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Miss Emily

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  • FMcGee

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    http://www.lakemichiganceliacs.com
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    Female
  • Location
    West Michigan

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About Me

I was diagnosed with Celiac Disease August 2007 with a postive blood panel and postive small intestine biopsy. Since the age of six I suffered from Celiac related symptoms (IBS, Nausea, Osteoporosis, CFS, Multiple Fractures, Endometriosis, Depression, etc.) but was not properly diagnosed until 15 years later. I now have learned to embrace my diagnosis and have reversed many of my symptoms. I enjoy gluten free baking and while I still struggle with Celiac Disease I am trying to stay positive!

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  3. Miss Emily
    Thank you, Thank you, Thank you, everyone! So, I ended up making Pasta Salad. I used tri-colored gluten free pasta, GFSFDF Italian dressing (Seeds of Change brand), cherry tomatoes, and cucumber. I also brought a bag of potatoe chips and some Bushes Baked Beans! I kept in mind the CC issue and set my food out last, right before everyone ate, and grabbed...
  4. Miss Emily
    Thank you so much!
  5. Miss Emily
    Thank you, I will take all of those suggestions into consideration!
  6. Miss Emily
    Since being diagnosed, I have gone through several phases when it comes to potlucks. First, as a newly diagnosed Celiac, I had no idea what I was doing and ate everything but the bread rolls. Then, after I learned exactly what gluten free meant, I resolved to sit in the corner and pout. After that, I avoided gatherings with food altogether. Finally, once...
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  11. Miss Emily started following mamaw
  12. Miss Emily
    Educating hosipitals is a good point, I once was brought saltines and fruit juice in my hospital bed. Lucklily I was able to speak for myself and say absolutely not! I even had an allergy wrist band on (which I had to fight to get in the first place!). I wonder how one can become a medical advocate for Celiac patients. It would be nice to perhaps give...
  13. Miss Emily
    This was what I currently have for a format: LMCS Meeting Format 5:30-6pm The first 30 minutes of the meetings will be dedicated to new members or those newly diagnosed and will include a briefing on Celiac Disease, Gluten Free Living, and dispensment of Educational Materials. All members will be welcome to join. 6pm ...
  14. Miss Emily
    Hi MamaW! Thank you for advice. Okay, so to answer your questions... I have spoke with both the CSA and GIG, I have not yet decided if I would like to be an independent group or extension of these official associations. I am weighing my options there and deciding what will work best for our group. For one example, both groups I attended were CSA groups...
  15. Miss Emily
    I recently attended the local Celiac support group in my area. Unfortunately, I was very disheartened with the way it was run. For one, misinformation was being given to new members and there was no order in how the group was to function. After months of building up the courage to attend one of the meetings, it was so frustrating to not feel supported...
  16. Miss Emily
    Thank you everyone for your replies! I am so glad this story helped to inspire you as well I just wanted to clarify that I did not write this story. I had credited the author in bold, Christine Miserandino, at the beginning of the topic following my introduction to it. I was told that she also has a website, www.butyoudon'tlooksick.com. I edited my...
  17. Miss Emily
    Yes, thank you, that is why I bolded and enlarged her name at the beginning of the story. I was not aware she had a site, I was given her story through a friend.
  18. Miss Emily
    I have been chronically ill since I can rememeber. Something many of us suffer from when we have been misdiagnosed for a number of years. I struggle to have the energy to complete daily tasks and often feel very alone. This story gave me comfort. I finally was able to explain to loved ones, and even myself, what having a lifelong Chronic Ilness feels...
  19. Miss Emily
    Thank you to everyone who has responded. I have definently recieved a great deal of feedback. I think I have found the best route for me is to purchase Organic meats from a local source. I have even looked into purchasing an entire cow from an organic farmer. I think the less processing the safer I will be. I am also hoping that by choosing organic meat...
  20. Miss Emily
    I thought I would share the vitamin/supplement brands I have found that are Gluten Free, Casein/Dairy Free, and Soy Free. I like Pomology Vitamins because they are not huge horse pills! They are easy to swallow and don't give me an upset stomach. For supplements I like Solgar, I take L-Lysine, Calcium, and Vitamin C, also easy to swallow. Pomology ...
  21. Miss Emily
    Oh yes! Big issue! My boyfriend always has a toothbrush and mouthwash with him, hehe. He MUST brush his teeth and rinse his mouth thoroughly or you will get glutened from him :/ My boyfriend makes certain to wash his hands and face as well. Be very careful if he drinks beer. It's a killer! My boyfriend only drinks Captain and Coke now (he's a great...
  22. Miss Emily
    Thank you. Your thoughts were very helpful. I too think it is partly a cross contamination issue, as my grocer sells breaded meat items along side the ground beef and other items. Thank you too for clarifying the USDA regulations for raw meats. It is difficult to find meat where I live that does not have added ingredients such as flavorings and broths...
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