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junevarn

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by junevarn

  1. junevarn
    Hi all, About five years ago I tested through enterolab and found that I have the HLADQ8 gene and there were antibodies in my stool. The blood tests and the biopsy were negative. I stopped eating gluten. I just had blood work done again and I have antibodies to gluten and gliaden as well as tissue transglutaminase. I have been going out to dinner occasionally...
  2. junevarn
    HI Gabrielle, I really feel for you. Before finding out about being gluten and casein intolerant I would have "panic attacks "that would last for 6 hours at a time. I wen to the ER several times. I would have feelings of doom, diarrhea,vomiting shaking and palpitations and then shortness of breath. These attacaks would last from a few hours at first to...
  3. junevarn
    I get diarrhea, start vomiting, shaking and then start to have trouble breathing. I have to take benadryl and ant-inausea medication to make it stop. If I don't it lasts 6 hours. Take care, June
  4. junevarn

    ARCHIVED Grrrr....

    junevarn replied to a topic in Coping with Celiac Disease

    Hi Heather, I had a live cell analysis yesterday for the first time. Very interesting. I have fungus, parasites, poor digestion(no surprise there), among other things. I have suffered for many years with intestinal problems so I wasn't too surprised. I am also on a sugar free, yeast free diet along with being gluten and dairy free. Its...
  5. junevarn

    ARCHIVED Grrrr....

    junevarn replied to a topic in Coping with Celiac Disease

    Ditto to everything you guys said. My husband and I went to an italian restaurant Sunday with friends. I ordered roast chicken, potatos and asparagus. Everyone else had pasta. That wasn't too bad. During dessert it was hard cause they ordered chocolate cake to share and apple pie with ice cream(my fav!) I didn't have any dessert. My friend who...
  6. junevarn
    Hi guys, Right sided abdominal pain could be an ileo-cecal valve thats out of wack. If the pain is intense and you start having a fever it could be the appendix too. Left sided lower abdominal pain could be diverticulitis or just gas. A lot of the time I have lower abdominal pain before I go to the bathroom. I massage the area and sometimes put a warm...
  7. junevarn
    Steve-O, Just so you know, some molds can be extremely toxic and have been shown to cause death in infants. They definitely have neurotoxic effects. I'll try to find a web site for you. Thanks all for your support! June
  8. junevarn
    Hi Steve-O, My doctor at Health NOw clinic took some blood and sent it to BioHealth Diagnostics . Immunosciences Lab.8393 Wilshire Blvd Beverly Hills CA 90211 310-6571077. I have a huge number of antibodies to mold and am trying to figure out where I have been exposed to it. I think that is my main problem. (Besides the gluten of course. I just sent...
  9. junevarn
    Hi all, I had a bad reaction this morning to some shelton turkey no gluten sausage. It was a milder reaction than I used to get. I pooped everything out,(sorry to be gross but I must have gone 7-8 times.) I was slightly nausested. The weirdest symptoms were neurological, I had weird thoughts and my legs felt shakey. My blood tests showed three...
  10. junevarn
    I have been gluten and dairy free since October, 2004. I felt a little better a month after that. I have really started to feel like myself again since I finished the meds for the infections.( I had a bacterial infection in my stomach and a protozoa and yeast in the intestines).! I still get a little bloated when I eat too much starch but my energy...
  11. junevarn
    I had horrible heartburn that would extend into my whole chest!I didn't know what was going on. I also had terrible attacks with overwhelming anxiety( with vomiting and diarrhea and palpitations). I also have MVP.( its the mildest form, no worries). This doctor at the alternative clinic tested me for helicobacter pylori bacteria and I had it! It...
  12. junevarn
    HI all, My doctor sas there is something called molecular mimicry where the body can mistake concentrated soy for gluten. I guess the molecules are similar. He said not to eat tofu or tempeh. I also stay away from all fermented products cause I have a lot of antibodies to mold. I eat very little concentrated starchy products right now like rice. I...
  13. junevarn
    Dear Stef, Thanks for that. It was especially hard since that woman was doing this to her teenage daughter! If I knew that woman I would have called child protective services! Ignorance is a terrible thing. Sincerely, June
  14. junevarn
    Hi Tiffany, Ditto here, I can't tolerate casein either. I sure do miss ice cream! Oh well. I try to find other foods that I consider treats. I love raspberries and make them into a smoothie with soy milk and rice protein powder. I add ice to make it thick. We have a gluten free bakery in San Francisco that makes good chocolate brownies and other goodies...
  15. junevarn
    My doctor said that as the gut heals from villi damage, bacteria or other infectious agents that might have been encapsulated deeper in the gut come out and thats why you might feel sick even if you're off gluten for a time. : I had three types of infections from lowered immune function, (bacterial,protoza and yeast,) that had to be treated. This...
  16. junevarn
    You guys are all so great! Thanks for the validation. I just came back from an hour walk with my husband where I actually could keep on going. He remarked how much better I am doing now. He usually has more endurance than I do. Everyone tells me how much better I look now. A friend I had lunch with yesterday said how good I looked and how my face...
  17. junevarn
    Thanks for the support guys. Gluten intolerance was the start of it for me according to my doc. I have the gene and antibodies were detected in stool. I didn't have a biopsy but he thinks that I probably had damage if not severe. This led to my immune system being affected and getting all the infections I had. The first step was to go off gluten...
  18. junevarn
    Hello all, I decided today not to be on another support group.(The Yeast COnnection) Several people there said that celiac is not genetic and even alluded to the fact that " some people think everything is genetic". (refering to me). One woman whose daughter had very high levels of antibodies and had Hashimoto's Thyroiditis was still feeding her daughter...
  19. junevarn
    Thank you all so much for sharing those stories! Its good to know that I'm not alone in this. That's happened to me many times. I was in a restaurant once when I had to get up to the bathroom seven times in a row. I was with a good friend. After that I knew I would start throwing up so I apologized and had to drive home. The windows were all the way open...
  20. junevarn
    Wow, that was fun! Thaks for sharing that. June
  21. junevarn
    Thank you so much for answering my questions!! I have one of the main genes for celiac so I'm staying away from gluten no matter what anyone says! I don't want to run into more problems in the future. Thanks,I just needed some validation. Sometimes its hard out here. Its hard enough to deal with this problem ,never mind people who challenge you. ...
  22. junevarn
    Thank you. I knew I was right. If someone has positive antibodies in the blood thats a conclusive test for celiac, right? June
  23. junevarn
    Hi all, I haven't written in a while since I have been going to a new doctor who validates my gluten intolerance. I was diagnosed with three infections, received medications and am on the mend. I was on another support site at the yeast connection and a person there didn't believe that this is a genetic disorder. She thinks that it is caused by...
  24. junevarn
    Hi Mel, Do you know if there was fructose in the sorbet? I am intolerant to fructose. I was in San Francisco once , ate some and had to find a bathroom fast. I had to go into a hardware store where I had explosive diarrhea and then started throwing up. Just a thought. Take care, June
  25. junevarn
    Its really upsetting when people are insensitive to your health problems. I went to a birthday party recently where the hostess knew about my dietary needs. Its a good thing that I ate before I went there though and brought some nuts with me. The only thing I could eat there were some cooked carrots that they put aside and some plain rice. I acted like I...
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