
AKcollegestudent
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by AKcollegestudent
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ARCHIVED I Love Misinformation....
AKcollegestudent replied to AKcollegestudent's topic in Coping with Celiac Disease
Oh good. I seriously thought that I was losing my mind. Thanks for affirming my sanity! -
I follow a number of food communities, and one had an interesting recipe for stuffed zucchini; it was naturally gluten-free and I decided to check comments to see what others thought. Someone else noted that it was gluten-free and that she was looking forward to the millet and chickpea combination. The original poster informed them that no, it wasn...
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ARCHIVED Gluten Intolerance And College Meal Plan -- Your Two Cents And Experience Needed
AKcollegestudent replied to Mtb's topic in Coping with Celiac Disease
I'm on a 5 meal plan, and to be honest? The only reason they let me drop down that far is because I badgered them to death. This experience has definitely taught me that you can't accept "but really, we have x, y, and z--isn't that good enough?" when dining services cannot actually promise that they're taking all precautions to avoid CC. -
ARCHIVED Gluten Intolerance And College Meal Plan -- Your Two Cents And Experience Needed
AKcollegestudent replied to Mtb's topic in Coping with Celiac Disease
Go in and talk to the doctor on campus again. Lay out exactly what is happening, how it's affecting you--because if your situation is anything like mine, you feel like hell with no way to fix it; yay for CC and mislabeling--and the fact that your doctor's orders from home need to be followed. Try to call a meeting with both him, the nurse prac, your college... -
ARCHIVED How To Awkwardly Admit That Actually, You're Not Eating X
AKcollegestudent replied to AKcollegestudent's topic in Coping with Celiac Disease
I'd noticed it with the bread aisle, actually--some genius thinks that anyone who uses peanut butter or the frozen food case clearly wants bread. But I'm around pizza so rarely that I notice the issue more. I vote that whichever mouth-breathing architect decided to make the bread aisle an important feature of the design, and not tucked in a corner, gets... -
ARCHIVED How To Awkwardly Admit That Actually, You're Not Eating X
AKcollegestudent posted a topic in Coping with Celiac Disease
Last night, I was out with friends and ended up hanging out with someone I didn't know. (Well, okay. Someone who I've apparently been introduced to probably seven times, given that he greeted me by name. Oops.) We'd been with people who know that offering me pizza is going to be met with a polite, "No thanks," but by the time we actually reached the campus... -
ARCHIVED Gluten Intolerance And College Meal Plan -- Your Two Cents And Experience Needed
AKcollegestudent replied to Mtb's topic in Coping with Celiac Disease
About the time you mentioned broomball, I definitely started wondering if you were on my campus. The complaints sound similar to what I was dealing with three months ago. I don't know about you, but we don't have a disability office. To get anything done, I've had to go to the dean's, the head of dining services, the "chefs" in the dining hall, the health... -
ARCHIVED Staying With Friends For A Week, But
AKcollegestudent replied to book-worm's topic in Coping with Celiac Disease
Which small town? And honestly? I've done the 12 to 15 hour trip to and from Anchorage every four months for the past 3 years. It sucks balls, but realistically, it's might be really good to stop in Anchorage overnight. If you're heading the way I think you might be...honestly? That highway is treacherous. The past couple years, the fatality rates are so... -
ARCHIVED Help I Still Have Headaches
AKcollegestudent replied to miaryan's topic in Coping with Celiac Disease
Miaryan, my response got very long, so I'm PMing you. -
ARCHIVED College Life
AKcollegestudent replied to krisb0701's topic in Introduce Yourself / Share Stuff
Clif bars aren't actually gluten-free. They are wheat-free but not gluten-free. -
ARCHIVED Help I Still Have Headaches
AKcollegestudent replied to miaryan's topic in Coping with Celiac Disease
First off, topamax isn't the only migraine/headache preventative on the market. And it doesn't work for everyone. For me? It made them drastically worse, with the brain fog you're describing and the exhaustion. Because of the brain fog, my doc was worried about the possibility of seizures; I find it ironic that a side effect of a seizure drug is that it can... -
ARCHIVED Food Intolerance Symptoms The Same As Glutened Symptoms?
AKcollegestudent replied to detritus's topic in Coping with Celiac Disease
It may not be the coconut milk. Yes, it's possible that the intolerance symptoms are exactly the same. But it's also possible that that batch of Bob's Red Mill is CC'd already. I know I've reacted terribly to most of their products at one point or another; I keep one or two types of Bob's only if it's the only product available. -
ARCHIVED Visual Disterbance/ Migrain - Lasting 4 Months Now
AKcollegestudent replied to gary'sgirl's topic in Coping with Celiac Disease
This is the migraine elimination diet I did last year, and I will be doing it again this summer. (It's suspected we missed some the last time.) Open Original Shared Link I need both meds and cutting out food triggers to get mine to a manageable level (2 or three a week, as opposed to daily and unrelenting), but the elimination diet helped immensely. ... -
ARCHIVED Is Smarties Candy On The "safe" List?
AKcollegestudent replied to Nicci's topic in Parents, Friends and Loved Ones of Celiacs
I can't say anything about the gluten status of Smarties, but I do want to point something out: Smarties in the US and Smarties in Canada are vastly different things. I hate Smarties in the US, though when I was a kid, family would bring back Canadian Smarties for me. -
ARCHIVED I'm So Careful. But All This... Bah.
AKcollegestudent replied to Lycopene's topic in Coping with Celiac Disease
First off, I'm certain others have noted this, but are you positive that you don't have other intolerances? Secondly, I share a kitchen with no fewer than 25 gluten eaters (and possibly more like 40 or 50). I haven't been glutened because of my kitchen in months. And the trick is really, really simple: find some place--some place that is not your kitchen... -
I'm with everyone else: you've got it. I'm sorry, but there's probably nothing else that's causing it. That said, I'm sorry--if you're anything like me, you're going to hate half of the gluten-free foods you're eating right now. They taste okay, but not great, right? Go down to meat, vegetables, all simple foods for a month or two. Slowly work...
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ARCHIVED Travelling In Us
AKcollegestudent replied to Olivegirl's topic in Coping with Celiac Disease
Fairbanks should have gluten free baked goods, sold by Almond Hearth. I haven't been back to Fairbanks since I was a small child, so I can't speak to the restaurants and stores with absolute certainty. However, if you're willing to buy food, both Carrs Safeway and Fred Meyers have decent selections of specialty items and other grocery items. A quick search... -
ARCHIVED Travelling In Us
AKcollegestudent replied to Olivegirl's topic in Coping with Celiac Disease
Seattle's fantastic--I was there back in July and had no real problems eating out. (Eating with my friend's family, on the other hand, turned into me cooking to save us all a headache.) As for Alaska, I can honestly say: tell me where, and I can probably tell you what's actually safe. -
ARCHIVED Gluten Contamination
AKcollegestudent replied to inmygenes's topic in Coping with Celiac Disease
The proenamel sensodyne--which I use on a semi-regular basis--is gluten-free, and the company said so, as of a late 2009 post on the board. And as several mods are fond of noting, 1) that's a 3 year old quote; things may have changed in the intervening years and 2) it's a fairly standard CYA letter. Most of the time, the product is gluten-free and the... -
ARCHIVED Gluten Contamination
AKcollegestudent replied to inmygenes's topic in Coping with Celiac Disease
I get amazingly sick from flour left in the air. Most of my most intense glutenings have been because someone was making something with flour and I breathed it in. Mind you, I also try to hurl just by breathing in the smell of the bread aisle. (Seriously? The peanut butter I buy is at the end of the same aisle. I've been known to get someone else to pick... -
ARCHIVED Positive Results - No Symptoms
AKcollegestudent replied to betts13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My only symptoms for quite a while were migraines and later--primarily after I went gluten-free this last time--joint pain. Other things sometimes show up, but very rarely. I've never had the genetic testing, though I've had a positive diagnosis for years. One day, if I actually have money, I hope to do the genetic testing. But because my migraines are... -
ARCHIVED Inhaling Versus Ingesting
AKcollegestudent replied to NorthernElf's topic in Coping with Celiac Disease
When I went back to the diet in June, I was working as a pizza cook. I've been working as a cook since I was 16, in various restaurants and settings. And it took a few weeks, but I realized that even though I felt much, much better, even working a couple hours a day was making me sick. I ended up quitting that particular job the day that I made 10 pizzas... -
My chiropractor has kept the migraines from escalating. (The poor man did unintentionally make it worse by giving me wheat filled supplements back when we didn't know better, but that's not his fault.) Without him, I'm fairly certain that I'd be unable to function anymore. Unfortunately, I don't know of any decent ones anywhere around my campus, so I really...
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ARCHIVED Enough! I Just Need It All To Stop!
AKcollegestudent replied to book-worm's topic in Coping with Celiac Disease
* Milk * Eggs * Peanuts * Tree nuts (such as almonds, cashews, walnuts) * Fish (such as bass, cod, flounder) * Shellfish (such as crab, lobster, shrimp) * Soy * Wheat I've got three of the eight, though wheat is out for celiac reasons and not a true allergy. A lot of my friends who have one issue end up with... -
ARCHIVED Hidden Gluten Or Other Allergy?
AKcollegestudent replied to homefront's topic in Parents, Friends and Loved Ones of Celiacs
In addition to CC in the kitchen, there's another possibility: Bob's Red Mill itself. I know that I react terribly to Bob's Red Mill--as do others on the board. The brand has CC issues, and it's one reason why I avoid it when I can.