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DreamWalker

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by DreamWalker

  1. DreamWalker
    I'm sorry I never followed up on this. It's happened two other times that I remember since posting. Um... I mentioned it to the resident during my last GI appointment ... So far no one seems to think it's much. In all reality, I wouldn't be surprised if it was nothing more than exhaustion. Although, it might be high blood sugar. I know I fall asleep on my...
  2. DreamWalker
    So, this is really weird. Before going gluten-free, I had several friends think I had narcolepsy as I'd frequently fall asleep without warning. It's been over a year since the gluten-free diet and this issue virtually disappeared. On Saturday, I ate a new brand of rice cereal (which I highly suspect of containing gluten) and fell asleep at my computer....
  3. DreamWalker
    I used to adore kombucha yet I can't drink it anymore as it causes a lot of sharp, burning pain. The only explanation I can think of is that the tiny amounts of alcohol from fermentation set my pancreas off. Then again, pedialyte or even water can anger it. My guts definitely miss kombucha but it just isn't worth the pain (or price). Anyone else with this...
  4. DreamWalker
    I've had two pre-gluten free eras. The first one I don't remember well yet I was 65lbs and around 5ft. The second time I was in the mid-to-high eighties at 5ft 2in. (I think. The weight loss disturbed me so I quit stepping on the scale.) And the most bizarre thing about it was my appetite was absurd. I would eat entire jars of nut butter in one sitting...
  5. DreamWalker
    I bought a box of this last night and after eating a few bowls, I fell asleep on my floor. Anyhow, thirteen hours later I woke up and was slightly confused as to why it was nine a.m. Also, my fingers are pretty swollen. Weird. My usual reaction to gluten includes mouth sores, diarrhea, falling asleep (even if I am in the middle of a conversation...
  6. DreamWalker
    I definitely had the brain fog issue. Also, look into your Vitamin B levels. Skye - have you looked into other intolerances in addition to gluten as well? Particularly casein/milk protein? Your post reminds me of a friend of mine with IBS, fibro, and idiopathic seizures that are not controlled with anti-epileptics.
  7. DreamWalker
    Chronic Pancreatitis. At least I have my answer. I look like a skeleton and I've pretty much been living on my floor this entire time yet at least it's no longer a mystery. . . and I don't feel like a loony hypochondriac. Thank you for the link Generic. Did you ever managed to try the pancreatic enzymes? CP in its more advanced stages is difficult...
  8. DreamWalker
    Are you sure your drink wasn't spiked? The way you described the feeling as though alcohol stayed in your system parallels a description of a GHB-laced drink. Over two years ago (well before I was gluten-free), I had 1.5 glasses of wine & I remember nothing of that night or well into the following day. I was sitting on the couch watching Malcom &...
  9. DreamWalker
    I'm unsure what the GAPS diet is as well. What supplements are you taking exactly? As I'm sure you're well aware, celiacs have issues with absorption. Until you've fully healed, you mightn't be capable of absorbing tablets. I know I'm repeating what MommaGoose said, but it sounds like you need to head back to your doctor to check for deficiencies. You may...
  10. DreamWalker
    Heh. Yeah.... I ramble a lot. It's difficult for me to follow a full train of thought. I think it's the sleep deprivation (pain) coupled with anemia. My body went haywire when they removed my gallbladder 3+ months ago. Anyhow perhaps a list will be a bit more organized: - I don't eat dairy or soy. - All the medications are gluten-free. I called...
  11. DreamWalker
    Anyway, I suppose the title explains the gist of my topic. I've been gluten free since the beginning of Oct '08 and all my other vitamin deficiencies have cleared. Actually, my B12 came back too high last time and my calcium & vit D are peachy. However, my ferritin & RBC keep dropping (at least it explains the thigh bruises that will not leave) &...
  12. DreamWalker
    Listen to Momma Goose. I had the exact same issues. When I discovered my B12 was low, I began supplementing with sublingual Vit B12 3000 mcg 2x per day & found myself able to walk straight(er) lines & hold conversations. Although, my memory is still in the tank. Months later, I began developing the same issues then randomly discovered I was anemic...
  13. DreamWalker
    I know this sounds a bit extreme (yet your attacks seem to warrant great measures) but have you tried keeping a very detailed journal of what you come into contact with on a daily basis? There does seem to be a connection between the bathroom & the attacks & chemical compounds are sneaky additives not only in food but everything from cleaning supplies...
  14. DreamWalker
    Generic, I'm so sorry. Your story .... I don't understand what's wrong with the medical community. That is one of the most horrendous things I've heard. It really is. I can't believe a stone was lodged for four months and no one believed you. (I mean, I believe you I'm just ... speechless... at how cold doctors can be.) Lisa - I've heard of exactly...
  15. DreamWalker
    It was sort of the opposite after going gluten-free with me. Before, quite a few meds seemed pointless which I mentioned to a doctor once who... didn't believe me. So, I dropped it. Anyhow, are you taking an extended release form of a med? The molecule is attached to a polymer which your body has to digest through before receiving the intended medication...
  16. DreamWalker
    It's pretty much the classic symptom of B12 deficiency, in turn pretty much the classic symptom of celiac sprue. It's called peripheral neuropathy. Mine cleared up quickly, almost immediately in fact. Some people take longer and some people have suffered enough gut damage that they can no longer take in vitamin B12. It can take as long as two years for the...
  17. DreamWalker
    My praternal grandmother died in her 30's from colon cancer. My grandmother also developed colon cancer in her thirties. She beat it, then it returned in her late 40's/early 50's. They wound up removing her entire colon. Yet, she is the most stubborn woman I have ever met - seriously. She actually managed without the dreaded bag. Although, to be perfectly...
  18. DreamWalker
    Thank you for the link. I looked it up & apparently there are three doctors within a reasonable radius. (I live in the east bay area of California.) As for the antibiotic allergies, here's what I've been told. I would take a round of an antibiotic and up until two-ish weeks I'd be fine. (Although, for some I'd be find with the antibiotic until I developed...
  19. DreamWalker
    Holy.. mother of ... Lyme can cause upper right quadrant abdominal pain? Chronic Cholecystitis? And severe bouts of stabbing/shooting/burning pain through one's ribcage? I have some semblance of an explanation regarding those (albeit vague and futile-seeming at the moment). Ehh. I know nothing of lyme outside of bits I've been reading in this thread....
  20. DreamWalker
    Aside from the hydrocortisone cream what else have you tried? Since it's flesh colored, it definitely doesn't sound like DH. Yet, I thought I'd mention this anyhow. Post celiac disease diagnosis, my GI told me to take benadryl when I broke out in a reddish blistery-looking, very itchy rash on my face. (Although, I was glutened the night before.) Anyhow, after...
  21. DreamWalker
    Thank you for the replies. As for what they gave me in the hospital, I did emphasize everything needed to be gluten free as I had Celiacs and tried to keep track of what they gave me but I passed out a few times/lost consciousness so I'm really skeptical of my memory. They did give me IV promethazine & zofran. (None of which stopped the vomiting...
  22. DreamWalker
    Uhm.. well... here goes.. I'm not sure about the relation between bile-duct issues & celiac disease (nor do any doctors that I've seen) but I've been having upper-right quadrant abdominal pain for about 13 months. Actually, it was gallbladder attacks (if that is indeed what they were) that lead to me seeing a doctor, being referred around, and ultimately...
  23. DreamWalker
    Definitely mention it to your doctor & get an EEG. Right before I slid downhill, (losing 20+ lbs on an already bordering underweight frame + more GI issues) I *thought* I was having seizures. However, I never went to the doctor for them as there were no witnesses. A few times a week, I'd be lying on the couch, then suddenly find myself on the floor...
  24. DreamWalker
    I'm not sure how much help this will be for you but here is what I'm currently taking for B12: Country Life sub-lingual with folic acid 2x/per day. It has 500 mcg of B12 & 400 mcg of folic acid per tablet. It's free of yeast, wheat, soy, gluten, milk, salt, sugar, starch, preservatives, and artificial color. Although, it does contain sucralose which...
  25. DreamWalker
    Eeesh. Doctors can be ignorant. Reading this thread, I wonder why this disease isn't emphasized more in medical school. Oddly, it was the positive test results for other disorders that lead a doctor (after numerous referrals) to figure out it was celiac & run the panel. Diagnoses/tests months before I was diagnosed as celiac: - Thyroid (+ hypo...
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