. I wonder if I knew...
  21. sugarsue
    Hi! What are the other tests that can be run if you have low IGA? My dd's IGA result was 64 with the range of 33-235 mg/dl and I'm feeling like that may indicate that she does not produce enough IgA. Thanks!
  22. sugarsue
    Hi guys. I'm obsessed with trying to figure out what's going on so please forgive me..... We see my dd's (age7) Peditrician on Tuesday. He's already seen the "rash" on her legs and thinks it's molluscum. I'm thinking it's DH. She's had her celiac panel but I don't know the results yet. Her rash itches more in the morning and at night. It...
  23. sugarsue
    The tests my daughters got said on the lab results that the test assumes gluten is in the diet at the time of the test and out Pedi said don't cut out gluten until after the blood test. Also, I've heard people posting here that you need quite a lot of gluten before the test, but I don't know what that limit really is (like how much and for how long...
  24. sugarsue
    Neat question..... Pizza and Bakery for sure but also a totally gluten free grocery store. I would LOVE that, especially since my neighborhood does not have a health food store and I have to drive to the other side of town. Susan
  25. sugarsue
    Hi! I wanted to give you some HUGS because my dd gets behavior issues when she's on gluten too. She gets manic and hangs on you, puts her feet in your face and basically picks on everyone. I agree with the other poster about looking for hidden sources of gluten and also seeing if there is any way she could get gluten from other kids when unsupervised...
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