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skyyblues

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by skyyblues

  1. skyyblues
    I had both procedures in May. I was not able to eat gluten for the test as they had wanted. I made it 4 days and broke out so bad the doc said to stop eating it. The drink itself could have been better....some of the gluten free stuff I have had made it seem ok! LOL Most of the people I had spoken with said how bad the bathroom part was...I laughed as...
  2. skyyblues
    I feel your "itch"!! I have been called a freak by more than one Dr. I have been gluten free for about 5 weeks now. My stomach problems got better within a couple of days. My skin is another issue.... I have noticed though that the blistering on my hands is not as bad as it was. My arms and legs have cleared up pretty much. It seems from what I have...
  3. skyyblues
    Did you try pasting the link in your address bar? That is how I got it to work for me just now. I am not familiar with Sjogerns... Does it have rashes?
  4. skyyblues
    It can be very itchy!! Yes it can flare up very bad in a couple of hours. I can not tell you what or how but it does. I am still trying to figure it out. It seems as if since I have been gluten free when I do flare it is much worse than before. I am guessing that my body was so used to being poisoned that it did not react as noticably. I am very sorry...
  5. skyyblues
    I understand how you feel... I love it when someone offers me a "bite". I also love it when someone tells me well it will be better when they figure out what is wrong... HELLO I know what is wrong!! I can't take a pill and fix it. This is my life. I don't want their sympathy either. If I hear "I don't know how you do it" one more time I think I will...
  6. skyyblues
    I started to feel better within days. I could eat without running for a bathroom. I wasn't having stomach pains. It was like WOW.... I stopped after my doc did a blood test which came back negative. I had done alot of reading and when we talked I told him I thought it was Celiac. He told me to try gluten free and I couldn't believe how much better...
  7. skyyblues
    I use Desert Essence Organics. They make shampoo, conditioner, and lotions that I love. They are wheat and gluten free, no petroluem, and nothing artificial. The lotion I use all over including my face. It costs about $9 a tube but it lasts a long time. A little goes a long way. I recently saw it at my local grocery store for the same price I pay anywhere...
  8. skyyblues
    I am still "undiagnosed" officially. I went to the GI doc and he scheduled a endoscopy and colonoscopy for the 12th of May. I met with him on a Tues after I had been gluten-free for 2 weeks. I was scared but agreed to go back to eating it for the test. I went out to dinner that night to a favoriet Mexican restuarant. Within 2 hrs of eating I started...
  9. skyyblues
    I say good for you! Someone has to stand up for those who come behind. I am sure this will not be an easy task for you but it is a good one!! My boys are grown but I have 3 grandsons, who still have to be tested. I shudder at the thought that they would not be safe at school. I understand feeding us is more difficult but with the proper planning and...
  10. skyyblues
    Hello and Welcome! I am new too. I understand what you mean about being obsessed. I have gone so far as I will not eat anything right now that I do not make myself or is clearly labeled. It seems that since I have been off gluten my reactions are worse also. Thought it was just my imagination.... I got poisoned yesterday and have no clue. The only...
  11. skyyblues
    I guess I am shocked by this. I am not sure why...I wouldn't think anything would suprise me anymore.... If I understand you correctly (which I hope I don't) my drugs are not screened for my listed allergens when I have my prescription filled at a local pharmacy? I know they don't have to list all ingredients under the guise of patented formulas etc.....
  12. skyyblues
    I can't drink wine either. I am not a big drinker but once in a while it is nice to have one. I have also noticed that when I have a drink I seem to flush so should probably put that on the back burner for now too... Anything else I can give up...I am starting to feel like a Catholic stuck in Lent forever....
  13. skyyblues
    I understand what you mean. He thinks some doc will just give me a special shot and I will be fine. He doesn't get that this is now my life. I went through cupboards today and gave myself a little corner where I now keep my stuff. I don't like having to look through everything to find something I can eat. He just kind of rolls his eyes... I don't care...
  14. skyyblues
    I really like your reference...That is how I am looking at everything these days. My family looks at me strange and I think they think I'm paranoid but they don't have the issues I have been dealing everyday. "I think they think" I am paranoid aren't I! LOL That is ok as it beats the heck out of getting sicker and not being able to point to "one" thing...
  15. skyyblues
    Is posting a link to flckr to show DH pics OK. If not I sincerely apologize and will not do it again. I am just hoping to find "THANK YOU" to all of your behind the scenes work!!! Your site is extremely helpful and understanding....
  16. skyyblues
    I created an acct in flckr and then posted the link. I personally would like to see as I have horrible outbreaks of eczema and have gone gluten free. It has helped my other issues greatly but I am still having problems with my skin. Here are my pics. Open Original Shared Link It can take up to a year to clear the skin from everything I have...
  17. skyyblues
    Thank you ChemistMama - I appreciate all your advice!! I did mention Dapsone to my doc when I went in on Mon. He said that with all that was going on he was worried about side effects from it. I believe that if the excema comes back as bad or worse that I am going to argue for a short time dose...I have thought it kinda strange that when I am gluten free...
  18. skyyblues
    Thanks. The CYA statement is when they say that they do not use any ingredient but can not speak for their suppliers. Also the last time I called on body cream they told me that according to their scientist or something to that respect, that the molecules for wheat were to big to be absorbed or some garbage like that. When I have open wounds on my hands...
  19. skyyblues
    May I ask what kind of cream he gave you. I have a lot of trouble and am always looking for something to provide relief that I am not allergic to... Glad to hear you are doing well. Seems that they hide gluten in everything. I have started calling from the grocery store with the product in my hand and if they start with the general CYA statement I put...
  20. skyyblues
    Yes it is very painful. I had a very bad reaction today and my doc shot me with kenalog and put me back on 20mg 2x day. I hate the steroids but itch too much to protest....I was gluten free for 2 weeks and biopsy doc told me had to go back til May 12th when I have my endoscopy and colonoscopy scheduled. I made it from Tues til Friday and couldn't take...
  21. skyyblues
    I am sorry I do not have an answer for you. I am wondering though what your hands looked like. I am sorry to ask such a question but I am desperate and hoping to find someone with symptoms like mine. My blood test was negative and I am unable to go back to gluten for the biopsy. I hope the others here can offer you advice that truly helps you. I am...
  22. skyyblues
    Hello - I am new here too. I am replying to your post because you sound like me. Only difference is now I am 45 and have had a horrible rashes for the last 2 1/2 years. I have been to so many doctors, allergists, dermatologists, etc..... and no one did much of anything but put me on steroids. I finally found a general doctor and when he saw me during...
  23. skyyblues
    I was still eating gluten when I had the blood test. I had been on a lot of steroids though and wonder if that would have affected the results. I saw the endo doc yesterday and they want to do both a endoscopy and colonoscopy on May 12th. I cried when I agreed to eat gluten until the test. I went out to dinner last night as I have a favorite place...
  24. skyyblues
    Thank you all for the information. I went to the endo doc yesterday. I am scheduled for a endoscopy and colonoscopy on May 12. I cried when I agreed to go back to eating "it". I went to dinner last night and started to break out Been in the bathroom twice already this morn and pains are horrible. I am not sure I will make it 4 weeks. I am taking pics...
  25. skyyblues
    Hello - I can relate.... I have had stomach problems as long as I can remember but just thought it was just me. I have an Aunt that is the same way. I have had horrible rashes and exzema for the last 2 2/1yrs. Doc after doc has either treated me as nuts or shoved prednisone on me. I have been to regular docs, dermatologists, allergists, and none of them...
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