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susan french

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by susan french

  1. DH is probably responsible for the skin issues. One can be gluten free and still have the DH outbreaks along with severe itching. Sounds like celiac because you never get over that. A competent dermatologist can take a skin biopsy of one of the lesions. Like you, I was diagnosed with lactose intolerance, irritable bowel and stress. Eventually, going...
  2. Has your dermatologist prescribed dapsone? It helps a lot but has the side effect of possible anemia. Also, for me, he prescribed Hydroxizine and then doxepin for bedtime. Dermatologists can prescribe a potent cream for relief. I've found that benedryl spray or cream (I use the Walmart itch cream) It is imperative to be gluten free!! Good luck.
  3. Hi! I have DH. I was diagnosed in 2010 and have been gluten free since then. I still have chronic itching and sometimes the lesions. I might have reactions to airborne, but my outbreaks tend to be when I'm stressed, which is most of the time. Or when I'm sick or my immune system is weakened. It's not as bad as when I was diagnosed. I use cream clotrimaozle...
  4. Dermatitis Herpetiformis can manifest itself in lesions anywhere, not just elbows and knees. I have it and although gluten free, I still have severe itching and little bumps that itch. I don't have the lesions any more, but itching can drive a person mad. the bumps can be on buttocks, shoulders, etc. Dapsone is the standard treatment, if you are not...
  5. Hi, I had DH, mild and looked exactly like your photos. Bumps and severe itching. Finally I got a blister like bump and the dermatologist did a biopsy which confirmed DH. A lot of time the dermatologist doesn't test for Dh because it's not real common, so ask him. After diagnosis, he sent me to a gastroenterologist to test for celiac, which was positive...
  6. I tried Dapsone when first diagnosed with DH, but I broke out in a rash. I also can't take sulfa and since this is like artificial sulfa, I couldn't use it. When I was completely gluten free, the blisters went away, but the skin itching and small bumps continue, and have for 7 years. I'm a diabetic so prednisone is no good. I take hydroxyzine, doxepin...
  7. Many times a certain percentage of us celiacs with DH are also sensitive to oats. Unfortnately, I am also sensitive to oats. My DH also flares up when stressed. I have avoided oats as well as wheat, barley and rye. I can't even use Aveeno products. I really miss oats.
  8. Get to a dermatologist and be checked again. My DH started off with itching, so severe that it was making me crazy. Until it got to the tiny, pimply-like blisters, he couldn't make a definitive diagnosis after a skin sample. It was DH. It can be treated with dapsone, a sulfa derivative. However, I was allergic to it. Meantime, I began studying celiac...
  9. I was diagnosed with DH in May of 2008. My symptoms started with severe itching, but no blisters; after a month the blisters started on the elbows and knees and lower back. The biopsy did indeed determine the DH. I have been gluten free about 8 months now, but the blisters and itching continued. I am allergic to dapsone. We've tried several remedies...
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