Jump to content

EJR

Advanced Members
 View Profile  See their activity

  • Posts

    45

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by EJR

  1. EJR

    ARCHIVED Red Heads

    EJR replied to ctenny's topic in Introduce Yourself / Share Stuff

    Another redhead here. My grandparents were from Norway so have the fair skin, freckles, etc.
  2. EJR

    ARCHIVED What Could It Be?

    EJR replied to sora's topic in Super Sensitive People

    The Butterball turkey may be the culprit. I looked on their website and the turkey has 'modified food starch' injected as well as other ingredients. Modified food starch may contain gluten.
  3. EJR
    I am allergic to soy (skin-prick test at allergists). My first symptom was a burning and stinging sensation and slightly swollen lips and tip of my tongue when drinking soy milk. I am presently gluten, soy, dairy, and egg free.
  4. EJR
    Thank you for this information, Mushroom. It describes very well what I also experience. I have had SVT's (supraventricular tachycardia) since I was 13 years old (now 65). I have also experienced the exact frustration you speak of with doctors (the gastros and the heart specialists). Just last night I had the problem when I went to bed so I got up and...
  5. EJR

    EJR

    Hello EJR, Ive been reading an old post about the abdominal pain you were experiencing at night time.

    My daughter has recently been diagnosed as Celiac and is suffering with the same pain at night. Did you ever find out how to control this? She is already on the diet and was ok for a few months but recently had a stomach bug and is up every night again.

    Any advice you can give please?

  6. EJR

    ARCHIVED Chia Seed

    EJR replied to Noche22's topic in Related Issues & Disorders

    I've been eating them for about two months. I have found that they help keep me 'regular'. They have the benefits of psyllium without the harshness. I heard about them from a lady who has colon cancer and has had a good portion of her bowel removed. She was unable to have regular bowel movements until she started taking chia seeds on a daily basis (...
  7. EJR
    Yes, I have had shingles twice now. The first time when I was about 40 years old. And then I had a very bad outbreak last February (I am now 64). They were on my lower back (buttocks area) and wrapped around into my abdominal/pelvic area. I was diagnosed with gluten intolerance by Enterolab and a specialist where I live agrees with the diagnose due...
  8. EJR
    Hi All, I am 64 years old and have suffered increasing food intolerances for the last 7 years. It all seemed to start after taking Ciprofloxacin and developing a rectal yeast infection that lasted for over a year. Eggs were the first to go and then dairy. Both produced rapid explosive diarrhea and gas. My gall bladder was removed 3 years ago and then...
  9. EJR
    Sorry I didn't quite get the dates right regarding weight loss. Nov. 07 to Jan 09 lost 50 lbs. Holding at 117-119 since Feb. 09.
  10. EJR
    Hi Gemini, The description you used for my doctor seems to fit quite nicely. But perhaps she is correct, I'm not 100% sure. I would suspect some other auto-immune disorder or liver disorder (I have 4 cysts on my liver which they say are not something to worry about). Getting to see particular specialists here in the land of 'socialized medicine' is...
  11. EJR
    Hi Ravenwoodglass, Thank you so much for you kind and understanding reply. I'm really not too worried about the Big C. I have been ill since Dec. 2007 when I had my gall bladder removed. This is when all of my serious digestive problems and weight loss started. Right now I'm just trying to deal with the shingles pain and the constant gut/bowel pain...
  12. EJR
    Just last week I broke out in a rash. It starts at my spine (waist level) and goes at an angle down my buttocks and wraps around into my lower abdominal area. All of this is on the left hand side of my body. Two doctors have confirmed that it is shingles. Apparently because of the location it could be increasing my normal left-sided abdominal/rectal...
  13. EJR
    Hi David, I just read your other posts as well. Have you considered that carrageenan which is found in many foods including ice cream may be causing your GI symptoms? I was drinking almond milk everyday and had one heck of a time before figuring out that the carrageenan in the almond milk was the culprit. There is quite a bit of information available...
  14. EJR
    Hi Jason, I have been following and reading your posts for the last few months. Your problems with food sound very similar to my own. My biopsy was negative (after being gluten free for 1 month). My stool analysis at Enterolab showed elevated anti-gliadin. I am also DQ8 .... I remember that this is the same for you as well. I also believe that...
  15. EJR

    ARCHIVED Taro Root

    EJR replied to EJR's topic in Gluten-Free Recipes & Cooking Tips

    Anyway just wanted to say that I was very brave and tried some of the Taro Root tonight. I just boiled it for about 45 minutes (had already cut it up like a potato). We peeled it first (kind of hard, my husband did it). We both loved it!!! It certainly has a delicious taste! Definitely tastes like nuts to me. I have really been missing nuts as I don...
  16. EJR
    I just bought some Taro Root today as an alternative carbohydrate. Apparently it is supposed to be very good for infants and people with digestive problems / allergies. Do any of you have experience with cooking Taro Root? I'm not sure how long I should boil it to be sure the toxins are removed. How do you store the taro root? How long does it keep...
  17. EJR

    ARCHIVED Hives

    EJR posted a topic in Food Intolerance & Leaky Gut

    Two days ago I developed a number of red, itchy, hives? on the back of one leg (from the knee down). The old welts look slightly dried up and new ones keep appearing higher up on the leg. There is one on my other leg. At least 10 or so on the affected leg. They are fairly large and really itchy. The skin on my back feels itchy but no sign of hives...
  18. EJR
    Hi DigiSage, Simethicone (gas-x) does absolutely nothing for me either. I suffer from similar bloat every night and sometimes during the late afternoon as well. I read that simethicone is only effective against gas in the upper digestive tract and in particular the stomach. This is not where my bloat problem occurs. It always starts as the bulk of...
  19. EJR
    Thank you for your reply, Nora. I will try to find the gluten sensitivity forums that you mention. I noticed when I looked up your name that you are from Norway. I am of Norwegian descent but live in Canada. My mother's parents immigrated to Canada from Norway in the early 1900's. My mother spoke fluent Norwegian but I'm afraid my sister and I didn...
  20. EJR
    Hi Nora, Thank you so much for replying to Mrs. Roo and also to myself (Joyce). You know a lot about reading these results and your words and thoughts are very useful. Could you please tell me a little more about your comment reading the DQ6 on my Enterolab report (Serologic equivalent: HLA-DQ 3,1 (Subtype 8,6). Are these the two genes from both...
  21. EJR
    Hi, I have this problem also. Actually about 5 years ago I got it in the anal area also after taking Ciprofloxacin for 3 days. Had to see a specialist before it would clear up (took over a year). I still get what I think are vaginal yeast infections quite regularly and like you sometimes the creams help and sometimes they don't. I also get...
  22. EJR
    My Prometheus result show: DQ8 Heterozygous (DQB1*03/DQB2*0302) This was done 08/10/2009 My Enterolab results show: HLA-DQB1 Molecular analysis, Allele 1: 0302 (they told me this is equivalent to DQ8) Also: HLA-DQB1 Molecular analysis, Allele 2: 0603 (apparently this is a gluten sensitivity gene but not one of the main celiac genes) It also...
  23. EJR
    Thank you so much for your replies (Cara, Jerseyangel & Brooklyn). Your experiences and knowledge are very, very helpful. I'm still wrestling with whether or not I really have gluten intolerance/Celiac disease because I don't have an official medical diagnosis (biopsy or bloodwork). Unfortunately I was already gluten free before having these done....
  24. EJR
    Hi Cara and JerseyAngel, Kind of blew my first attempt to respond here. I appreciate your responses very much. These are the readings I got yesterday from the doctor: AST 64 10-35 Normal Range ALT 77 5-45 Normal Range GGT 57 10-35 Normal Range Are these the kind of readings that you get after being glutened? Would these readings...
  25. EJR
    The day after doing a gluten challenge (after being almost gluten free for 1 1/2 years) I happened to have bloodwork done. My doctor just called and the tests showed elevated liver enzymes. This has never been seen before in my bloodwork. I'm planning to go back in a three weeks or so and be restested. I will remain gluten free and see if the liver...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.