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Lynayah

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Everything posted by Lynayah

  1. Lynayah
    Nasalady, You're welcome! And thank you (and everyone here) for posting. This is going to be a fun thread. PS: I see you will have your one year gluten-free anniversary next month. Congratulations on getting through the first year!
  2. Lynayah

    ARCHIVED Glutened

    Lynayah replied to Googles's topic in Coping with Celiac Disease

    Googles, Have you ever read about the stages of grief? All that stuff about denial, anger, etc., and you have to experience them all before you get better? Well, from what I've learned so far, dealing with gluten-intolorance can be very similar, emotionally. Getting frustrated and mad as hell is a step in the right direction, so as odd as it...
  3. Lynayah
    Nora, That is very interesting. I haven't yet read the reports directly . . . but I will. I spoke with a nurse who gave me the results - she said my antibodies are high but the gene test (as well as the biopsy) came back negative. I am going to the Celiac Center at the University of Chicago -- many, if not most, of the blood tests are sent to Mayo...
  4. Lynayah
    I'm still healing -- only gluten free for a few weeks now with a couple set backs. Last week I was glutened and the neurological twinges in my feet and ankles were strong. It's weird, in addition to the tops of my feet hurting and ankles swelling, I'll get a kink that comes and goes -- when it is present, it feels as though I have a light sprain in my...
  5. Lynayah
    My hip pain is particularly bad at night. So much so, that when I have a flair-up, I have to get out of bed extra early just to deal with the pain. In the past the pain would come and go. In retrospect, I see that my worse problems might have been when eating gluten without knowing I was gluten-intolorant. I did a many-week gluten challenge and oh...
  6. Lynayah
    Here is the thread about being assertive with restaurants: https://www.celiac.com/gluten-free/index.php?showtopic=62129
  7. Lynayah
    This is a thread about being assertive and asking for what you need. This is where you can post your experiences when dealing with dining establishments OR when eating at work, parties, friends homes, etc. If there is already a thread just like this, please let me know. The purpose here is for all of us to work together to help each other learn to...
  8. Lynayah
    Restaurants: I know what you mean. Some won't budge. Yet, I find it amazing how helpful some restaurants can be if you call and speak with a manger first -- not the chef but the owner or top manager in charge (the ones who have to deal with libility). It is interesting that some restaurants I would never have assumed would be helpful have indeed...
  9. Lynayah
    Does anyone here suffer back pain or hip pain when gluttened?
  10. Lynayah

    ARCHIVED Glutened

    Lynayah replied to Googles's topic in Coping with Celiac Disease

    That's interesting about dairy! I did not know that it might be difficult to digest at first but later get better (unless intolerant to milk, of course). Thank you. Just to add to the thread, I am just now (thanks to this forum) learning that there are some folks who have a difficult time handling MANY gluten-free carbs and who must follow what is...
  11. Lynayah
    Okay, I don't know how else to ask this question without getting too "Augh, GROSS!", but I'll do my best . . . I have recently been diagnosed as a highly gluten sensitive non-Celiac. All the results for a definitive diagnosis of Celiac were inconclusive until my last test - the gene test -- came back negative. My question is: Can pre-diagnosis non...
  12. Lynayah
    Thank you for all the posts here!
  13. Lynayah
    THANK YOU, THANK YOU! Hugs, Lyn
  14. Lynayah

    ARCHIVED Glutened

    Lynayah replied to Googles's topic in Coping with Celiac Disease

    When I am unsure, I eat whole foods only and keep a diary (as suggested earlier). By whole foods, I mean meat, fruits, veggies and brown rice or another gluten-free whole grain or legume (red kidney beans work best for me), and that's it. I slowly add one food at a time -- no more than one every other day, and I watch and see. Some folks are sensitive...
  15. Lynayah
    PS: I tried to find the thread about SCD but the search function wasn't working for me. Might you post the link? Thank you so very much. PS: Are tomatoes a nightshade?
  16. Lynayah
    Ang1e: What books are available on SCD? What would you recommend? Thank you!
  17. Lynayah
    I have my results and am writing to thank everyone again. My doctor ordered more tests, including a gene test. My Gliadin IgG is very high and I definitely have gluten sensitivity, or intolorance -- whichever you wish to call it. My biopsy and gene test came back okay, so it is not Celiac. Because I am highly sensitive to gluten (now that I'm...
  18. Lynayah
    Hi, mom26boys: I have my results and am writing as promised. My Gliadin IgG is very high and I definitely have gluten sensitivity, or intolorance -- whichever you wish to call it. My biopsy and gene test came back okay, so it is not Celiac. So, while I an highly sensitive to gluten and still plan on eating gluten-free, I do not have an...
  19. Lynayah
    Muffy, where do you live? Are you anywhere near a teaching hospital or a state-of-the-art facility? If there's one thing life has taught me, it is not to mess around with any health care provider who doesn't have expertise in what I suspect may be my problem. Case in point: I didn't find out about my Vit. D deficiency until I went to a rhumatologist...
  20. Lynayah
    Has your doctor tested your blood for any vitamin deficiencies? I was a horrible mess last year, very weak and in a lot of pain. It turned out that I had a chronic Vitamin D deficiency -- almost no D in my body at all. Be careful with this and do not diagnose on your own. Deficiencies call for monitored mega-doses which can be dangerous if not analyzed...
  21. Lynayah
    That's interesting about the water. How much do you drink when you've been glutened? How do you know when you've had enough?
  22. Lynayah
    Thank you so much for posting this. I hope we hear from more. I have been gluten-free for only a week and am already seeing improvement in my feet and ankles. THANK YOU! Does anyone else have the same problems? Please add to this thread.
  23. Lynayah
    To add to my question: For me, specifically, the tops of my feet hurt and are more prone to swell. Anyone else?
  24. Lynayah
    How nice of you to ask! I'm still waiting on the results -- I should have them maybe as soon as tomorrow, and I'll let you know. Much appreciated, Lee
  25. Lynayah
    Thank you to everyone here -- tests are done and I'll have the results next week. I made it through the weekend with appreciation for all of you.
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