Traveller

Here's some quick references from my friend Google: Open Original Shared Link "Many physicians will not diagnose celiac disease unless intestinal damage reaches Open Original Shared Link orOpen Original Shared Link levels." Open Original Shared Link "GS were considered those patients with negative autoantibody serology (endomysium antibodies-immunoglobulin...

Although the only treatment for NCGI is a gluten-free diet, there is no generally accepted test for it. However, NCGI sometimes causes intestinal inflammation and a Marsh 1 or 2 degradation to the intestinal villi, and that may create issues with absorbing certain nutrients properly. I noticed that you did not advise the full results of the endoscopy/biopsy...

I have PN secondary to gluten sensitivity, or so says one of the leading celiac researchers. My symptoms arise shortly after being glutened, and start with pain in random parts of either foot, progressing to uncontrolled leg movements (leg "jumping"). Unsually the symptoms stop after a few weeks. I went to see the research doctor after the symptoms did...

I went there a year or so ago for an evaluation. It sounds like you want an evaluation as well. For my appointment, I first was interviewed by several doctors who also looked at the medical records. Then they went to speak with Dr. Fasano, and all returned for a brief discussion with me. My evaluation was prompted by one specific symptom that occurs when...

I assume you are in the US. If you bring food through the TSA check-point, declare it to the screener as medical supplies before you place it on the belt. (Yes, the foodstuff consitutes your medical supplies because it is a treatment for your medical condition). You do not have to tell the screener your diagnosis, you only have to declare the food as medical...

Are you sure that those products contain gluten? I've used Armour consistently for two years without problems, and the Armour web site says their product is gluten-free. Open Original Shared Link

Yes, it's possible. My first symbol appears within an hour (severe headache), rapidly followed by fatigue, foggy brain, and a motion disorder. The duration and severity seems to correlate with the amount of gluten ingested.

I wonder if the change was made in preparation for the merger with United, and if the subsequent re-introduction was only until the merger takes place? US airliners are perpetual money-losers, and are resorting to survival tactics including fees for everything under the sun, and elimination of any service that they can't charge a fee for. They can't...

Skylarks's point is a good one. If by "reliable" you mean "truthful", no test will be reliable. Even serologic tests for celiac have what I consider to be a high false negative rate (report negative results when subject has celiac). However, if by "reliable" you mean "helpful in decisionmaking", I consider the test reliable. I don't believe my Enterolab...

I have similar memory problems. They started a couple years before I went gluten-free, and progressed to not remembering the names of people I've worked with for years. I literally would speak to them in the hallway, go into my office, and look at the office telephone list to discover the name of the person I just spoke to. Since going gluten-free my memory...

After my gluten-free steak came covered with deep-fried and breaded onion rings the waitress said "We'll take the onion rings off and put the steak on the grill to burn the gluten off"

Given that vitamin D deficiencies are widespread in our population, I question how well a deficiency correlates with celiac. Vitamin D is made in the skin. I've heard doctors put forth many theories -- such as the cleanliness in our society today "washes away" the Vit D -- but nothing more than theories. Regardless, I'm Vit D deficient as well. My levels...

In the past year and a half I've eaten from the Outback gluten-free menu on New York's east side, Orlando, Tampa, Winter Haven (Fl), two in northern Virginia, Kansas City, and just west of Foster City, CA. I've been there so many times recently I have the menu memorized. In all the meals I've eaten, I've only had two problems: 1) One restaurant served...

If you plan on eating in the WDW restaurants, bear in mind these two things: 1) WDW generally has an excellent reputation, and in many ways is simply awesome for gluten-free dining, and 2) I got glutened there. But only once in a week. Although my story may be an anomaly, here it is: a few months ago I stayed in one of resort hotels. My first night...

I think it is important to keep medical tests in perspective. As much as some may look at medicine as a science, much is guesswork. For example, many studies show a correlation between celiac and other diseases, but no one has yet proved the connection. Another example is the current dispute over celiac being primarily a gut disease or a neurological disease...