Quasior

Thanks Nora, I hope we have the Enterolab test here! That would be good, I know they are very sensitive to cow's milk, only two of my children seem to be able to use it regularly - and even they have been known to miss it for a couple of weeks here and there. If we gave my youngest daughter any at all she would be sore and blistering all of the time instead...

The tests do not seem as definitive as they could be, do they? Nothing seems 100%, and yet the symptoms are there and causing issues. There is obviously much more to the condition than the medical profession knows yet, its a grey area. Its obvious too that some doctors have more of a clue than others too. The more into it you get, the more confusing...

I don't pretend to understand the DNA or the sequencing but I thank you Nora, and Midwifemama for attempting to explain. Maybe genesists don't really know either, it is relatively a new thing isn't it? For this reason I doubt the doctors have any real idea either, as they go on these journals and theories too. That does make it difficult for everyone else...

Ok, you have helped in your reply... The reason why we wanted a diagnosis for my 4yo was really for his father's sake (and his future teenage self), if we had the positive proof my son wouldn't rebel later on and say "oh I'm not eating gluten-free anymore no one even knows if I am or not?" plus my husband is reluctant, but of course he sees the positive outcome...

Thanks for the reply Nora, I wasn't aware of the other tests I could ask for so I will definately be asking for those. the IgG one, as for the copies of DNA strands, I'll check out Wiki because that is a bit confusing.. I have one gene that is positive but the children have both - at least all that have been tested, and my husband has been tested but I'm...

I don't know where the poll part is but... I was very recently diagnosed with sleep apnea. Whether directly caused by celiacs or because I am overweight so indirect cause I'm not sure... but I do have the other neuralogical probls a lot of celiacs have like mind fog, memory loss etc.

But a colonoscopy isn't a biopsy it it? It is a different test altogether and they are looking for different things arent they?

My children aren't diagnosed yet, but I'm pretty certain at least three of five have it! My eldest girl is 10, she's the size of a 6 yo in height, but she wieghs 45 kg My eldest son is 8, above average height and extremely thin, he's not breached 30 kg yet My middle boy is 7, he is hovering around the 25%ile, but he is also thin (not extemely - he could...

I was having symptoms even though I was on a strict gluten-free diet, then I took a closer look at what I was consuming: Toothpaste/hair care products/medication - they all had gluten in them!! It's in a lot of make up too, but since I don't even use it no worries there. It might be sneaking in from lots of different sources, so my advice is to really...

Hi, trying so hard to get some sense out of my doctors! I finally just asked them for the results so I could post here I've been told by one doctor there is positive results and another said negative!! I should also say I do have Celiac's but my bloods have been tested Iga ones, one time came back positive, another time negative.? confusing, anyways, all...

There was a similar post here. But this is completely different too. My partner is always undermining my pov when we are talking to other people about ceoliac disease. It is just that I haven't got the biopsy, but the tests other than that have all been done and come back positive including the DNA test, which is more recent. I went gluten-free when I...

This is close to me and my children it's not funny. OK, well, we went dairy free but we were tolerating sheeps fetta and occasional goats cheese. After periods of non-dairy I slowly introduced small amounts of cheese or yogurt or ice cream, but no milk. When the symptoms returned it was taken out again. Oddly enough though, we began to tolerate small...

I might be going against the flow here... BUT this is what I've decided, for better or worse. My son who is 4 took the genetic test and while his bloods were being taken they had to literally push the blood out and it was nasty. It ends up he has both genetic markers so it was a good thing he got tested. He is a different boy now he's gluten free...

So weird! I have Coeliac's and my pnky on my left hand is slightly below the ring fingers final joint, and on the other side it's over the line slightly. My son who has suspected Coeliac's (pretty sure he has) his pinkys are just below the line or right at the line of my other two children they are slightly above.

Theres like 5% of Coeliacs who never show positive bloods, or only show it some of the time. I'm one too. Go with the doctors results, you are coeliac!