nutrifoodie

I live in NH too, but am not there currently because I am in CA at school, (coming back home in 4 days will the power be on?!) so I know where you are coming from.

If I were in your situation I would go to the grocery store and get nuts, dried fruit, lara bars, apples, oranges, canned pumpkin (can eat it right out of the can!), and other canned goods.

I would definitely buy some icecream and frozen goods for outside.

If you are near Philbricks Fresh Market, if they have power, they have an amazing salad bar.

Outbacks is always a good option, and I've brought my own bread to Subway in the past with success.

I hope this helps!

This is a great thread! While I have not delved too much into gluten-free packaged goods, here is what I've come up with..

Worst

Ener-g's Bread

Enjoy Life's Cinnamon Crunch Granola - it does make a good topping for baked bananas in a ramekin if you soak them in some rice/almond/coconut milk before hand

gluten-free graham crackers - don't remember what brand, but they had this funky after taste

Annie's mustard - I had 1 tsp and had to get rid of it!

Foods by George Blueberry Muffins - bad aftertaste, interesting texture that you can't "heat" up right

Best

Nana Cookies- I am so surprised most all of you hate them! I really enjoy them I admit, sometimes you do get a "bad batch" and they seem really dry, but break them off bit by bit (don't put a huge bit in your mouth) and dip them in almond/coconut/rice milk and they are amazing. PB goes well too! The lemon, chocolate, and ginger are my fav. The chocolate ones are more dry than the others, so I always inspect the package before I buy.

Mother's Peanut Butter and Cocoa bumpers - (wheat free, not gluten-free (oat flour))

Tinkyada pasta - of course!

Annie's Organic Ketchup - SOO amazing

Lara Bars

Panda Puffs (before I couldn't have soy)

Midel Gingersnaps (before I couldn't have soy)

Whole foods Morning Glory Muffins - soo tasty

Whole foods sourdough bread - from croutons to bread to french toast

Foods by George brownies - amazing

TURTLE MOUNTAIN COCONUT MILK ICECREAM!!!!!!

ooh, food

This is so interesting.. When I went gluten free in February.. all my periods after that were weird. I had a few heavy ones and light ones.. and then puttery ones, and then they just went away. I haven't had a normal period since March/April. I had breast tenderness/swelling before (after going gluten-free) and then it stopped, and then my periods stopped...

I also have subclinical hypothyroid that seemingly got worse quickly, and we are still figuring out the correct dosage. But I am starting to feel better. I need to get my periods back though, even though it's been glorious not having any

  Missouri Farmer said:

I’ve been on a gluten-free diet for 10 months and need more sources of carbohydrates. I’m a 24 year old guy and a beanpole at 6’1” and 150lbs.

I do well cooking simples meals of a meat, vegetable, and carb. I eat tons of quinoa and millet and a moderate amount of rice, teff, and amaranth. I’m allergic to potatoes so they’re out.

My question is what are some other sources of good carbs? I’m looking for foods to fill me up and add calories. After 10 months of eating quinoa sometimes three times a day I’m really in need of more variety.

Thanks for your input.

Have you tried getting some gluten free flours and baking? Or getting a girlfriend, sister, or mother to bake for you? That's an easy and delicious source of carbs right there! The possibilities for gluten free carby baked goodies is endless!

There are also wonderful pastas that are made from brown rice you can try, like Tinkyada!

Hope this helps

  gluten Tag said:

Yes, my rashes are definitely scarring me.

what do they look like?

  purple said:

Not grain free but you could experiment with this recipe. Be sure to read all the comments posted. I made 1/2 recipe the first time then I used sorghum and Bob's Red Mill after that, I haven't made them for awhile. My dd loved them.

Open Original Shared Link

I found this recipe a few weeks ago.. I really look forward to trying it!

Scroll down a little bit for the recipe.. It is very allergy friendly so many of us soy-free, dairy-free, etc. It might be able to be modified for SCD, as well.

Open Original Shared Link

I love chocolate too, but being allergic to soy means I can't have it. I buy the 100% cacoa chocolate bars. It is a little bitter to begin with, but you get used to it. I now thoroughly enjoy it. Dip it in peanut butter (Maranatha brand is the best) to get started. Eventually you will like it, and won't miss the sugary icky chocolate of past days..

Annie's dressings are hit or miss. Sometimes the label reads "White Distilled Vinegar from Corn or Rye" yet the bottle says "gluten free," so watch out. I really enjoyed the Roasted Garlic Vinagrette until I found out about the rye. Most of them look so good! However, they are expensive, and if you pick one out and don't like it.. then you just wasted a good couple of bucks. The Balsamic Vinaigrette made me gag each time, the Roasted Red Pepper Vinaigrette is ok (it was missing something..), the Lite Raspberry Vinaigrette was disgusting, but I do love their BBQ sauce. Anyways...

ANNIE'S ORGANIC KETCHUP IS AMAZING! EVERYONE GO TRY IT!

Lol.. I also really love all of the Brianna's.. most all of them are gluten free, except the ones with blatantly gluten ingredients in the ingredient line, just be sure to read them.

  Mother of Jibril said:

This is a tiny point, but yes... At first, iodine might help kick your thyroid up a notch, but as it burns out (from the continuing autoimmune attack) it doesn't have anything left to give! If your thyroid has been destroyed, no vitamin or mineral supplement is going to help.

  Quote

Finally, my doctor put me on Armour for subclinical hypothyroid. I feel MUCH better. You said you are really depressed but please remember- your thyroid problems can contribute to that.

Mother of Jibril- it is important to designate between autoimmune hypothyroidism, and just plain hypothyroidism. She could have the autoimmune kind (like Hashimotos) or she could have the hypothyroidism without autoimmune part.

I am on Armour too for subclinical hypothryoid. I have not yet reached the right dosage.. but I know where you are coming from, I GET EXTREMELY cold sometimes too. Your's sounds very extreme. Find a doctor, get your blood tests (and if if you don't come up) then GET ON ARMOUR. Having untreated hypothyroidism reeks HAVOC on your body.

Get fixed soon I hope this helps.

I'm 19, and in college.. so not "really" a teenager.

I'm from southern NH But I go to college is southern CA

my left pinkie is shorter than my right pinky

my left pinkie is shorter than the joint

my right pinking is slightly above the joint

but I voted based on the top of my pinky finger,

I was confused with the whole under the nail thing

now I am not sure if I did it right?

funny thing to think about.. probably isn't true

I fold my hands the recessive way.. my left thumb goes on top.

I want to start a whole chain of restaurants, coffee shops and bakeries that is allergy friendly.

Gluten free, soy free, dairy free, casein free, egg free, raw, vegan, vegetarian.

Gluten and soy would be my first priority... because not being able to have soy makes life REALLY hard. I thought gluten was hard...

  Mother of Jibril said:

I agree 100% with this! I don't assume that I have celiac and I don't assume that I don't have it

Incidentally, I did have a CBC (which showed elevated liver enzymes and borderline anemia), a metabolic panel, and I found out I have autoimmune hypothyroidism. I'd still like to get a bone scan... and be tested for Sjogren's antibodies. I'm seeing a new doctor in three weeks.

For me, the best thing about the genetic test is that it can indicate other disorders to watch out for. DQ8 is associated with type I diabetes and rheumatoid arthritis. DQ7 is associated with thyroid disorders, casein intolerance (which my son has), lupus, grass and pollen allergies, etc... It was absolutely worth the money I spent. It also tells me that both of my parents and both of my kids have at least one gluten-sensitive gene and might benefit from a gluten-free diet.

Sorry to get off on this tangent, nutrifoodie. What would you hope to gain from a genetic test? Obviously there are many factors to consider. If you're still eating gluten, please do get a blood test. That's the simplest way to get a diagnosis of celiac disease. Just remember that a negative result doesn't rule it out.

Yes! I have posted my health story here before, unfortunately no one responded, so I didn't get much response if people thought I could have Celiac. I do have skin issues, but it is not DH and so it can't be biopsied. The dermatologist said it was seborrehiac dermatitis.. gave me a steriod oil, sent me on my way.... I would continue typing but you can read the whole story about the problems I have if you read my previous topic posts.

I have much more problems than just skin. The Big C (constipation) is one of my biggest problems.

I am in college!

I am off gluten (as well as several other things), and have been since February.. (see my signature).

My dad has recently discovered his problems are linked to wheat as well, and I think he might have celiac disease because he has a rash very like DH and other symptoms. He is going to get gene tested.. so that will tell me if I have the RISK to develop and/or have Celiacs. I KNOW the gene testing does not diagnose me. Being off wheat for so long I cannot do the blood test for antibodies, and I have low sIgA (found this out (along other things) from a stool panel), so I wouldn't show up for the antibodies if I did a normal Celiac panel anyway (there was also a gliadin test in the stool panel that came up negative of course).

what do your scars look like after your DH flare up heals? I am trying to figure out if my dad and I have DH and it would be very helpful to see some responses..

I saw that one person here get's purplish scars after.. but what about you?

I have been trying to figure out what exactly gene testing is for Celiacs, and how to go about it...

but I am getting confusing responses. First I was under the impression that for gene testing they have to take blood, and then a wonderful lady here told me that it is a cheek cell swab that you freeze and ship. (for labs that only do ship away testing the cheek cells make sense, as we cannot draw our own blood without going to a lab) but now my mother is confused and making me doubt the whole cheek cell thing (I have been forwarding her stuff to read about Celiacs).

please clear up my confusion!!

I am away from home at school, so I went to a friends house (scary I know). I actually got to cook my own food, so I actually had Thanksgiving (which I wasn't expecting being so far away from home)!

-turkey drumstick and turkey breast with olive oil, salt, pepper in the oven

-romaine and spinach with BRIANNAS dresssing

-quinoa pumpkin mixture with maple syrup (cook quinoa.. mix in a can of pumpkin, and spices and maple syrup to taste)

-and a HUGE sweet potato, half done in the microwave, half done in the oven- stabbed and rubbed with a TINY bit of olive oil. It was the best sweet potato I've EVER had.

and my mom shipped me a pumpkin bread homemade

a successful gluten free thanksgiving!

  jdlogan88 said:

Hey I'm from Southern NH, go to school in Beverly, MA. Any of you from NH know of any natural food markets in the Salem or Manchester area? The closest Whole Foods is a half hour from me.

Yeah, I go to the Whole Foods in Andover usually. I go to a health food stores in Dover (Dover Natural Foods).. there are a few other places around, as well. Philbricks Fresh Market (very nice, very gourmet) in Portsmouth.. But honestly, Hannafords grocery store is amazing. It's what keeps me going. It's where I always shop for my normal groceries and special ones, and then I run to Whole Foods when the list gets long enough.

I would love Whole Foods to be only a half hour away.. I think they are building one in Nashua

Hope this helps...

  mltjq said:

Okay - I am still desperate for any type of help. So I am posting this out there for any and all ideas. Fortunately I have a super supportive doctor who'll run any type of test I want run.

RE: the Lyme.

The positive rocky mtn spotted fever was just barely positive. It's an antibody test and she thought it came back barely positive because I had once had MONO in my life. She thought if it had been true rmsf than it would have been much higher. Lyme came back neg both times but I realize that test is wacko like that. I have no tiredness though.

My most annoying thing is feeling like my immune system is on alert. Could MSG be doing this? I also am allergic to eggs, tree nuts, cheddar chz, milk. gluten which had been in my diet that entire time (along w/ MSG unknowingly).

Anyone else with MSG problems? harsh on your nerves?

When nerves are on alert things are louder, smellier, adrenaline hurts, cortisol upon waking hurts

Doc wants to do a liver cleanse?

Also thinking leaky gut (maybe MSG sneaking through...the concentration is higher than if I didn't have leaky gut?) because of so many vitamin deficiencies.

Copper was very deficient.

Trying to start SCD diet as well as going MSG free and am so frustrated I just cant figure out what to eat and then I start feeling hypoglycemic and panicky

I miss my healthy self I know it's only been 10 months and for many of you it's a life time and there are worse things to have. I am a mom of 3 little ones and they are worried about me because I am not the same.

MSG (monosodium glutamate) is a Nuerotoxin. Of course it causes problems! No one should have any amount of MSG. There are also 27 or so other 'names' that MSG hides under.. so be sure to educate yourself and READ those labels!

check out these links:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Hope this helps

Actually, in your situation (since you seem to be having a myriad of problems which you can't place to any specific thing) I would advise CUTTING OUT ALL processed foods. Eat from scratch

Don't feel so alone! We ALL struggle with this. For me, this year will be different. I am away from home in California at school. I won't have access to my pantry and my safe kitchen to cook things at. Instead of staying on campus and wallowing in my room (because of my food intolerances), I am going over to my friend Stephanie's for the break. I won't be able to eat anything that they make either. But I am going to buy some pans, and cook something for myself there. Something simple... a sweet pototo, quinoa and pumpkin, raw spinach on the side, and some turkey breast. She has lovingly offered up her home and her friendship, and it's been a blessing. She will take me to the store and make sure I have food to eat Most people deep down inside realize that food connects us, no matter what we can or cannot eat. So alert your friends of your intolerances, and bring your own meal If they give you a hard time, they are not worth having as friends. Zap it in the microwave and HAVE FUN! Food does not have to be the focus (something I struggle much with).. and especially at Thanksgiving, being with others and recognizing how much God has blessed us with, and what a wonderful country we live in (if you live in the USA) and how the Pilgrims got us here. Pack up that food, and ENJOY Turkey Day!

Usually when you do a colonoscopy they give you this special drink you are supposed to down. I makes you go, umm, alot of number two down there. Usually you have to go to the bathroom so much that you cannot be far away from a toilet. Most people that are doing prep for colonoscopies STAY home. However, it does not sound like you are doing this, which is odd, and you are only on 'clear liquids' criteria. (From my experience, which we won't get into) I would say GET OFF WORK, stay home, don't go far away from a toilet, drink all the liquids you can (it will make the procedure much more comfortable) to flush all the stuff out of your colon, AND REST! You are going to feel/become extremely weak and hungry.. that's just they way it is without food. It does get to the point though where it levels off and isn't soo bad as the first 12 hours or so. Good luck, get off work if you can. I hope someone else can help you more than I.

I am from the Seacoast/Lakes Region area of southern NH

I go to school in CA, hence, the location next to my name..

Read below.. Do any of you have suggestions for me? Which lab should I use for gene testing? Or does it really not matter?

For me, I found that wheat was a HUGE issue, and that not eating wheat cleared up my symptoms almost 100%.. but there have been other things going on that should be clearing up and aren't. My father recently learned he has a problem with wheat, his problems have not fully subsided either, worse than mine. This has made me think about Celiac's alot. I have been VERY strictly wheat free (alot of wheat free products/recipes are gluten free as well) since February and gluten free for almost 2 months now. I am IgA deficient, and stool testing for gliadin came up negative, after I had removed wheat from my diet for 3 weeks, no duh! Recently learning of my Dad's connection with wheat, and the genetic connections that Celiac has, I am going to get gene tests along with my Dad (he is adopted=no family history, which stinks).

thank you all!

I haven't read this whole thread, BUT I understand what people here are saying.

For me, I found that wheat was a HUGE issue, and that not eating wheat cleared up my symptoms almost 100%.. but there have been other things going on that should be clearing up and aren't. My father recently learned he has a problem with wheat, his problems have not fully subsided either, worse than mine. This has made me think about Celiac's alot. I have been VERY strictly wheat free (alot of wheat free products/recipes are gluten free as well) since February and gluten free for almost 2 months now. I am IgA deficient, and stool testing for gliadin came up negative, after I had removed wheat from my diet for 3 months, no duh! Recently learning of my Dad's connection with wheat, and the genetic connections that Celiac has, I am going to get gene tests along with my Dad (he is adopted=no family history, which stinks). Through being on these boards, I've learned about Enterolab and how they are reliable for the gene testing. That's the only reason why I would do Enterolab, only for the gene tests or for their stool casein, egg, gliadin etc, tests. I believe that it is best to have a FULL Celiac panel BEFORE you go gluten free to diagnose, following with the biopsy. Going gluten free before, screws up your chances of a reliable test. Correct me if I am wrong.

Do any of you have suggestions for me? Which lab should I use for gene testing? Or does it really not matter?

  angelschick said:

I assume if I have a positive response to the diet and the gene - I have my answer.

I've always assumed that too.. but is it true?

  Rachel--24 said:

Of all of the tests which were run the antigliadin IgG is least specific for Celiac Disease. This is why its important to know whether or not you are IgA deficient. If you are not producing sufficient IgA everything will come back negative even if you do have Celiac.

If it is determined that you are IgA deficient the more specific tests can be ordered which will check IgG antibodies rather than IgA.

that really makes me think.

years ago when I started having problems they did an IgG food allergy panel on me.. wheat came up, but not the highest possible in the range of "sensitivities" ... in February they did a whole GI panel, soy came up positive, but gluten/gliadin didn't. That test also told me I am VERY IgA defficient (stool). Could there be a connection there? I haven't been diagnosed with celiacs disease, although we just figured out that the problems my dad has been having is because of wheat, he's been wheat free ever since, but not gluten free like me (I am wheat free from a horrible head rash which I won't elaborate about here, and I've recently gone gluten free because I think it might help my other problems and I might be a Celiac). I am looking into gene testing, and need to convince my parents. If it isn't good, then we know my dad and I don't have Celiac..