sylviaann

These are classic symptoms of the initial onset of Lyme Disease. I had several similar symptoms early in the course of my illness. I thought I was going to die at the time. I went gluten free two years later but now that I have my real diagnosis, I can look back and clearly see how incredibly ill I was from this bacteria! Lyme patients cannot tolerate gluten...

You are welcome BigDog, I can definitely relate to your experience as I was tortured for three years with severe myoclonus anytime I tried to sleep, day or night. I had body aches, blurred vision, hyperactivity, weight loss, worsening GI problems, heart palpitations, insomnia and the list goes on! I have lost weight due to being on the low salicylate diet...

I have been in Savannah since last Sept and will be returning to Florida in a few days....I became extremely ill and almost ended up in the hospital after stopping my GI meds (which contained salicylates). I was on steriods for 2.5 months and recently weaned off of them. I saw an allergist in Savannah who treated my sister, nephew and mother for various allergy...

I am so sorry you are going through this. It is so frustrating and emotionally painful when family members and your employer have no understanding or empathy for this condition/illness. I wonder if the Gluten Intolerance Group of North America has any advocate programs? If you are really concerned about your job, you could consult with a good employment attorney...

Most mainstream tuna companies process tuna products with soy. You could be intolerant to soy. Tuna is also high in glutamic acid and some people react to this. Sylvia Ann

Hi Korwyn, I will definitely chek out the gaps diet but now I have discovered yet Another possible trigger for my myoclonus...foods and cosmetics that contain salicyalates. I have been taking two medications for my chronic GI problem for 12 years and they both contain salicylates. I had been suspicious that I was suffering an adverse reaction (or hypersensitivity...

So you are able to use pure extra virgin coconut oil on your skin with no reaction? My track record has not been good with skin absorption reactions so I don't think I am brave enough to risk it. After three years of myoclonic jerks, twitching and sleep deprivation, I am "over" being a risk taker!! Sylvia Ann

I am always hearing about Dr. Bronner's products but I have yet to try them. Are they all gluten-free and salicylate free? BTW, I am seriously wondering if I have a problem with coconut. I reacted severely to a gluten-free lip Balm called Sanre "Choclate Kiss" (my lips got extremely chapped and irritated). It contains coconut oil and cocoa. I recenty...

Unfortunately, I cannot use Giovanni products. I had a severe skin reaction (eyelids) after using their shampoo and conditioner last year. It took me a few weeks to realize it was the Hydrolgzed (spelling error) Soy protein that made my eye lids red, irritated and dry. My eyes also burned and were extremely irritated from these products. I learned that I...

I have three jars of the extra virgin coconut oil but I recentlly read that coconut is high in salicylates. Wouldn't coconut oil be off limits? Sylvia Ann

Thank you Patti I will be looking at this website today! Do you purchase lipsticks and foundation from this company? Do you happen to know if Rachel 24 is still active on the forum. I was hoping to connect with her since I read she has the same problem with Salicylates. She would be a great resource for me on this topic. Thanks a million, Sylvia Ann

I have been Gluten Free since last April and like many of us, have developed numerous additional sensitivities including MSG, Aspartame (artificial sweeteners), Soy, Dairy, and corn. My most recent sensitivity discovery is Salicylates so I feel as though I am "starting over"again (for the fourth time) with learning what products are safe for me to use. ...

Hi Lisa, You are very welcome ....I have been suffering from myoclonus for almost three years and I keep learning something new every day (additional intolerances). I reacted to eating flounder last night that I cooked and was up for most of the night. I wonder if "Leaky Gut" is causing all of these reactions?? I have finally decided to pursue an extensive...

Ditto Peter!! I know many of us can relate to your feelings and I agree! We will have to start a "Preparing for the dreaded holidays with uneducated relatives" or "The most ignorant comments made by family members during the holidays regarding gluten"! Sylvia Ann