Country Girl

She is correct for the blood testing, but the endoscopy will still show the blunting of the villi.

We are traveling to Atlantis in May and I wondered if anyone has had any experience attempting to eat gluten free there? I got us a suite with a full kitchen so I could cook for my son. I don't want to buy food in another country though. I have called the airline and they said I could carry on food in cooler, as long as the size meets carry on standards...

I was doing the same thing a silver slipper and making food fun made all the difference. I stopped worrying about him eating a wide variety of foods and just started letting him eat foods he likes (within reason). If he wants chicken nuggets 2 days in a row, I let him have it. I think he reached the point where he was so used to not eating that it didn...

My son had a biopsy at 22 months. It wasn't a big deal at all. I don't see the point of blood test in a child this young, b/c they are often wrong. I also didn't want to make life long altering decisions with out sold proof. I was in the room with him through out the procedure. I held his hand while they gave him gas, then they drew blood. The endoscopy...

Research has shown that colons do not need cleansing when they are not impacted with feece (constipation). Enemas clean out the large bowel and gluten is absorbed in the small bowel so it would have no effect to reduce the side effects of being glutened. Understanding your frustration, but this will not alleviate the issue

Dr. Elizabeth Schaeffer with St. Vincent Hospital in Indianapolis is fabulous pediatric GI doctor. She even spent an half-hour on the phone with me on a Sunday b/c I had questions

My recommendation is to not blame the entire hospital if the failure was isolated to a single nurse. Give that nurses name in the complaint or the day and shift she worked so that she can be educated. I understand your frustration, but if when there are hundreds of employees it is more likely for the hospital system to educated one or two nurses as opposed...

I breastfeed my son who has celiac dx until he was 11 months old and I definetly think gluten passed through (Although at the time we did not know it, it is very apparent now that he has been gluten free). When he was exclusively breastfeed he had so many problems that have now gone away. For me, I enjoyed the bond of breastfeeding enough that I would have...

This is great link. I am a licensed health facility administrator and there are so many things going on when a patient admits that this will be helpful to nurses. When a patient is able to provide basic helpful information to staff it gets everyone off to a better start. Unfortunately, as we have all experienced, celiac disease is not a disease people are...

Our dietician visit was covered completely by United Health Care, and it was very valuable. I believe someone already told you to call and ask for a medical review by a physician. I would also call a rep at the company and let them know you will be filing an appeal through your state's Insurance commisioner and the office of the inspector general (both can...

Magianos has great Italian food and the Chef is pleasant to work with. They come to your table and cook specifically for you.

Potentially the cramping could be caused by a lack of Calcium. I believe you said she is nutrionally defecit. Calcium is not only important for strong bones, but is needed for muscles to contract. A calcium defeciency can cause muscle cramping. Many celiacs' can not consume dairy and many Americans' have a Vitamin D defeciency, both needed for your body...

My son is close to you daughters age and we have choose to not make our entire house gluten free (at this time...). BUT, he has his own pots/pans/toaster, pantry section, fridge/freezer sections. For us this has worked better because he is understanding from a young age that his foods are different from others. I do make a lot of gluten free foods, but...

Thank you for this question. We also just booked our first vacation, post dx, to Disney World and also are staying at the Port Orleans resort. We were so worried about how this would go. I called the park and customer service said it would not be a problem, at each restaurant the chef would help us. I thought that she was just appeasing me and it was too...

Thank you all for your responses. It makes me want to cry to think that my son was having these feelings for 2 years, but knowledge is power. I think being able to explain to our families and friends how people feel when they get glutened will make everyone around him to be more diligent and careful around him. His disposition has changed, he was very...