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brendab

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by brendab

  1. brendab
    I've already been to one GI doc and that was a flipping mess and I do not have a lot of time and I have even less money to mess around so getting it right the first time is imperative! I have every classic symptom of Celiacs disease with a few others on top of that and I do NOT want to be diagnosed with IBS again. I need the right diagnosis the first time...
  2. brendab
    I think it was the upper intestines. She said it wasn't Celiac's or Crohn's, not parasites either. She told me that it was damage done from food allergies. My confusion comes from going back to the allergist to find that he's outgrown his food allergies so how can the damage come from them? I've done the food journal and that is how I figured he...
  3. brendab
    We homeschool our children and for a variety of reasons, one being we have several food allergies with our children. It's rather easy, enjoyable and MANY, MANY, MANY homeschooling groups out there! OH my gosh, I wish people would STOP saying that we are not socialized! (gaaaaaaaaaaaaaaaah!) I have found that my kids have MORE social opportunities at home...
  4. brendab
    Ok, I have NO clue where to go with this and there isn't a Doctor out there that can figure this out for my little guy. Please help out a frustrated and worried mommy! I know I am not a member that posts a lot here so here is the short and skinny of our little guys history: * Allergy tested at 7 months-pos. for delayed allergies to wheat and dairy...
  5. brendab
    I'm in the exact same boat as you are except this is my 2 1/2 year old son! He has the intestinal damage and inflamation and physical symptoms with nasty GI outcomes that obviously points to gluten consumption but they won't give us the diagnosis! Gaah!
  6. brendab
    She said the blood test was negative (which I expected fully), inflamation and intestinal damage but not to the villi. I was about to post another update about going for a follow-up at the allergists office to see what foods we were missing that could be causing damage and the foods he tested positive for as a baby no longer exist; he grew out of them. Yay...
  7. brendab
    My little guy is almost 3 (In July) and he exhibited similar symptoms as a nursling so I went gluten-free for him. I again tried gluten in the form of barley baby cereal and got a HORRIBLE reaction from that. For him, so far he has not outgrown it if it is just a gluten sensitivity.
  8. brendab
    But that may cause irrepairable damage and that is what bugs me so much.
  9. brendab
    I just assumed she knew what she was talking about that it was not celiac since I know very little. He had a neg. blood test but I knew that was going to happen since we first purposefully introduced gluten only a few weeks prior to testing and the fact that most test neg. for it to begin with. She just said there was some damage due to food allergies....
  10. brendab
    Thank you for your opinion and thoughts, I just wish I had a diagnosis for sure.
  11. brendab
    We had him off of gluten for the most part since he was 7 months old. He had a positive allergy patch test to wheat so I was keeping him wheat free and shopping for groceries, if it said gluten free I knew it was also wheat free so I just went that route but didn't focus on the gluten free part. He still was having issues now and then and it hit me that...
  12. brendab
    I forgot about that, thanks for the reminder. Gotcha
  13. brendab
    He also cannot have dairy and when I weaned him at 13 months he started drinking coconut milk and then we switched to almond milk. He is 100% dairy free to this day. One of his tests were for parasites and that came up negative. He seems to not do well with soy and I am not hip on soy anyway so it's a non-issue. Anyway, he's dairy, gluten and banana...
  14. brendab
    She said is was food allergy related, not gluten. But isn't gluten a food too?
  15. brendab
    This is all true and damage is damage. I know that gluten is causing issues with him, he got into some this past week and he's had major GI issues for the past 3 days. ICK! He's gluten free MOST of the time when his siblings aren't leaving their remain around the kitchen.
  16. brendab
    I'm just one of those silly people who is overly honest. It's easier for people to take you seriously when you say you have a disease rather than a sensitivity. I cannot simply lie and say he has Celiac's Disease, it would eat me up inside. Also, we have a very small budget and buying a new toaster and cookware, etc would be super expensive and not doable...
  17. brendab
    I could but she's hard to get a hold of. It's easier to ask here. She's already said he doesn't have Celiac but I don't buy it just yet simply because of his age and the fact that he had only eaten gluten for maybe 2 months total. Each time he eats gluten he has nasty intestinal results so it makes me wonder. I also react badly to gluten too so I am next...
  18. brendab
    Ok, I have asked a similar question in the parenting forum because this is for my 2 year old boy but he had testing done a few months ago and it's nagging me to death! I am wondering if food allergies also cause intestinal damage or is this a gluten damage thing? I know he reacts to gluten intestinally (is that a word?) but he's not diagnosed celiac. I...
  19. brendab
    I'm leaning that way. Not only for him but me as well. I've been buying up books on Celiac disease and the two newest books I have been reading have a basic list of symptoms and I'd have to say that my symptoms cover at least 75% of their list. I think if I am positive to the testing then I want to push to have his diagnosis made the same. This is really...
  20. brendab
    I know it couldn't be accurate in his case simply because I was gluten free while nursing him and he had MOSTLY been gluten free up until he we made his appt. at 25 months of age; he was blood and stool tested at 27 months and had a biopsy/scope right after that. The doc said there was visible damage but not from Celiac but food allergy. I had suspected...
  21. brendab
    I thought I'd post some words and numbers because Dr's don't really have time to help you fully understand. stool testing was done, all say "normal" Calprotectin is <16 (<16-50 ug/g is normal range) No other numbers are given with any other fecal tests. blood testing: monocytes seems to be highlighted: results is 12 with a reference interval...
  22. brendab
    Stomach pain within 20 min. neurosymptoms soon afterwards and lasting for several days. Gas comes hours after exposure. I was told it was IBS, tested neg. for celiac.
  23. brendab
    The bananas in the poop reminded me of my son who once had a gluten reaction where he ate something with gluten in it along side of a banana and within a few hours he had a REALLY horrible movement with chunks of banana's in it. I have NEVER seen banana come out the other end before! I still suspect he is celiac even though they cannot prove it.
  24. brendab
    When my son turned two (and had been gluten free for the MOST part) I was trialing a few foods and gluten was one that I suspected to be an issue. He tested positive for delayed wheat allergy as well as dairy. So I gave him baby barley cereal and his next bowel movement was PURE black! The next few went from battleship gray to poo marbled with red blood...
  25. brendab
    I must chime in on breastfeeding and gluten! My 5th baby had food issues coming through my milk from about 4 months on and they were severe in the digestive tract. When I had even a small amount of gluten, a tiny taste of some scrumptious cookie, he would have a bowel movement that would literally burn his bum, leaving large blisters that would bleed and...
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