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Foxfire62

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Foxfire62

  1. Foxfire62

    ARCHIVED Bcbs Hmo Illinois Doctor?

    Foxfire62 replied to daniknik's topic in Doctors

    Nik, Dr. Semrad of University of Chicago specializes in it, but I highly recommend Dr. Mark DeMeo of Rush University because Dr. Semrad did not make an effort to diagnose my bacterial overgrowth, whereas, Dr. DeMeo told me of other complications and recommended ruling out other problems as well. I know this is a late response, but just in case you've yet...
  2. Foxfire62

    ARCHIVED Bcbs Hmo Illinois Doctor?

    Foxfire62 replied to daniknik's topic in Doctors

  3. Foxfire62
    The only way to know for sure if you have celiac disease is to stay on a gluten diet for awhile and get biopsied. If you felt amazing on a gluten-free diet, why not just stay on it and assume you have it? Or at least assume you are "gluten intolerant."
  4. Foxfire62
    The only way to know 100% is to have a biopsy of the small intestine; you could still have a negative panel and have celiac disease. If that has yet to be done, I would recommend it. Another thing that could be happening is that you might have bad bacteria in the gut, or you could have bacteria that should be in the colon interfering w/bacteria in the...
  5. Foxfire62
    If I were you, I'd find a nutritionist who knows celiac disease quite well. My first experience with a nutritionist was a laugh. She just read off of some pages and provided me some copies of things to read that I already knew about. If you find a nutritionist who had celiac disease, you would really be in luck. I found one, and I went through some rough...
  6. Foxfire62
    I would say you should first decide whether or not you want to be 100% diagnosed with celiac disease. If so, you need to stay on a gluten diet until blood tests and biopsies of your small intestine confirm you have the disease. I would highly recommend you have this done. I understand how long it can take to confirm. I started having the strangest symptoms...
  7. Foxfire62
    You have genes and a positive blood analysis that indicate you have a great likelihood of having celiac disease. If you do not wish to be biopsied, just assume you do, be very strict with your diet, and stop worrying. I have celiac disease, and my intestines are beginning to work, and I'm still having complications despite my intestines slowly starting...
  8. Foxfire62
    Get checked for celiac disease as soon as possible! If you have it, you can only begin to feel better when you start eating correctly!
  9. Foxfire62
    I am a recovering celiac, dx in 08-08. My villi went from severely to mildly atrophied/blunted. Right now, I am experiencing problems when drinking. I drink water, and I have been burping a lot and feeling almost like a lump in my throat. When I get this, my blood pressure appears to drop, and I feel tired. I don't understand why that is. I did have back...
  10. Foxfire62
    My villi were so severely damaged, if it says natural falvors, I tend to stay away from it.
  11. Foxfire62
    As far as I know, you do not need to be concerned about soy ruining the villi of your intestines. Are you sure you're allergic to soy or just intolerant? Many celiacs are intolerant until their intestines heal. But if you don't feel good eating soy, don't do it! Look for options. But soy does not contain the gluten protein that celiacs tend to have a negative...
  12. Foxfire62
    Depending on your age and severity of the damage in your intestines should you have celiac disease, it can take from 1-2 years to feel better again...and that's with a strict gluten-free diet. I was told by my doctor after being biopsied that I would feel better immediately after going on a gluten-free diet. HA! It just shows you how much these doctors...
  13. Foxfire62
    As far as I know, until your gut is healed, you don't know. The best thing to do is continue to eat a strict, gluten-free diet. Also, anything that causes you discomfort, stay away from. For example, many celiacs become intolerant to lactose, soy, eggs, nuts, and other allergens. I am one such person. Although I can eat eggs and nuts, I have difficulty digesting...
  14. Foxfire62
    The whole point to celiac disease is that gluten destroys the villi of the small intestine. Without the villi, you will have difficulty absorbing nutrients. So, if you have a deficiency, by all means take supplements. Taking the supplements will not affect the outcome of your biopsy. Eating the gluten is necessary to ensure a proper biopsy, especially...
  15. Foxfire62
    Blood panel could show false negative. It's not a 100% diagnosis. The only way is through biopsies of the duodenum, and for an official diagnosis, yes, you would need to be on a gluten diet for awhile. If you're not comfortable with this person, do change doctors. One that is well versed in celiac disease is recommened. Lactose/soy intolerance does happen...
  16. Foxfire62
    I don't know if you're a celiac or not. If the celiac blood panel and the biopsies of your duodenum did not result in anything, it might be inconclusive (because there isn't sufficient damage) or you have something else going on. Your symptoms are similar to mine...at least a little. I was severely backed up (big C), and I did not eat for nearly a week...
  17. Foxfire62
    Unless it's a company that caters specifically to celiacs, I don't buy it.
  18. Foxfire62
    I recommend bio dentists.
  19. Foxfire62
    First, request blood panel testing for celiac disease. Whether positive or negative, the only true way to confirm the disease is by a biopsy of the small intestine. Until the biopsy, eat as you have been...do not go gluten-free. If the biopsy shows you have celiac disease, then you should go on a strict gluten-free diet. Recovery time varies, depending...
  20. Foxfire62
    I would recommend staying on a gluten diet and getting tested immediately. I've heard mention there are 4 stages (with 4 being severe), and there is refractory sprue...meaning the damage is so bad, it can never heal. If you haven't had the celiac blood panel, do so immediately. If you have, and the results are either positive or negative, get several biopsies...
  21. Foxfire62
    Before my mom passed away, I learned that she made many decisions even for my dad, at least according to him. Sounds like a husband who very much relies. I don't know if this is a common problem or not. Just my 2 cents worth. Sounds like he has a wonderful wife to take care of him!
  22. Foxfire62
    Since you're going on the assumption you might be a celiac, recovery all depends on age, the severity of damage to your intestines, and how well you follow the diet. Younger people recover more quickly than older. I was dx 08-08, and I'm still recovering. I had severe blunting of the villi. I've improved to mild blunting. It can take anywhere from 1-2 years...
  23. Foxfire62
    If you eat bread often, keeping one loaf in the refrigerator is fine. But I don't like the bread cold, so I just warm mine up a few seconds in the microwave...then perfect!
  24. Foxfire62
    There are soooooooooo many different symptoms for celiac disease. In fact, when I was trying to figure out what was wrong with me, I came across celiac disease, but since the symptoms weren't really quite like mine, I dismissed it. (I am a celiac, however.) Coughing is often a result of having acid reflux too. Acid reflux could be as a result of celiac...
  25. Foxfire62
    I wish I could help you. I've had near-blacking out issues too, but it's usually as a result of being backed up and drinking water, which seems to cause me problems (heart palps, anxiety, lightheadedness). But I'm learning, through diet, to make myself feel better. I'm not perfect yet, but I'm getting there. I also craved salt for awhile. Are you getting...
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