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Lynayah

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Latest Celiac Disease News & Research:

Everything posted by Lynayah

  1. Lynayah
    How do I pull up my subscribed threads in the forum? Thanks.
  2. Lynayah
    Hi, Crayons574: I agree! Even though the original posts are from some time back, reading them helped me so much NOW. We're going to WDW this October -- I am being tested for Celiac in a couple weeks, and it will be the perfect place to go while coping with it all . . . assuming of course that I need to give up gluten (which I most probably will).
  3. Lynayah
    Wow. Disney is indeed, MAGIC!
  4. Lynayah
    LOVE your post! Thank you so very, very much!
  5. Lynayah
    <<Your kitchen equipment has been plotting against you for years. >> Yep, it's a plot all right . . . a secret plot that includes everything from frying pans to food to sanity. Shhhhhh . . . . no one knows it, but the whole thing has been surreptitiously commissioned by the manufacturers of bird seed . . .
  6. Lynayah
    PS to Karen: Are you staying on Disney Property? If yes, then ask the desk to guide you in any gluten-free info they have. Also call WDW Dining. I believe the telephone no. is 407-566-5858. From what I hear and have read, there is no better place in the world to visit for friendly, gluten-free dining! Enjoy! Disboards: Open Original Shared Link...
  7. Lynayah
    Hi, Karen: What what I've read, YES . . . most of the counter service restaurants there can accomodate you. Just make sure that, instead of waiting in line, you ask to see a manager as soon as you arrive. Be prepared to wait a little longer than usual, too, as the kitchen takes care of you. You might want to visit disboards.com's disABILITIES forum...
  8. Lynayah
    I'm not 100% sure, but I think Spoodles is closing and then opening to another restaurant -- Cat Cora, I think, may be taking it over. Yes, I've heard many wonderful things about Spoodles. I really need to check out the status of it.
  9. Lynayah
    Thank you!
  10. Lynayah
    My first test was negative, too. I didn't know I had to eat gluten for 8 weeks before being tested - doc at the time didn't tell me. I have another test coming up in August. As I wait, I am actually afraid the next test will come back neg., too -- possibly because the doc hasn't asked me to eat enough gluten each day in prep. I know I have either gluten...
  11. Lynayah
    DH, DS, etc. -- what does it stand for? I'm sure I'll say DUH once I see the answer. Thanks for any assistance. Lyn
  12. Lynayah
    Hi, Everyone: We're planning a trip to Walt Disney World in October, and I'd LOVE to hear about your favorite WDW gluten-free dining experiences . . . and why. A little background: Hubby and I are going solo, ages 55, 56 -- this is our first time together in WDW without kids since our honeymoon in 1977. This will be my first time gluten-free. Hubby...
  13. Lynayah
    Thank you, Zero!!!!!!!
  14. Lynayah
    Well, it worked! I laughed quite a bit at this one. Thanks for the smile.
  15. Lynayah
    Still searching -- something that lets family and friends (any maybe even restaurants) understand -- in a very simple, easy to read way -- that someone with Celiac cannot have just a little bit now and then -- also maybe a word or two about how serious cross-contamination can be. Anything?
  16. Lynayah
    Very interesting, thank you. I have left a message for my upcoming doctor to see if I need to be eating more gluten. What is SCIO?
  17. Lynayah
    Does anyone here have experience with the University of Chicago Celiac Center physicians for adults? I have an appointment with Dr. Semrad in August and would love to hear from other who have used her or the Center. Thank you! Lyn
  18. Lynayah
    Thank you so very much for this information. Oh my gosh. I hope I wasn't given wrong information -- my doctor's nurse told me the gluten I ate each day "didn't have to be much." This information came from the University of Chicago Celiac Center, and I assumed they were completely up on things. I've been questioning the amount all along and have...
  19. Lynayah
    Do you have a favorite book, article or pamphlet that you give to family or friends when they want to know more about gluten-intolerance or Celiac? -- Something fast, friendly and easy to read that helps them understand that No, a person can't have just a little bit now and then?
  20. Lynayah
    Short version: Once a person has gone gluten-free, is it normal to have a heightened sensitivity to gluten? Optional: Here's the long version: I am currently eating gluten every day in preparation for a Celiac test in August. Prior to this, I would have days where I would eat gluten and days were I would not. Some days, I thought I wasn't...
  21. Lynayah
    I was morbidly obese for many years. As a child, I remember thinking, "Why can other kids eat a sandwiche, chips, milk for lunch . . . maybe even a Twinkie . . . and not gain weight?" It never made sense to me. AND, I was as active as them, but I was always the nerd-fat-little-girl, even though I ran and played with the best of 'em. The only time...
  22. Lynayah
    Since there were no replies, I moved this post to post-diagnosis. Thank you! Here it is again for reference: I am currently eating gluten every day in preparation for a Celiac test in August. Prior to this, I would have days where I would eat gluten and days were I would not. Some days, I thought I wasn't eating gluten but in fact was probably...
  23. Lynayah
    Ravenwoodglass, I want to thank you most dearly for all your posts -- here and elsewhere. They have helped me so much.
  24. Lynayah
    Yes, it can be a real nightmare. You're soooooo not alone!
  25. Lynayah
    Thank you for the advice on the sublingual B12. I will try it. Counting the days here until I see the Doc. I just want to know!
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