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Libbyanne

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  • Gender
    Female
  • Interests
    Dogs, Dog training, Reading, Writing, Running, Researching Gluten intolerance!
  • Location
    Des Moines, IA

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About Me

On April 14th, 2009 I decided to try going Gluten Free. I noticed immediate benefits. During my pre-gluten-free era, I spent a lot of time trying to figure out what was wrong with me. When I was almost 16 I had my appendix taken out and then in 2007 I had my Gall Bladder removed. I'm not sure if that was entirely necessary looking back on it. I've been in and out of doctors offices ever since. I've been tested for celiac disease but tests always came back normal (never was asked to do a Gluten Challenge). I've also been tested for Thyroid Disease numerous times, always negative. I was diagnosed with IBS by my gastro doc back in December 2008. He suggested having a colonoscopy but (after having what might have been unnecessary surgery once) I decided I wanted to try to rule out a few other things first. I tried taking a fiber pill but that only made the bloating (and gas) worse. I then tried a prescribed laxative (similar to Miralax) and it did the same. I decided to take matters into my own hands since I REALLY didn't think it was Crones disease, so I cut out the gluten. After the very first day I felt like a new person. The next days have continued the same feeling. After 4 days being gluten free I had an appt with my gastro doc. He feels I still need to rule out Crohn's Disease but is okay with me trying the gluten-free diet for a couple months to see if my symptoms stay gone.

I'm new to all of this and honestly it's scary at times, but most of the time I'm just relieved that I've figured it out. It's almost surreal at times, and that worries me, I really hope this doesn't turn out to be yet another fluke reason to why I'm in so much pain:(.

  1. I live in Des Moines and am pretty new to this but you might check out the Central Iowa Celiac Connection website: Open Original Shared Link Barb Huyette is the head of the group I think, and I know she has contact info somewhere on the site, I just don't have the time to look for it right now. When I have some time I'll browse and post what I find. ...
  2. I had a similar experience - although I never really had any gall bladder attacks. I would have sharp pain under my right ribs - especially when I would laugh. I also remember having very bad D and nausea a lot. I went to doctor after doctor until one doctor finally did the HIDA scan - before that they had done an ultrasound and since there were no stones...
  3. I never used to get headaches at all, but growing up both my mom and my older sister would get horrible migraines. After going gluten free (something I decided to do on my own even though in previous years blood tests have been negative) I've noticed that a headache (not a migraine though) is often one of the first reactions I have after being glutened! This...
  4. So what do I do now. Do I just suddenly tell people I'm gluten intolerant? I know I'm going to get flack for trying to compair with my DS even though I really am not like that. What I really want is some sort of diagnosis from a doctor. I know this won't change anything but I feel that it would give me some peace of mind and put some weight to my words. So...
  5. Thanks for posting this question, r0ckah0l1c. I was questioning the legitimacy of my gluten intolerance as well after I had a sandwich from a place called Jimmy Johns - which uses plain french bread. I remembered it never bothered me before, so when I decided to go back on gluten (to get tested) that was the first thing I ate and I didn't seem to have any...
  6. Thanks for the info, Karen. I'm not sure I'm up for 3 months...especially during swimsuit season . I've requested to have all my lab results sent to me so I guess I'll start by making sure they tested me correctly and go from there.
  7. Hi Darkhorse! Any chance you can update us on what you decided as far as going back to gluten or if you've had your tests? I am in the same boat - been gluten free for 3 weeks but recently started to add it back in so I can get tested. At first I was excited to eat pizza again (I hadn't made it far enough to bake my own gluten-free pizza yet) but now...
  8. I have been tested for Celiacs before (maybe twice) via blood tests but was always just told the tests were negative. I never saw my actual results so I don't know if they were high or if they tested for everything necessary. After dealing with "IBS" problems for years (and now realizing all the other problems I have that are related - nightmares, vertigo...
  9. Thanks so much for sharing!!! When I told my doctor I thought I was gluten intolerant he basically scoffed at me and said "well there is no way to test for that". I think it's time for a second opinion...
  10. Thank you for posting this! I'm new to the disease/intolerance (haven't exactly figured it out yet) and I remember a friend telling me Doritos were okay (she has 3 kids with Celiacs). So, on a binge I grabbed a small bag at the gas station this afternoon and scarfed em down without even bothering to look at the ingredients . Then, as I'm down to the crumbs...
  11. This is my question too! I went gluten free for three weeks and still was having some of my symptoms. My doctor (who is very skeptical that I am Gluten Sensitive or have Celiacs) really wants me to do a colonoscopy to test for Crohn's. I'm not against doing this and have decided I will but I would like to kill two birds with one stone and have them do an...
  12. Also, (I tried to edit my reply but I don't think it worked ) I didn't have any stones either! Ultra sound was negative for stones but the HIDA scan showed my gall bladder was just functioning at a very low level. I had very sharp pains below my ribs (especially when I would laugh) I had been given every excuse from the doctors from the pain being because...
  13. Jen - I want to give this advice but keep in mind I am no doctor and everyone's body is different so don't only take my word. If I were you (or if I could go back in time) I would do some more digging, get some more opinions before removing the gall bladder. I had mine taken out about a year and a half ago and now that I've recently found out (or at least...
  14. mamaesq - I'm not sure where you live but I know most Olive Garden's have a Gluten Free menu and it's good stuff! I've ordered off it twice with no problem! This link should take you to the gluten-free Menu - Open Original Shared Link so you can either look it up online or, if you're at the restaurant just ask the server for their Gluten Free menu. The servers...
  15. I've been gluten-free for a week and woke up with a canker sore this morning (had accidentally ingested gluten the morning before in my breakfast - maple syrup on gluten-free Waffles ) I can't remember the last time I had a canker sore. That is the second time I've ingested gluten on accident so far and it seems my list of reactions just keeps getting longer...
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