srthomas21
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ARCHIVED Bread & Other Things That Don'T Taste Like Cardboard!
srthomas21 replied to lpalmer0919's topic in Coping with Celiac Disease
udis = best gluten free bread ever. It actually tastes like real bread. The loafs are small and pathetic but the bread is great. -
ARCHIVED Label Laws In United States
srthomas21 replied to srthomas21's topic in Coping with Celiac Disease
Open Original Shared Link The products on listed on this page do not contain gluten but are produced on the same lines that have gluten products. It says that the lines are washed inbetween but there is a chance of small amounts remaining. Frustrating. -
ARCHIVED Label Laws In United States
srthomas21 replied to srthomas21's topic in Coping with Celiac Disease
Wow, it sounds like label laws are completely worthless then. Why have wheat be mandatory but other gluten grains not? This makes no sense since it's the gluten in the grains that makes you sick not the grain itself. Is there anything being done to try and get all gluten grains listed as well as any cross contimation issues listed? Really why have label... -
ARCHIVED How Can Getting Glutened Once Cause Months Worth Of Symptoms?
srthomas21 replied to srthomas21's topic in Coping with Celiac Disease
Oh, I forgot to add that I also have Ulcerative Colits which I had my colon removed 10 years ago. As I was going through the diagnosis for UC they also checked for Celiac pretty thoroughly and at that time 10 years ago I did not have it. All my crappy neuro symptoms came about 1 year ago so I guess I could have had celiac a few years before that but... -
ARCHIVED How Can Getting Glutened Once Cause Months Worth Of Symptoms?
srthomas21 replied to srthomas21's topic in Coping with Celiac Disease
My problem is I don't have gastro symptoms so its hard to know if I'm getting gluten or if I have something else going on. All my symptoms are weird so it's just hard to tell what is going on. I'm very careful with the diet. My mom has Celiac so I knew what it was all about before I had to go gluten free. I guess I'm going to cut out restaraunts for... -
ARCHIVED How Can Getting Glutened Once Cause Months Worth Of Symptoms?
srthomas21 posted a topic in Coping with Celiac Disease
I've read these forums quite a bit and there seems to be quite a few posters on here that say if they get glutened once they can have symptoms that persist for months. I'm not saying it's not true but I'm just wondering how this is even possible since the inflammation is caused by eating gluten, once the body has gotten rid of it shouldn't the immune response... -
Ok, so I basically will eat anything that does not have wheat or other offending grains listed on the label. The only exception to this is if it says also processed in a facility that processes wheat. In that case I stay away. I read in the book Celiac Disease be Dr. Peter Green that basically says due to the new label laws in the United States that you...
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I like to eat Thai Food a lot because it generally is gluten free. I was told that MSG made in the states is made from Sugarbeets and is ok for Celiacs but I was told that MSG imported from other countries (like the MSG found in some imported Curry pastes) could contain gluten or be contaminated by gluten. Anyone know anything about this? I will be sad...
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ARCHIVED Talk About Being Sensitive.
srthomas21 replied to txplowgirl's topic in Coping with Celiac Disease
I thought that the gluten protein was to big to enter through skin? I could be wrong but I thought the only way to get "glutened" was to actually eat it. -
ARCHIVED Anybody Else Sensitve To Light
srthomas21 replied to srthomas21's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Reviving an old thread. Gluten free now for 6 months. The light fractionization thing is still bugging me. The best way to describe it is when looking at a street lamp or headlights if you squint your eyes you can see many light rays that protrude from the light source. This is normal when you squint but I see these light rays without squinting. I... -
Here is the full pdf version of the Gluten sensitivity as a neurological illness http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1737870/
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Hey, I primarily had neurological symptoms. I had this horrible feeling that I'd been drugged that went on for months. I had cloudy thinking and a very strange sensation in the back of my head. My neck also would ratchet when I moved my head up and down. Very weird. I also had muscle twitching, weakness, and cramps. Some weird visual problems to that...
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ARCHIVED Are There Really Only 60,000 Diagnosed People With Celiac In The Country?
srthomas21 posted a topic in Publications & Publicity
I just read this on my local Celiac disease support website and couldn't believe. According them there are only 1000 people diagnosed with Celiac in Utah and 60,000 in the country. I thought it was being diagnosed a lot more. -
What type of muscle twitching do you have? What part of your body? How bad is your anxiety? When my anxiety was at its worst my muscles were twitching all over the place. Celiac can cause all sort of weird symptoms. I wouldn't worry too much about it. Give it some time, takes some good vitamins and wait it out. It will get better.
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I've been having headaches almost every day as well. Started about a month ago. I've never had dairy issues in the past and I don't get D or gas when I eat it. Is there any test you can do to see if you are casein intolerant(besides going off of it)? If I have an issue with Casein it will really really suck because I love dairy. In my former life Bread...
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Hi I had this same thing as well. I've been gluten free now for 6 months and the twitching is now about gone but it took MONTHS for it to go away. You are probably deficient in vitamins and minerals. I started taking a gluten free multi vitamin about 5 weeks ago and it has slowly improved things. The one I take is called Bio-35 . http://www...
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ARCHIVED Looking For Good Celiac Doc In Slc Utah
srthomas21 replied to srthomas21's topic in Doctors
Hi I looked at my transglutimase test and mine was 18. On my test it says anything above 4 is high. I honestly would not rule out celiac yet. You gave many celiac type symptoms and according to my labs 12 would be high. You really need to have the complete celiac panel. My mom also has celiac and her first blood tests were negative but she had a biopsy... -
ARCHIVED Looking For Good Celiac Doc In Slc Utah
srthomas21 replied to srthomas21's topic in Doctors
I really think they should run a Celiac panel on you. Also blood tests can come back negative but it doesn't mean you don't have Celiac. I am also overweight and I am diagnosed with Celiac disease. I'm not sure if I made that clear. I'm just looking for another doc who really understands what Celiac does to the body. My current gastro only thinks it cause... -
ARCHIVED Looking For Good Celiac Doc In Slc Utah
srthomas21 replied to srthomas21's topic in Doctors
Has he run the celiac blood panel on you yet? -
ARCHIVED Looking For Good Celiac Doc In Slc Utah
srthomas21 replied to srthomas21's topic in Doctors
Hi Yes that would be great. Can you list your complete symptoms? Maybe we have some similar symptoms. Any issues with your eyes? I'm sensitive to bright lights and place like shopping centers, jazz games etc are killers. Is this doc a gastro or a GP? My energy levels suck as well. Let me know and thanks for the reply. -
ARCHIVED Interesting New Study
srthomas21 replied to srthomas21's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think I linked to the wrong article but now I can't find the correct one. The study I mentioned was done on 30 Celiac patients that were newly diagnosed. I wish I could find the correct link. -
ARCHIVED Why Does Gluten Cause Anxiety?
srthomas21 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have there been any really good studies done on this and how gluten effects our brains? -
I love PB8, it's super cheap as well. I was having major stomach issues until I started PB8 and since taking I was able to get off of Cipro which I had been on for 6 months for a nasty infection. Open Original Shared Link If you take 4 a day like I do it turns out to be like $14 a month. It worked great for me and I hope it will work for others....
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ARCHIVED Interesting New Study
srthomas21 replied to srthomas21's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Here is the link to the full study I think you have to pay $45 to get it though Open Original Shared Link -
ARCHIVED Interesting New Study
srthomas21 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
a look at the new study published in the May issue of the British Journal of Nutrition: (3) * 30 patient with diagnosed celiac disease were placed on a gluten-free diet for a one month period. * Pre and post study analyses indicated that the number of friendly bacteria such as Bifidobacterium and Lactobacillus diminished after the removal of the...